2025-11-17T12:24:05-06:00 2024-12-31 990 2024-01-01 881920584 RORY BELLE FOUNDATION % RACHEL HEILMANN RORY 7204328087 8275 E 11TH AVE 200621 DENVER CO 80220 RACHEL HEILMANN COFOUNDER DIRECTOR OF RESEARCH 7204328087 2025-11-16 true 2024 2025-03-06 01:10:19Z RACHEL HEILMANN 1543 IVANHOE STREET DENVER CO 80207 329727 false X www.therorybellefoundation.org X 2022 CO TO CHAMPION OPPORTUNITIES AND CHANGE OUTCOMES FOR EVERYONE IMPACTED BY NARS1 DISORDER EVERY SINGLE DAY 6 6 0 25 0 0 193766 263828 0 3499 7535 17485 30899 214750 302262 10000 0 0 0 3879 5234 94371 5234 104371 209516 197891 267644 467999 160 2624 267484 465375 TO CHAMPION OPPORTUNITIES AND CHANGE OUTCOMES FOR EVERYONE IMPACTED BY NARS1 DISORDER, EVERY SINGLE DAY. false false 21310 10000 NARS 1 GENETIC RESEARCH ACCOMPLISHMENTS: ESTABLISHED GRANT PROGRAM, FUNDED FIRST GRANT, AND IDENTIFIED ADDITIONAL GRANTS TO BE AWARDED FOR 2025. CONTINUED FUNDRAISING TO SUPPORT GRANT PROGRAM. GREW RESEARCH NETWORK AND OUTLINED RESEARCH PLAN. EXPANDED PATIENT REGISTERY AND BIOREPOSITORY. DEVELOPED CELL LINES. 70500 NARS 1 DRUG REPURPOSING ACCOMPLISHMENTS: FUNDED AND COMPLETED DRUG SCREENING PROJECT. 6528 NARS 1 DISORDER AWARNESS ACCOMPLISHMENTS: BOARD MEMBERS ATTENDED AND CONTRIBUTED TO SCIENTIFIC CONFERENCES. RECEIVED AND DEPLOYED GRANT FUNDING FOR TRANSLATION SERVICES. COMPILED NARS1 RESOURCES FOR IMPACTED FAMILIES. GREW NARS1 COMMUNITY THROUGH SOCIAL MEDIA CHANNELS. 98338 true true false false false false false false false false false false false false false false false false false true false false false false true false false true false true false false false false false false false false false false false false false false false false false true 0 0 true 0 false false false false false true true false false false false false false false false X 6 6 true false true false false false false true true false false true true true true false false false false false CO X X X CHRISTOFFER B DECLERCQ 7634438595 6344 YUMA LN N MAPLE GROVE MN 55311 X RACHEL HEILMANN COFOUNDERDIRRESEARCH 20.00 0.00 X 0 0 0 TERI DECLERCQ BOARD CHAIR DIR DEV 10.00 0.00 X 0 0 0 CHRISTOFFER B DECLERCQ TREASURER 5.00 0.00 X 0 0 0 CATHERINE RIGGS EXECUTIVE DIRECTOR 8.00 0.00 X 0 0 0 LAUREN ANDERSON SECRETARY 3.00 0.00 X 0 0 0 ROSS MCCARTHY DIR OF PATIENT ENGAGE 3.00 0.00 X 0 0 0 0 0 0 0 true false false 98679 165149 11098 263828 7535 7535 48792 98679 17702 31090 31090 8355 9763 -1408 -1408 642 642 642 OTHER INCOME 901101 575 575 575 302262 0 0 38434 10000 10000 45 45 1097 1097 148 148 33 33 6029 1500 2030 2499 3938 3938 640 640 RESEARCH - DRUG REPURPOSE 70500 70500 RESEARCH - BIOREPOSITORY 11310 11310 631 450 46 135 104371 98338 2154 3879 16000 10217 250607 456644 1000 1101 25 25 12 12 267644 467999 160 2624 160 2624 X 267484 465375 267484 465375 267644 467999 197891 0 X false false false X X 60128 191895 163828 415851 61348 57789 119137 60128 253243 221617 534988 15136 16511 17814 49461 1000 22220 9561 32781 0 0 16136 38731 27375 82242 452746 3499 7535 11034 3499 7535 11034 575 575 0 0 60128 256742 229727 546597 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED CASINO NIGHT 143699 92441 51258 1200 9967 6699 7545 1212 WINE TASTING 6724 1971 4753 1131 816 2 26541 26541 176964 120953 56011 1200 11098 6699 7545 2028 28570 27441 true UPLIFTING ATHLETES 8 ATKINSON DRIVE Ste 574 DOYLESTOWN PA 18901 341986485 501C3 10000 FMV COFUND DR VALLEE 1 PART I LINE 2 CONTRACTS SPECIFYING USE OF FUNDS MILESTONE BASED PAYMENTS X false false false false false false false false false ROSS MCCARTHY DIR OF PATIENT ENGAGE Part VI Line 2 TERI DECLERCQ AND CHRIS DECLERCQ ARE SPOUSES. Part VI Line 4 LIMIT BOARD COMPOSITION AND VOTING RIGHTS FOR FAMILIAL MEMBERS, REMOVED 2 Part VI Line 4 YEAR BOARD TERM LIMIT, UPDATED COMPENSATION PROVISION & OFFICER POSITIONS. Part VI Line 11b BOARD MEMBERS WERE FURNISHED A DRAFT COPY PRIOR TO FILING FOR REVIEW. Part VI Line 12c BOARD MEMBERS REVIEW COI POLICY ANNUALLY. POTENTIAL CONFLICTS ARE Part VI Line 12c DISCUSSED AND MONITORED DURING MONTHLY BOARD MEETINGS. Part VI Line 19 NO DOCUMENTS AVAILABLE TO THE PUBLIC.