2025-11-12T15:52:57-06:00 2024-12-31 200708248 PIVOT CPAS PA 238 PONTE VEDRA PARK DR ST 201 PONTE VEDRA BEACH FL 32082 990 2024-07-30 994435144 ISABELLA FOUNDATION INC ISAB 9046854091 5000 SAWGRASS VILLAGE CIR STE 3 PONTE VEDRA BEACH FL 32082 CHRISTOPHER LAZZARA DIRECTOR/PRESIDENT 9046854091 2025-11-12 1 0 WENDY RANSON P01204152 9042802053 2024 2025-03-06 01:10:19Z X CHRISTOPHER LAZZARA 5000 SAWGRASS VILLAGE CIR STE 3 PONTE VEDRA BEACH FL 32082 200200 0 X HTTPS://ISAELAINE.ORG X 2024 FL THE ISA ELAINE FOUNDATION IS DEDICATED TO ADVANCING RESEARCH DISCOVERIES ON ULTRA-RARE PEDIATRIC NEURODEGENERATIVE DISEASES, SPECIFICALLY BPAN (BETA-PROPELLER PROTEIN-ASSOCIATED NEURODEGENERATION) CAUSED BY A MUTATION IN THE WDR45 GENE. BY CHARACTERIZING EARLY-ONSET BPAN IN ISABELLA ELAINE LAZZARA, WE AIM TO UNCOVER INSIGHTS THAT MAY UNLOCK FUTURE TREATMENTS FOR MAJOR NEURODEGENERATIVE DISEASES SUCH AS PARKINSON'S AND ALZHEIMER'S. 0 0 0 0 0 0 200200 0 0 0 200200 0 0 0 0 0 57915 57915 142285 160975 18690 142285 X THE ISA ELAINE FOUNDATION IS DEDICATED TO ADVANCING RESEARCH DISCOVERIES ON ULTRA-RARE PEDIATRIC NEURODEGENERATIVE DISEASES, SPECIFICALLY BPAN (BETA-PROPELLER PROTEIN-ASSOCIATED NEURODEGENERATION) CAUSED BY A MUTATION IN THE WDR45 GENE. BY CHARACTERIZING EARLY-ONSET BPAN IN ISABELLA ELAINE LAZZARA, WE AIM TO UNCOVER INSIGHTS THAT MAY UNLOCK FUTURE TREATMENTS FOR MAJOR NEURODEGENERATIVE DISEASES SUCH AS PARKINSON'S AND ALZHEIMER'S. 0 0 46640 EDUCATION AND AWARENESS - TO ESTABLISH THE SCIENTIFIC CONNECTION BETWEEN BPAN AND PARKINSON'S / ALZHEIMER'S. THE SPECIFIC DISORDER, BPAN WAS FIRST IDENTIFIED IN 2012, AND IT APPEARS THAT BPAN IS A VERY ACCELERATED FORM OF PARKINSON'S / ALZHEIMER'S DISEASE. THE ISA ELAINE FOUNDATION WEBSITE PROVIDES EDUCATION AND AWARENESS. HTTPS://ISAELAINE.ORG/RESEARCH THE FOUNDATION WILL BEGIN ESTABLISHING COLLABORATIONS FOR SCIENTIFIC/MEDICAL RESEARCH AND FOR CLINICAL ASSESSMENTS BY BRINGING LEADING EXPERTS TOGETHER FOR A "MEETING OF THE MINDS" FOR EACH OF THE TOPIC AREAS LISTED BELOW. THE OUTCOME OF THESE MEETINGS WILL ESTABLISH PRIORITY RESEARCH AREAS FOR FUNDING TO PROMOTE THE RAPID DISCOVERY OF POTENTIAL TARGETS FOR THERAPEUTIC INTERVENTIONS.A. THERAPEUTIC INTERVENTIONSB. LONGITUDINAL CLINICAL STUDIESC. CLINICAL THERAPY DEVELOPMENTD. THERAPEUTIC STRATEGIES 11275 11275 57915 1 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 0 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 FL X CAROL LYNCH 9048342202 5000 SAWGRASS VILLAGE CIRCLE STE 3 PONTE VEDRA BEACH FL 32082 X CHRISTOPHER LAZZARA DIRECTOR AND PRESIDENT 20.00 X 0 0 0 DALE PIRKLE DIRECTOR 1.50 X 0 0 0 CAROL LYNCH TREASURER 2.00 X 0 0 0 LENN MURRELLE DIRECTOR 1.00 X 0 0 0 KRISTEN CAIN SECRETARY 5.00 X 0 0 0 FREDDIE FIGGERS DIRECTOR 1.00 X 0 0 0 0 0 0 0 0 0 0 0 200200 200200 200200 0 0 0 X 10160 10160 46640 46640 958 958 BANK SERVICE CHARGES 157 157 57915 57915 0 0 0 149172 0 11803 0 160975 0 11290 0 7400 0 18690 X 0 0 0 0 0 142285 0 142285 0 160975 142285 0 X 0 0 0 X 200200 200200 200200 200200 200200 200200 X PART II, SHORT YEAR EXPLANATION: INITIAL TAX RETURN RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 INTERCOMPANY PAYABLES: MSC PARTNERS 7400 7400 FORM 990, PART VI, SECTION B, LINE 11B REVIEW IS CONDUCTED BY THE CHAIR, COPY TO OTHER OFFICERS, AND APPROVED BY ALL. FORM 990, PART VI, SECTION C, LINE 19 THE INFORMATION IS AVAILABLE UPON REQUEST. FORM 990, PART IX, LINE 11G PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 46,640. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 46,640.