2025-09-05T07:49:13-05:00 2024-12-31 541342298 Kositzka Wicks and Company 5270 Shawnee Road Suite 250 Alexandria VA 22312 990 2024-01-01 331213657 Schizophrenia and Related Disorders Alliance of America SCHI 9033306323 2308 Mount Vernon Avenue 207 Alexandria VA 223011328 Gordon Lavigne Chief Excutive Officer 9033306323 2025-08-22 1 1 Jennica Jardine Whitfield CPA P01379267 7036422700 2024 2025-03-06 01:10:19Z Schizophrenia & Psychosis Action Alliance Gordon Lavigne 2308 Mount Vernon Avenue 207 Alexandria VA 223011328 2056269 0 X https://sczaction.org/ X 2008 MD To promote hope and recovery for indiviuals living with schizophrenia-related brain illnesses and ensure they receive respect, acceptance, appropriate treatment and opportunity to live a meaningful and satisfying life in a compassionate community that is free of discrimination. 19 19 4 19 0 0 1522530 1811433 0 113938 8561 6122 15319 0 1546410 1931493 0 25000 0 0 381226 607513 0 0 175436 1188946 1307185 1570172 1939698 -23762 -8205 1138093 1107187 143659 99723 994434 1007464 X To Promote hope and recovery for indiviuals living with schizophrenia-related brain illnesses and ensure they receive respect, acceptance, appropriate treatment and opportunity to live a meaningful and satisfying life in a compassionate community that is free of discrimination. 0 0 566015 25000 Awareness, Education, and Access: The Organization builds awareness of and educates about schizophrenia, psychosis and related disorders through extensive website resources, initiatives, social media outreach and participation in media interviews, webinars, and public programs. The Organization promotes medicalprofessionals training and career development through digital education partnerships that offer continued education as well as attending and presenting at health education conferences. Additionally, The Organization provides administrative support, materials, and oversight for two different support groups:1. Schizophrenia Alliance self-help/ peer support groups, which are run by and for people diagnosed with psychiatric brain disorders that include psychosis.2. Families for Care which is a peer support group for families of those with schizophrenia or schizophrenia-relatedbrain illnesses. 310421 Policy & System Level Change: The Organization backs federal, state, and local policies with the best chances to save lives, advocate for patients rights to life sustaining treatments/services and medical professionals ability to provide such treatments without judicial oversight. The Organization empowers community members to join movements against discrimination of people with schizophrenia and psychosis disorders, including meetings with Congressmembers and by hosting capitol hill briefings.The Organization also promotes public awareness of anosognosia as a neurological condition advances initiatives such as petitioning the World Health Organization to update its International Classification of Diseases by accurately classifying anosognosia as a highly prevalent neurological condition to make it easier for patients with anosognosia to receive proper care. 488385 113938 Research:The Organization funds research such as:1. Seeking new disease biomarkers and other early disease indicators that could improve diagnosisand treatment.2. Quantifying the societal costs of schizophrenia and related disorders, underscoring the country's devastating failure to provide appropriate medical care for people living with schizophrenia and the urgent need for policy changes to promote comprehensive solutions.3. Surveying caregivers of adults with schizophrenia or schizoaffective disorder to spotlight the diseases' negative impact on finances, career, and family lives. 