2025-02-24T01:15:40-06:00 2024-06-30 930928924 PERKINS & COMPANY PC 1211 SW FIFTH AVE SUITE 1000 PORTLAND OR 97204 990 2023-07-01 930721765 SOCIETY FOR INHERITED METABOLIC DISORDERS SOCI 5036369228 18265 LOWER MIDHILL DR WEST LINN OR 97068 CARY HARDING MD TREASURER 5036369228 2025-02-10 1 1 ROSS LOCKWOOD P01374434 5032210336 2025-02-10 2023 2025-03-06 01:10:19Z SIMD SUSAN BERRY MD 2450 RIVERSIDE AVE RPB 500 MINNEAPOLIS MN 55454 1246195 0 X WWW.SIMD.ORG X 1977 OR INCREASE KNOWLEDGE OF GENETICS, BIOCHEM., METABOLISM, PREVENTION OF INHERITED BODY CHEMISTRY DEFECTS 18 18 2 18 0 0 536154 433762 801334 779608 17427 32825 0 0 1354915 1246195 0 0 0 0 67470 62822 0 0 0 1031962 1075033 1099432 1137855 255483 108340 1048682 1157022 0 0 1048682 1157022 X TO INCREASE KNOWLEDGE OF AND PROMOTE RESEARCH IN INBORN ERRORS OF METABOLISM IN HUMANS, AND TO STIMULATE INTERACTIONS BETWEEN CLINICIANS AND INVESTIGATORS IN INBORN ERRORS OF METABOLISM. TO SEEK TO FOSTER TRAINING AND MAINTENANCE OF A CORE OF QUALIFIED PHYSICIANS, FELLOWS, NUTRITIONISTS, NURSES AND LABORATORY STAFF. 0 0 473494 166528 DURING THE YEAR ENDED JUNE 30, 2024, SOCIETY FOR INHERITED METABOLIC DISORDERS ("THE ORGANIZATION") CONTINUED TO CONDUCT ITS METABOLIC COURSES FOR YOUNG TRAINEES IN THE FIELD OF INBORN ERRORS OF METABOLISM AND GENETICS. THE NORTH AMERICAN METABOLIC ACADEMY (NAMA 1.0) WAS HELD DURING THE FISCAL YEAR. 405325 613080 THE 2024 SIMD ANNUAL MEETING WAS HELD APRIL 14-17, 2024 IN CHARLOTTE, NC. THERE WERE A TOTAL OF 625 ATTENDEES FROM ALL OVER THE WORLD. IT WAS A THREE-DAY CONFERENCE WHICH INCLUDED A JOINT SESSION WITH THE GENETIC METABOLIC DIETITIANS INTERNATIONAL SOCIETY HELD AFTER OUR MEETING. THIS ANNUAL CONFERENCE GIVES AN OPPORTUNITY FOR DOCTORS, TRAINEES, GENETIC COUNSELORS, NURSES, DIETICIANS AND OTHERS A CHANCE TO MEET TO DISCUSS DIAGNOSIS AND TREATMENTS FOR THE RARE METABOLIC DISORDERS THAT THEY TREAT. THERE ARE 12 TRAVEL AWARDS OFFERED TO JR. FACULTY THAT COME AND TALK ABOUT THEIR RESEARCH, AND 168 POSTERS DISPLAYED FOR THE ENTIRE MEETING WITH A POSTER SESSION AND RECEPTION ONE EVENING. ATTENDEES VISIT THE EXHIBITORS DURING BREAKS TO LEARN MORE ABOUT THEIR PRODUCTS FOR CHILDREN WITH METABOLIC DISORDERS. 63824 ALSO DURING THE YEAR, THE ORGANIZATION CONTINUED TO PROVIDE IEMBASE, AN EXTENSIVE SYSTEM PROVIDING BOTH AN ONLINE KNOWLEDGEBASE AND A SMART SYSTEM (ARTIFICIAL INTELLIGENCE) FOR CURATION AND DIAGNOSIS SUPPORT FOR INBORN ERRORS OF METABOLISM. 54864 THE ORGANIZATION ALSO CONTINUED ITS MEMBERSHIP PROGRAM AND PUBLICATION OF A MEDICAL JOURNAL. 