2025-09-30T08:39:00-05:00 2024-12-31 580692043 MAULDIN & JENKINS LLC PO BOX 1877 MACON GA 312021877 990 2024-01-01 331029337 NATIONAL ORGANIZATION FOR DISORDERS OF THE CORPUS CALLOSUM NATI 7148131393 18032-C LEMON DRIVE PMB 363 YORBA LINDA CA 928863386 DEONA KALALA PRESIDENT 7148131393 2025-09-29 1 0 AARON W MARSHALL P01243394 4784648000 2025-09-26 X 2024 2025-03-06 01:10:19Z NODCC DEONA KALALA 438507 0 X WWW.NODCC.ORG X 2005 MN THE NODCC HAS BECOME THE LEADING NONPROFIT ORGANIZATION FOR THE DISORDERS OF THE CORPUS CALLOSUM AND IS DEDICATED TO RAISING THE PROFILE, UNDERSTANDING AND ACCEPTANCE OF THESE DISORDERS THROUGH EDUCATION, NETWORKING, ADVOCACY AND BEING A CATALYST FOR RESEARCH. 17 17 0 30 0 0 119037 125540 56853 210906 11799 27120 28140 70196 215829 433762 0 0 0 0 0 0 0 0 5418 142994 437177 142994 437177 72835 -3415 515039 511624 0 0 515039 511624 THE NODCC HAS BECOME THE LEADING NONPROFIT ORGANIZATION FOR THE DISORDERS OF THE CORPUS CALLOSUM AND IS DEDICATED TO RAISING THE PROFILE, UNDERSTANDING AND ACCEPTANCE OF THESE DISORDERS THROUGH EDUCATION, NETWORKING, ADVOCACY AND BEING A CATALYST FOR RESEARCH. 0 0 32920 1301 THE NODCC HAS SEVERAL OUTREACH PROGRAMS TO HELP RAISE THE AWARENESS AND IMPROVE EDUCATION AMONG THE STAKEHOLDERS IN THE COMMUNITY. WE HOST EDUCATIONAL EXHIBITS AT PROFESSIONAL MEDICAL CONFERENCES & HOST MONTHLY VIRTUAL MEETINGS FOR PARENTS/CAREGIVERS AND ADJULTS WITH DCC IN OUR COMMUNITY. 62895 THE NODCC IS DEEPLY COMMITTED TO IMPROVING THE LIVES OF THOSE AFFECTED BY A DISORDER OF THE CORPUS CALLOSUM BY PROVIDING DIRECT SUPPORT AS WELL AS EDUCATIONAL RESOURCES IN COLLABORATION WITH A WIDE RANGE OF STAKEHOLDERS TO RAISE AWARENESS AND KNOWLEDGE. IN 2024, NODCC STAFF PROVIDED ONE ON ONE SUPPORT THROUGH PHONE CALLS, EMAILS AND INTERACTIONS ON SOCIAL MEDIA. WE PROVIDED WELCOME PACKETS TO NEWLY DIAGNOSED FAMILIES. WE MAINTAIN AN INCREASING NUMBER OF RESOURCES ON OUR WEBSITE, BROCHURE, EDUCATIONAL BOOKLETS, AND EDUCATIONAL VIDEOS ON YOUTUBE. 296386 209605 THE NODCC CONFERENCE AND REGIONAL MEETINGS ARE A WAY OF PROVIDING SUPPORT AND COMMUNITY TO OUR FAMILIES AFFECTED BY DCC. 392201 1 1 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 1 5 0 0 0 0 0 0 0 0 0 0 0 0 X 17 17 0 1 0 0 0 0 0 1 1 0 0 1 1 1 1 0 1 0 0 0 X X BARBARA FONSECA 7177470063 18032-C LEMON DRIVE PMB 363 YORBA LINDA CA 92886 X DEONA KALALA PRESIDENT 3.00 0.00 X X 0 0 0 DAVE O'BRIEN VICE PRESIDENT 3.00 0.00 X X 0 0 0 NATALIE ERB SECRETARY 3.00 0.00 X X 0 0 0 KEVIN HIGHT TREASURER 3.00 0.00 X X 0 0 0 HEATHER BAHORICH DIRECTOR 1.00 0.00 X 0 0 0 WARREN BROWN DIRECTOR 1.00 0.00 X 0 0 0 KATHERINE CLAXTON