2025-08-28T14:09:44-05:00 2024-12-31 410746749 CLIFTONLARSONALLEN LLP TWO INTERNATIONAL PLACE 22ND FLOOR BOSTON MA 02110 990PF 2024-01-01 831065602 THE ALEXION CHARITABLE FOUNDATION INC ALEX 4752303530 121 SEAPORT BOULEVARD BOSTON MA 02210 MICHAEL ELLOIAN TREASURER & DIRECTOR 4752303530 2025-08-26 1 1 LAURA J KENNEY P00202198 6177170831 2025-08-26 2024 2025-03-06 01:10:19Z X 7934584 X X 1736 1736 0 1736 1736 0 0 0 1240 0 1240 228909 0 228909 27 0 0 328 0 328 230504 0 230477 810000 810000 1040504 0 1040477 -1038768 1736 8973352 7934584 7934584 8973352 7934584 7934584 0 0 X 0 0 0 0 8973352 7934584 8973352 7934584 8973352 7934584 8973352 -1038768 0 7934584 0 7934584 24 0 24 0 24 0 0 500 0 500 0 476 476 0 0 0 0 0 0 0 0 0 0 0 1 1 MA 1 0 0 0 0 1 ALEXION.COM MICHAEL ELLOIAN 4752412977 121 SEAPORT BOULEVARD BOSTON MA 02210 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 SAMANTHA GILMAN 121 SEAPORT BOULEVARD BOSTON MA 02210 PRESIDENT (AS OF 04/24) 3.00 0 0 0 TAMAR THOMPSON 121 SEAPORT BOULEVARD BOSTON MA 02210 CHAIRPERSON & BOARD MEMBER 0.50 0 0 0 SIMU THOMAS 121 SEAPORT BOULEVARD BOSTON MA 02210 CLERK & BOARD MEMBER 0.50 0 0 0 MICHAEL ELLOIAN 121 SEAPORT BOULEVARD BOSTON MA 02210 TREASURER & BOARD MEMBER 2.00 0 0 0 RUTH DIAZARAQUE 121 SEAPORT BOULEVARD BOSTON MA 02210 BOARD MEMBER 0.50 0 0 0 SHANE DOYLE 121 SEAPORT BOULEVARD BOSTON MA 02210 BOARD MEMBER 0.50 0 0 0 NONE 0 CHANGING OUR WORLD 1285 AVENUE OF THE AMERICAS FL 5 NEW YORK CITY NY 10019 MANAGEMENT CONSULTING 228909 0 0 0 8646752 0 8646752 0 0 8646752 129701 8517051 425853 425853 24 24 425829 0 425829 0 425829 1040477 0 1040477 425829 0 0 1737153 1622713 176314 1656977 5193157 1040477 0 0 0 425829 614648 0 0 5807805 0 0 0 0 0 0 0 5807805 1737153 1622713 176314 1656977 614648 THE ALEXION CHARITABLE FOUNDATION I 121 SEAPORT BOULEVARD BOSTON MA 02110 4752303530 N/A THERE IS A FORMAL APPLICATION PROCESS THROUGH THE ALEXION CHARITABLE FOUNDATION, INC.'S WEBSITE. NONE THE ALEXION CHARITABLE FOUNDATION, INC. NOW MAKES CONTRIBUTIONS TO BOTH PRE-SELECTED AND UNSOLICITED CHARITABLE ORGANIZATION REQUESTS. ANGEL FLIGHT OF NEW ENGLAND 492 SUTTON ST LAWRENCE AIRPORT NORTH ANDOVER MA 01845 PC ONGOING GRANT IN SUPPORT OF ANGEL FLIGHT NES MISSION/FLIGHT COORDINATION: HEALING JOURNEYS FOR RARE DISEASES PROGRAM WILL ALLOW THEM TO CONTINUE THEIR SUPPORT OF PATIENT AND OUTREACH ACTIVITIES, ENABLING MORE PATIENTS AND FAMILIES TO RECEIVE SUPPORT IN ACCESSING AERIAL TRANSPORTATION FOR MEDICAL TREATMENTS NOT AVAIALABLE IN THEIR GEOGRAPHICAL AREAS. PARTICIPATING IN EXPANDED MARKETING TO VARIOUS RARE/ULTRA-RARE GROUPS TO PARTNER AND EDUCATE THEM ON ANGEL FLIGHT NES FREE AIR TRANSPORTATION SERVICES IS PIVOTAL TO CONTINUED GROWTH. 