2025-07-14T22:37:24-07:00 2024-06-30 990EZ 2023-07-01 465684988 A TWIST OF FATE-ATS CORP ATWI 5016053991 PO1562Box Owasso OK 74055 Andrea Taylor President 5016053991 2025-06-30 1 2023 2025-03-06 01:10:19Z X www.atwistoffate-ats.org X X 103431 X 103431 0 0 0 0 0 0 0 0 0 0 0 0 0 0 103431 0 0 0 84651 0 176 25339 110166 -6735 81748 0 75013 X 81748 75013 0 0 0 0 81748 75013 0 0 81748 75013 A Twist of Fate-ATS is the only patient support group in the world for an ultra rare condition called arterial tortuosity syndrome, working with clinicians, patients, and researchers to change the knowledge and understanding of the condition. Doing this by working as a team to change clinical guidelines and outcomes for patients. This program creates education about arterial tortuosity syndrome for patients, families, clinicians, and researchers in order to help save lives, create better clinical guidelines, search for treatments, and improve quality of life. We have about 200 patients globally with ATS that we support. It created a consortium of other rare connective tissue disorders, with aortopathies group leaders, providers, patients, and other stakeholders to find commonalities to find other ways that we can focus on arterial tortuosity syndrome and create education for patients and providers. 100000 110167 110167 Andrea Taylor President Founder 10 6798 0 0 Jade Day Vice President 5 6325 0 0 Sky Collins Treasurer 11.00 10200 0 0 Dana Hageman Family Liaison Committee 0.5 0 0 0 Ginger Tims Family Liaison Committee 0.5 0 0 0 Trent Robinson Legal Advisor 0.5 0 0 0 Megan Ransom Media Director 5 6000 0 0 Carolyn Fox Committee member 0.25 0 0 0 Chris Zerwas Industry Director 0.25 0 0 0 Martine Gould CGC Genomics Director 0.25 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 OK Sky Collins 11813 Oldwick Cir Oklahoma City OK 73162 4053016775 0 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 14166 32335 20007 16461 103431 186400 0 0 0 0 0 0 0 0 0 0 0 0 14166 32335 20007 16461 103431 186400 0 186400 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 186400 0 1 1 X 10859 32335 20007 16461 99208 178870 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 10859 32335 20007 16461 99208 178870 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 178870 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 10859 32335 20007 16461 99208 178870 1 1 0 0 X Schedule A, Part II, Line 10 We did not have other income. Schedule A, Part II, Line 12 There were no gross receipts from other activities. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Form 990-EZ, Part I, Line 8 We do not have other forms of revenue. We are a very basic group and are not involved in any type of sales. Form 990-EZ, Part I, Line 10 Currently we are not paying grants to any research organization. Form 990-EZ, Part I, Line 16 The other expenses are program-related travel and lodging costs, supplies and educational materials, postage and shipping, books and subscriptions, software/accounting fees, PayPal transaction fees. All of which directly supported project delivery, public education, and organizational operations. Form 990-EZ, Part I, Line 20 No other changes. Form 990-EZ, Part II, Line 26 We do not have liabilities in this manner. We are all volunteers and the operating members all had extenuating circumstances, including deaths, medical emergencies, divorces, and personal major job related troubles. This nonprofit is very important, but sometimes life with children with complex and ultra rare medical conditions, which the majority of the board does have, can be extremely overwhelming and unpredictable. This year in particular was extremely difficult for the leaders of this organization personally and was close to being detrimental for some of them.