DIRECTOR 1.00 0.00 X 0 0 0 ILANA DAVLIN DIRECTOR 1.00 0.00 X 0 0 0 THOMAS FREY DIRECTOR 1.00 0.00 X 0 0 0 JENNIFER LITTLE DIRECTOR 1.00 0.00 X 0 0 0 KIP OREN DIRECTOR 1.00 0.00 X 0 0 0 DAX NORTON DIRECTOR 1.00 0.00 X 0 0 0 LAYTON SHAFFNER DIRECTOR 1.00 0.00 X 0 0 0 ELLIOTT SHERR DIRECTOR 1.00 0.00 X 0 0 0 JASMIN TURNER DIRECTOR 1.00 0.00 X 0 0 0 LEANN SCHOUTEN DIRECTOR 1.00 0.00 X 0 0 0 MIKE MOLETTIERE DIRECTOR 1.00 0.00 X 0 0 0 0 0 0 0 0 0 0 0 28329 97211 125540 PROJECT INCOME 541900 210906 210906 210906 27120 27120 74941 4745 70196 70196 433762 210906 0 97316 73500 58800 11025 3675 1050 525 525 1743 1743 18664 12179 6485 5223 5018 205 5320 4256 1064 4720 4720 270497 270497 1658 1658 COMMUNICATION CONSULTAN 23065 23065 BOARD MEETINGS 13876 13876 EDUCATION/SCIENTIFIC MT 9011 9011 NODCC REGISTRY AND WEBS 8850 8850 437177 392201 39558 5418 133168 106412 50760 46988 331111 358224 515039 511624 0 0 X 515039 491624 20000 515039 511624 515039 511624 -3415 0 X 0 0 0 X 229911 124901 112795 119037 160543 747187 23110 72950 226677 91919 285847 700503 253021 197851 339472 210956 446390 1447690 0 0 0 1447690 11799 27120 38919 11799 27120 38919 253021 197851 339472 222755 473510 1486609 0.97380 0.99010 0.02620 0.01000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 35532 20000 1444 54088 37676 2037 107 35532 39152 1324 53 99 37676 42767 3615 39152 46682 3915 42767 1.00000 0 0 0 FUNDRAISING EVENTS 74941 74941 4745 74941 74941 4745 4745 70196 SIMPLY BARB LLC EXECUTIVE DIRECTOR MANAGEMENT 0 BAILEY JOHNSON-SEAY FAMILY OF BOARD MARKETING 0 SCHEDULE L, PART V - ADDITIONAL INFORMATION BARBARA FONSECA IS A FOUNDING MEMBER OF THE NODCC AND CURRENTLY OCCUPIES A PAID POSITION AS EXECUTIVE DIRECTOR AS APPROVED BY THE BOARD. SHE IS PAID THROUGH SIMPLY BARB, LLC. FORM 990, PART VI, SECTION A, LINE 3 MANAGEMENT DUTIES ARE DELEGATED TO BARBARA FONSECA WHO CURRENTLY OCCUPIES A PAID POSTION AS EXECUTIVE DIRECTOR AS APPROVED BY THE BOARD. FORM 990, PART VI, SECTION B, LINE 11B PRIOR TO SUBMISSION OF THE TAX RETURN, THE FORM 990 IS SENT TO ALL BOARD MEMBERS FOR REVIEW AND COMMENT FORM 990, PART VI, SECTION B, LINE 12C CONFLICT OF INTEREST FORMS ARE DISTRIBUTED ANNUALLY TO ALL PARTIES AND ARE REQUIRED TO BE COMPLETED AND RETURNED. THE FORMS AND THE POLICY ARE PROVIDED TO ALL NEW BOARD MEMBERS. THE RETURNED FORMS ARE REVIEWED IN ACCORDANCE WITH THE POLICY. WHEN CONCERNS ABOUT CONFLICTS HAVE ARISEN AT BOARD OR BOARD COMMITTEE MEETINGS, THE POLICY IS REVIEWED AND THE INDIVIDUAL WITH THE CONFLICT IS EXCUSED FROM THAT PORTION OF THE MEETING. FORM 990, PART VI, SECTION C, LINE 19 NO DOCUMENTS AVAILABLE TO THE PUBLIC