100000 BOSTON CHILDREN'S HOSPITAL 401 PARK DRIVE SUITE 602 BOSTON MA 02215 PC THE GRANT WILL SUPPORT THE PROJECT TITLED RAINBOW/KASA PROGRAM WHICH IS BOSTON CHILDREN'S HOSPITAL'S PRIMARY-CARE MEDICAL HOME FOR HIGHLY COMPLEX CHILDREN, OVER 50% OF WHOM HAVE RARE DISEASES. THE DEMAND FOR THE RAINBOW/KASA PROGRAM HAS GROWN SUBSTANTIALLY IN RECENT YEARS DUE TO HIGH QUALITY CARE COORDINATION SERVICES AND ABILITY TO MANAGE A POPULATION THAT OTHER MEDICAL HOMES CANNOT. THIS INITIATIVE - IMPROVING ACCESS TO COMPLEX PRIMARY CARE SERVICES - WILL ALLOW TO ENSURE MAXIMAL ACCESS FOR NEW PATIENTS TO THE PROGRAM, ENSURING THAT NEW PATIENTS CAN BE SEEN QUICKLY AND APPROPRIATELY WITH FULL SOCIAL AND MEDICAL ASSESSMENTS AND CONNECTION TO HOME AND HOSPITAL-BASED MEDICAL SUPPORTS. IN ADDITION, THIS INITIATIVE WILL ALLOW TO INCREASE OUR URGENT CARE SERVICES FOR RAINBOW/KASA PATIENTS, ENSURING THAT MORE PATIENTS CAN BE SEEN EACH DAY BY PROVIDERS EXPERT IN COMPLEX CARE. 100000 GIVE AN HOUR PO BOX 1532 CLARKSBURG MD 20871 PC THE GRANT WILL SUPPORT THE PROJECT TITLED CARE FOR CAREGIVERS: CARECONNECT: STRENGTHENING PEER & CLINICAL MENTAL HEALTH SUPPORT FOR RARE DISEASE CAREGIVERS PROGRAM WHICH AIMS TO STRENGTHEN THE CONTINUUM OF MENTAL HEALTH SUPPORT FOR CAREGIVERS WITHIN RARE DISEASE COMMUNITIES BY EXPANDING BOTH NONCLINICAL AND CLINICAL RESOURCES. THROUGH PARTNERSHIPS WITH RARE-SERVING ORGANIZATIONS, WE WILL ENHANCE CAREGIVER SUPPORT SYSTEMS WHILE DELIVERING SPECIALIZED TRAINING TO MENTAL HEALTH PROFESSIONALS TO ADDRESS THE COMPLEX EMOTIONAL AND PSYCHOLOGICAL CHALLENGES CAREGIVERS FACE. ADDITIONALLY, CRISIS SUPPORT PROTOCOLS WILL BE ESTABLISHED TO ENSURE SWIFT, EFFECTIVE INTERVENTIONS DURING EMERGENCIES, FOSTERING LONG-TERM RECOVERY AND RESILIENCE. 200000 LIFE LITERACY CANADA 9013-360A BLOOR STREET WEST TORONTO ONTARIO CA M5S 3C9 PC THE GRANT WILL SUPPORT THE PROJECT TITLED ABC HEALTH MATTERS: MANAGING RARE DISEASES AND CHRONIC HEALTH ISSUES FOR THE FOLLOWING PURPOSE: ABC HEALTH MATTERS IS AN INTRODUCTORY HEALTH LITERACY PROGRAM THAT EMPOWERS CANADIANS TO MANAGE THEIR HEALTH MORE EFFECTIVELY BY INCREASING THEIR CONFIDENCE WHEN TALKING ABOUT AND MAKING DECISIONS REGARDING HEALTH ISSUES WITH FAMILY, FRIENDS, AND HEALTH PROFESSIONALS. ABC SEEKS TO DEVELOP A NEW STREAM OF THE ABC HEALTH MATTERS PROGRAM DESIGNED TO MEET THE NEEDS OF FAMILIES IMPACTED BY RARE DISEASES AND CHRONIC HEALTH ISSUES. THE PROGRAM WILL INCLUDE TWO NEW TARGETED WORKBOOKS, COURSES ON THEIR CUSTOM LEARNING PLATFORM (THE ABC SKILLS HUB), OUTREACH TO COMMUNITY ORGANIZATIONS AND HEALTH CARE PROFESSIONALS, A DEDICATED PROGRAM LANDING PAGE, AND COMMUNICATIONS AND PROMOTIONAL ACTIVITIES TO RAISE AWARENESS ABOUT PROGRAM OFFERINGS. 