54864 997507 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 2 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 18 18 0 0 0 0 1 1 1 1 1 0 0 0 0 0 0 0 0 0 OR X LESLIE LUBLINK 5036369228 18265 LOWER MIDHILL DR WEST LINN OR 97068 X GERARD BERRY PAST PRESIDENT & BOARD MEMBER 1.00 X X 0 0 0 SUSAN BERRY PRESIDENT & BOARD MEMBER 1.00 X X 0 0 0 CARY HARDING TREASURER & BOARD MEMBER 1.00 X X 0 0 0 BRUCE BARSHOP SECRETARY & BOARD MEMBER 5.00 X X 0 0 0 DEBRA REGIER PRESIDENT-ELECT & BOARD MEMBER 3.00 X X 0 0 0 PETE BAKER MEMBERSHIP CHAIR & BOARD MEMBER 0.50 X 0 0 0 MOLLY CRENSHAW BOARD MEMBER AT LARGE 0.50 X 0 0 0 REBECCA GANETZKY ED COMMITTEE CHAIR & BOARD MEMBER 1.00 X 0 0 0 ERIN MACLEOD BOARD MEMBER AT LARGE 0.50 X 0 0 0 IRINI MANOLI PROGRAM COMM. CHAIR & BOARD MEMBER 0.50 X 0 0 0 AMARLIS SANCHEZ VALLE BOARD MEMBER AT LARGE 0.50 X 0 0 0 DAVID SINASAC BOARD MEMBER AT LARGE 0.50 X 0 0 0 WENDY SMITH BOARD MEMBER AT LARGE 0.50 X 0 0 0 ASHLEE STILES BOARD MEMBER AT LARGE 0.50 X 0 0 0 REID SUTTON BOARD MEMBER AT LARGE 0.50 X 0 0 0 SARAH VIALL BOARD MEMBER AT LARGE 0.50 X 0 0 0 KIRKLAND WILSON BOARD MEMBER AT LARGE 0.50 X 0 0 0 TIMOTHY WOOD BOARD MEMBER AT LARGE 0.50 X 0 0 0 0 0 0 0 0 0 0 0 123262 10000 300500 433762 REGISTRATION INCOME 611430 456858 456858 EXHIBIT SPACE 611430 322750 322750 779608 32825 32825 1246195 779608 0 32825 56354 1529 54825 1721 1721 4747 4747 5708 5708 35719 34391 1328 30194 4534 25660 37145 12850 24295 6267 6267 50998 36953 14045 588017 588017 2213 475 1738 NAMA EXPENSES 207785 207785 IEM PROGRAM EXPENSES 55960 55960 MEDICAL JOURNAL EXPENSE 54865 54865 PLAQUES 148 148 14 14 1137855 997507 140348 0 518340 615772 146580 125748 383762 415502 1048682 1157022 0 0 X 1048682 1157022 1048682 1157022 1048682 1157022 108340 0 X 0 0 0 X 547442 280652 502200 536154 433762 2300210 62410 54463 490254 801334 779608 2188069 609852 335115 992454 1337488 1213370 4488279 0 0 0 4488279 19773 20061 21687 17427 32825 111773 19773 20061 21687 17427 32825 111773 3500 3500 629625 355176 1017641 1354915 1246195 4603552 0.97500 0.97540 0.02430 0.02380 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED FORM 990, PART VI, SECTION A, LINE 6 CHARTER, ACTIVE, AND EMERITUS MEMBERS ALL HAVE THE SAME RIGHTS. FORM 990, PART VI, SECTION A, LINE 7A CHARTER, ACTIVE, AND EMERITUS MEMBERS ELECT THE MEMBERS OF THE GOVERNING BODY. FORM 990, PART VI, SECTION A, LINE 7B THE GENERAL MEMBERSHIP VOTES ON THE LIST OF APPLICATIONS SUBMITTED BY NEW MEMBERS THAT HAVE BEEN PREVIOUSLY APPROVED BY THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 IS REVIEWED BY THE TREASURER AND ADMINISTRATOR PRIOR TO FILING. THE TREASURER WILL SUBMIT AND PROVIDE A SUMMARY OF THE 990 TO THE MEMBERSHIP AT THE ANNUAL MEETING. FORM 990, PART VI, SECTION B, LINE 15 NO CEO, EXECUTIVE DIRECTOR OR TOP MANAGEMENT OR FINANCIAL OFFICIAL, NOR ANY OTHER OFFICER RECEIVES COMPENSATION FROM THE ORGANIZATION. THE ORGANIZATION HAS NO KEY EMPLOYEES. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS AND FINANCIAL STATEMENTS ARE NOT MADE AVAILABLE TO THE PUBLIC AT THIS TIME.