1364821 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 0 1 0 0 0 0 0 0 0 0 0 1 0 1 0 0 0 0 0 1 0 0 1 0 0 0 0 1 0 0 0 1 27 0 1 4 1 0 0 0 0 0 0 0 0 0 0 0 0 X 19 19 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 AL AR CA FL GA HI IL KS KY MA MD ME MI MN MS NC ND NH NJ NM NY OR PA RI SC TN UT VA WA WI WV X The Organization 9033306323 2308 Mount Vernon Avenue 207 Alexandria VA 223011328 Angela Babaev Chair 1.00 X X 0 0 0 Anthony Brown Board Member 1.00 X 0 0 0 Marina Dorotheo Board Member 1.00 X 0 0 0 Theresa Frangiosa Secretary 1.00 X X 0 0 0 Matcheri Keshavan Board Member 1.00 X 0 0 0 Chad Koyangi Board Member 1.00 X 0 0 0 Holly Krasa Treasurer 1.00 X X 0 0 0 Rob Laitman Board Member 1.00 X 0 0 0 Patrick McElyea Board Member 1.00 X 0 0 0 Linda Mimms Vice Chair 1.00 X X 0 0 0 Tim Murphy Board Member 1.00 X 0 0 0 Mary Palafox Board Member 1.00 X 0 0 0 Eric Smith Board Member 1.00 X 0 0 0 Kurt Talbot Board Member 1.00 X 0 0 0 Donna Taylor Board Member 1.00 X 0 0 0 Tanya Trevett Board Member 1.00 X 0 0 0 Joel White Board Member 1.00 X 0 0 0 Michael Wolfe Board Member 1.00 X 0 0 0 Mindy Greiling Board Member 1.00 X 0 0 0 Gordon Lavigne Chief Executive Officer 40.00 X 164537 0 5500 Marissa E Shepherd Director of Operations 40.00 X 135287 0 12347 Arundati Nagendra Director of Research and Scientific Affairs 40.00 X 138437 0 12527 438261 0 30374 3 0 1 0 Laura Gordon Consulting LLC 5919 Welborn Drive Bethesda MD 20816 Consulting Service 159750 Precision HEOR PO Box 715727 Philadelphia PA 19171 Consulting Service 157970 Madison Habib Impact Philanthropy 31 Plummer Avenue Newburyport MA 01950 Consulting Service 154705 3 7917 1803516 27000 1811433 Fees for services 900099 113938 113938 113938 11876 11876 119022 124776 -5754 -5754 -5754 1931493 113938 0 6122 X 25000 25000 170038 95432 44989 29617 378376 232188 72913 73275 13609 13609 4153 4153 41337 24761 8731 7845 3856 3856 942092 788837 92265 60990 152181 106917 45000 264 5129 3099 2030 76799 42976 33823 39663 27287 8931 3445 58050 18166 39884 17863 17863 9468 9468 Licenses & Subscription 2084 158 1926 1939698 1364821 399441 175436 611506 201610 213116 147012 2586 14109 106190 50058 45687 56132 265198 688324 1138093 1107187 143659 99723 143659 99723 X 944434 1007464 50000 0 994434 1007464 1138093 1107187 -8205 21235 0 X X 0 1 X 1 0 X 738916 1411077 1578295 1522530 1803516 7054334 738916 1411077 1578295 1522530 1803516 7054334 1408426 5645908 4042 4641 5061 8561 11876 34181 85 -35017 15319 7917 -11696 7076819 113938 0.79780 0.59510 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1570 349 1221 104620 49709 54911 56132 X Part X, Line 2: The following was disclosed related to uncertain tax positions in the financial statements: Schizophrenia and Related Disorders Alliance of America, Inc. is exempt from federal income tax as a nonprofit organization described in Section 501(c)(3). 1 Schizophrenia and Psychosis Action Network Inc 2308 Mount Vernon Ave Ste 207 Alexandria VA 22301 992673665 501 c 4 25000 0 Program services 1 0 0 0 0 0 0 0 0 0 Gordon Lavigne Chief Executive Officer 150687 0 13850 0 0 0 0 0 5500 0 170037 0 0 0 Arundati Nagendra Director of Research and Scientific 133112 0 5325 0 0 0 5606 0 6921 0 150964 0 0 0 Substantial contributor Current Board Member 15717 Contribution 0 Substantial contributor Current Board Member 8430 Contribution 0 Substantial contributor Current Board Member 5000 Contribution 0 X 2 27000 FMV 0 0 0 Form 990, Part VI, Section B, line 11b A draft copy of Form 990 is first reviewed by the Board Treasurer and approved by the whole board before the final copy is e-filed with the IRS Form 990, Part VI, Section B, line 12c Board members are required to complete a conflict of interest questionnaire annually to disclose real or potential conflicts with parties having relationships with the organization. Form 990, Part VI, Section B, line 15a The executive committee of the Board determines the CEOs compensation using comparable data from other similar organizations as a guide. Form 990, Part VI, Section C, line 19 The organization makes its Form 990 and financial statements available to the public upon request Form 990, Part IX, line 11g Payroll processing fees: Program service expenses 0. Management and general expenses 1,354. Fundraising expenses 0. Total expenses 1,354. Bank Fees: Program service expenses 45. Management and general expenses 95. Fundraising expenses 7,152. Total expenses 7,292. Other professional fees: Program service expenses 788,792. Management and general expenses 90,816. Fundraising expenses 53,838. Total expenses 933,446. Form 990, Part XII, Line 2c The board approves the independent auditors on an annual basis. Schizophrenia Policy Action Network Inc 2308 Mount Vernon Ave Ste 207 Alexandria VA 22301 992673665 Program services MD 501(c)(4) 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 Schizophrenia Policy Action Network B 25000 Cash Schizophrenia Policy Action Network P 4865 Cash