2025-11-17T15:16:06-06:00 2024-12-31 161131146 BONADIO & CO LLP 432 NORTH FRANKLIN STREET SYRACUSE NY 13204 990 2024-01-01 562547779 NORTH EAST ALS CONSORTIUM INC NORT 6178584277 200 PORTLAND STREET 5TH FLOOR BOSTON MA 02114 BEVERLY SMITS ASSOCIATE PROGRAM DIRECTOR 6178584277 2025-11-17 1 1 MICHELLE MUNDY P01982856 3154227109 2024 2025-03-06 01:10:19Z CARLY ALLEN 200 PORTLAND STREET 5TH FLOOR BOSTON MA 02114 2066070 0 X WWW.NEALS.ORG X 2005 NY OUR MISSION IS TO TRANSLATE SCIENTIFIC ADVANCES INTO NEW TREATMENTS FOR PEOPLE WITH AMYOTROPHIC LATERAL SCLEROSIS (ALS) AND MOTOR NEURON DISEASE (MND) AS RAPIDLY AS POSSIBLE. TO ACHIEVE OUR GOAL, NEALS FUNCTIONS AS AN ACADEMIC RESEARCH CONSORTIUM AND A RESOURCE TOOL FOR THE ALS COMMUNITY. NEALS IS COMMITTED TO THE PRINCIPLES OF OPEN SCIENTIFIC COMMUNICATION, PEER REVIEW, FULL AND OPEN DISCLOSURE OF POTENTIAL CONFLICTS OF INTEREST, AND DEMOCRATIC GOVERNANCE OF ITS ORGANIZATION AND ACTIVITIES. 11 11 0 11 0 0 7982 1107241 1339500 954412 0 4417 0 0 1347482 2066070 0 0 0 0 0 0 0 0 12604 1069037 554594 1069037 554594 278445 1511476 1517173 3081868 191422 251554 1325751 2830314 THE MISSION OF NORTH EAST ALS CONSORTIUM (NEALS) IS TO TRANSLATE SCIENTIFIC ADVANCES INTO CLINCICAL RESEARCH AND NEW TREATMENTS FOR PEOPLE WITH AMYOTROPHIC LATERAL SCLEROSIS (ALS) AND MOTOR NEURON DISEASE (MND) AS RAPIDLY AS POSSIBLE. 0 0 298146 954412 THE ANNUAL NEALS MEETING SERVES AS AN OPPORTUNITY FOR NEALS RESEARCHERS TO LIAISE WITH LEADING ALS AND MND SCIENTISTS, GOVERNMENT SPONSORS, ACADEMIC PARTNERS, AND PHARMACEUTICAL COMPANIES IN ORDER TO DISCUSS POTENTIAL TREATMENTS, TO REVIEW CURRENT RESEARCH ACTIVITIES, AND TO SHARE SCIENTIFIC UPDATES. THE NEALS SCIENCE ADVISORY BOARD IS RESPONSIBLE FOR ADVISING THE NEALS EXECUTIVE COMMITTEE AND NEALS MEMBERS ABOUT THE SCIENTIFIC BASIS OF NEALS RESEARCH ACTIVITIES. IN ADDITION, NEALS HAS BUILT AN EXTENSIVE ALS SAMPLE REPOSITORY AND MAINTAINED SEVERAL TRIAL DATABASES. IN THE SPIRIT OF COLLABORATION, WE MAKE RESOURCES SUCH AS THESE WIDELY AVAILABLE TO INVESTIGATORS CONDUCTING RESEARCH IN ALS. 298146 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 5 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 11 11 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 0 0 NY MA X BEVERLY SMITS 6176690384 200 PORTLAND ST 5TH FLOOR BOSTON MA 02114 X ROBERT H BROWNMD DPHIL SAB, CHAIR 1.00 X 0 0 0 GALE KITTLE CLINICAL EVALUATOR MEMBER 1.00 X 0 0 0 JEFFREY ROTHSTEINMDPHD SAB, CHAIR 1.00 X 0 0 0 TIMOTHY MILLER MD PHD SAB, CHAIR 1.00 X 0 0 0 JINSY ANDREWS MD MSC CO-CHAIR 5.00 X X 0 0 0 CHRISTINA FOURNIER INVESTIGATOR MEMBER 1.00 X 0 0 0 NICOLE TURCOTTE COORDINATOR MEMBER 1.00 X 0 0 0 MATTHEW HARMS INVESTIGATOR MEMBER 1.00 X 0 0 0 SABRINA PAGANONI INVESTIGATOR MEMBER 1.00 X 0 0 0 ZACHARY SIMMONS INVESTIGATOR MEMBER 1.00 X 0 0 0 JAMES BERRY CO-CHAIR 5.00 X X 0 0 0 CARLY ALLEN DIRECTOR OF OPERATION 40.00 X 0 0 0 0 0 0 0 0 0 0 0 1107241 502021 1107241 SPONSORSHIP 541700 363501 363501 INFRASTRUCTURE SUPPORT 541700 253184 253184 MEMBERSHIP DUES 541700 141098 141098 GRANT INCOME 541700 106524 106524 ANNUAL CONFERENCE - FE 541700 90105 90105 954412 4417 4417 2066070 954412 0 4417 X 252087 163857 75626 12604 5500 5500 56697 56697 40810 40810 11348 11348 17298 17298 708 708 SCIENCE MEETING AND EXE 60307 36184 24123 PROVISION FOR CREDIT LO 58000 58000 ANNUAL MEETING 20320 20320 MEMBERSHIP REIMBURSEMEN 19785 19785 11734 11734 554594 298146 243844 12604 1397373 1561289 500000 109800 205500 10000 317171 497908 1517173 3081868 47340 94080 144082 157474 191422 251554 X 1325751 1832406 997908 1325751 2830314 1517173 3081868 1511476 -6913 0 X X 0 1 X 1 0 X 370989 525426 325420 731283 1354863 3307981 370989 525426 325420 731283 1354863 3307981 3307981 3307981 598110 1.00000 1.00000 X 0 1000404 -2496 997908 1.00000 0 0 0 2059157 -6913 -6913 2066070 0 2066070 554594 0 554594 0 554594 X 3681 500404 FMV 0 0 0 FORM 990, PART VI, SECTION A, LINE 8B THERE ARE NO OTHER COMMITTEES. FORM 990, PART VI, SECTION B, LINE 11B THE ORGANIZATION PROVIDES A COPY OF THE 990 TO ALL BOARD MEMBERS FOR REVIEW. FORM 990, PART VI, SECTION C, LINE 18 ALL DOCUMENTS ARE MADE AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 990, PART VI, SECTION C, LINE 19 ALL DOCUMENTS ARE MADE AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 990, PART IX, LINE 11G OTHER: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 33,420. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 33,420. BANK SERVICE FEE: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 23,277. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 23,277. FORM 990. PART XII, LINE 2C THE ORGANIZATION HAS NOT CHANGED ITS OVERSIGHT OR SELECTION PROCESS DURING THE YEAR.