2025-10-08T11:30:23-05:00 2024-12-31 410746749 CLIFTONLARSONALLEN LLP 5255 EAST WILLIAMS CIRCLE SUITE 5000 TUCSON AZ 85711 990EZ 2024-01-01 521871536 JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION JOUB 8473616542 15411 STARLING CROSSING DR LITHIA FL 33547 STEPHEN MACK PRESIDENT 8473616542 2025-10-05 1 1 JONATHAN WITTMANN P02338566 5207903500 2025-10-05 2024 2025-03-06 01:10:19Z X JSRDF.ORG X X 69166 X 68560 606 69166 1000 12343 353 8013 21709 47457 260233 0 307690 X 258025 306217 2299 2299 260324 308516 91 826 260233 307690 X PROVIDING AN INTERNATIONAL NETWORK OF PARENTS WHO SHARE KNOWLEDGE, EXPERIENCE, AND EMOTIONAL SUPPORT. THE FOUNDATION OFFERS A NETWORKING LIST, NEWSLETTER, AND A BIENNIAL CONFERENCE. THE JOUBERT SYNDROME & RELATED DISORDERS FOUNDATION PLAYS AN IMPORTANT ROLE IN EDUCATING PHYSICIANS AND THEIR SUPPORT TEAMS AS WELL AS INCREASING PUBLIC AWARENESS. TO ADMINISTER A BIENNIAL CONFERENCE FEATURING PHYSICIANS WHO ARE CONDUCTING JOUBERT SYNDROME RESEARCH AND TO PROVIDE HELPFUL INFORMATION TO PARENTS RAISING CHILDREN WITH JOUBERT SYNDROME. 1000 1890 1890 X STEPHEN MACK PRESIDENT 3.00 0 0 0 MELISSA FIELDS PRESIDENT ELECT 3.00 0 0 0 JESSIKA GARIS TREASURER 3.00 0 0 0 AMY BALLOCK SECRETARY 3.00 0 0 0 MATT BALLOCK DIRECTOR 2.00 0 0 0 SARAH BORDERS DIRECTOR 2.00 0 0 0 KRISTIN CHAKO DIRECTOR 2.00 0 0 0 COURTNEY EDDY DIRECTOR 2.00 0 0 0 DEVIN HAYS DIRECTOR 2.00 0 0 0 LORI MORTON DIRECTOR 2.00 0 0 0 CASSIE MEIERS DIRECTOR 2.00 0 0 0 CINDY SCHMITT DIRECTOR 2.00 0 0 0 X 0 0 0 0 0 0 0 0 0 0 0 0 0 0 JESSIKA GARIS 15411 STARLING CROSSING DR LITHIA FL 33547 8137587626 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 171963 162938 51427 84640 68560 539528 171963 162938 51427 84640 68560 539528 26767 512761 834 834 4464 1030 85 74 5653 546015 52953 0.93910 0.95380 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: MERCHANDISE SALES - 2020 AMOUNT: $ 4,464. 2021 AMOUNT: $ 1,030. 2022 AMOUNT: $ 85. 2023 AMOUNT: $ 74. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED FORM 990-EZ, PART I, LINE 16 - OTHER EXPENSES DESCRIPTION: SUPPLIES. AMOUNT: 566. DESCRIPTION: FAMILY SUPPORT. AMOUNT: 516. DESCRIPTION: WEBSITE EXPENSES. AMOUNT: 127. DESCRIPTION: FUNDRAISING COSTS. AMOUNT: 3,911. DESCRIPTION: BANK CHARGES. AMOUNT: 99. DESCRIPTION: INSURANCE. AMOUNT: 1,794. DESCRIPTION: CONFERENCES. AMOUNT: 375. DESCRIPTION: REGISTRATION FEE. AMOUNT: 625. TOTAL TO FORM 990-EZ, LINE 16: 8,013. FORM 990-EZ, PART II, LINE 24 - OTHER ASSETS DESCRIPTION: PREPAID EXPENSES. BEG. OF YEAR AMOUNT: 2,299. END OF YEAR AMOUNT: 2,299. FORM 990-EZ, PART II, LINE 26 - OTHER LIABILITIES DESCRIPTION: ACCOUNTS PAYABLE. BEG. OF YEAR AMOUNT: 91. END OF YEAR AMOUNT: 826. THE ORGANIZATION DID NOT, DURING THE YEAR, RECEIVE ANY FUNDS, DIRECTLY,OR INDIRECTLY, TO PAY PREMIUMS ON A PERSONAL BENEFIT CONTRACT.THE ORGANIZATION, DID NOT, DURING THE YEAR, PAY ANY PREMIUMS, DIRECTLY,OR INDIRECTLY, ON A PERSONAL BENEFIT CONTRACT.