150000 PATIENT AIRLIFT SERVICES (PALS) 7110 REPUBLIC AIRPORT SUITE 202 FARMINGDALE NY 11735 PC THE GRANT WILL SUPPORT THE PALS MISSION OF HELPING PEOPLE WITH TRANSPORTATION NEEDS FOR PEOPLE AFFECTED BY RARE DISEASES. PALS ARRANGES FREE AIR TRANSPORTATION FOR INDIVIDUALS LIVING WITH OR AFFECTED BY RARE DISEASE TO ACCESS OUT-OF-TOWN MEDICAL DIAGNOSIS, TREATMENT, AND FOLLOW-UP, AS WELL AS TO ATTEND RARE DISEASE CONFERENCES AND SOCIAL/EDUCATION EVENTS THROUGHOUT THE US. THE GRANT WILL FUND THE PROVISION OF ROUGHLY 450+ FLIGHTS NATIONALLY FOR RARE DISEASE PATIENTS, CAREGIVERS, AND FAMILIES (INCLUDING GROUND TRANSPORTATION BETWEEN THE AIRPORT AND TREATMENT DESTINATION), AS WELL AS OUTREACH TO PROMOTE THE AVAILABILITY OF THESE SERVICES TO THE RARE DISEASE COMMUNITY. 150000 STARVISTAS EARLY CHILDHOOD PROGRAMMING 610 ELM STREET SUITE 212 SAN CARLOS CA 94070 PC THE GRANT WILL SUPPORT THE PROJECT TITLED, EARLY CHILDHOOD PROGRAMMING: EARLY CONNECTIONS FOR NURTURING RESILIENT FAMILIES AND THRIVING CHILDREN WHICH COMMITS TO SUPPORTING FAMILIES WITH YOUNG CHILDREN, HELPING THEM OVERCOME LIFE'S CHALLENGES SUCH AS: MITIGATE THE EFFECTS OF FAMILY RISK FACTORS, TRAUMA, AND TOXIC STRESS. ENHANCE PARENTS AND CAREGIVERS' CAPACITY AND KNOWLEDGE TO CARE FOR THEIR CHILDREN. MENTAL HEALTH SERVICES FOR CHILDREN AND CAREGIVERS. EDUCATIONAL WORKSHOPS, TRAINING AND CONSULTATION FOR CHILDCARE PROVIDERS TO ENSURE THEY HAVE THE NECESSARY KNOWLEDGE AND SUPPORT ADDITIONALLY, PROVIDING SERVICES THROUGH VARIOUS MEANS, INCLUDING IN PERSON AT LOCATIONS ACROSS THE COUNTY, IN CLIENT HOMES, VIA PHONE, AND VIRTUALLY, TO INCREASE ACCESSIBILITY. 10000 THE AKARI FOUNDATION 15007 PEOPLES DR SAN ANTONIO TX 78253 PC THE GRANT WILL SUPPORT THE PROJECT TITLED RARE DISEASE SUPPORT INITIATIVE FOR THE PURPOSE ENHANCING ACCESS TO CARE FOR HISPANIC FAMILIES AFFECTED BY RARE DISEASES BY ADDRESSING CRITICAL BARRIERS SUCH AS MOBILITY, LANGUAGE, AND FINANCIAL CONSTRAINTS. THE PROGRAM WILL PROVIDE ESSENTIAL RESOURCES, INCLUDING TRAVEL ASSISTANCE, EDUCATIONAL INITIATIVES, AND CULTURALLY COMPETENT SUPPORT SERVICES, ENSURING THAT UNDERSERVED POPULATIONS RECEIVE TIMELY DIAGNOSES AND EQUITABLE ACCESS TO HEALTHCARE. BY LEVERAGING THEIR EXPERTISE IN SERVING THE HISPANIC COMMUNITY, AKARI FOUNDATION AIMS TO EMPOWER FAMILIES AND IMPROVE HEALTH OUTCOMES THROUGH TARGETED OUTREACH AND ADVOCACY EFFORTS. 25000 THE CHILDREN'S INN AT NIH 7 WEST DRIVE BETHESDA MD 208141509 PC THE CHARITABLE PURPOSE OF THE GRANT IS TO SUPPORT THE CAMPAIGN FOR THE CHILDREN'S INN AT NIH, A CAPITAL CAMPAIGN TO TRANSFORM ITS RESIDENTIAL FACILITY INTO A STATE-OF-THE-ART ENVIRONMENT TO SERVE MORE YOUNG PEOPLE AND THEIR FAMILIES, KEEP PACE WITH THE NIH'S GROWTH AND DISCOVERY, AND MEET THE CHANGING NEEDS OF RESIDENTS AND PEDIATRIC MEDICAL RESEARCH. 75000 810000 0 14 1736 0 1736 0 1736 0 0 0 0 0 0 0 0 0 0 LEGAL FEES 1240 0 1240 BANKING FEES 293 0 293 MA FORM PC FILING FEE 35 0 35 BUSINESS MANAGEMENT 228909 0 228909 FEDERAL EXCISE TAX 27 0 0