2024-08-23T08:18:21-05:00 2023-12-31 463004069 SNODGRASS OF NE OHIO INC 4820 STATE ROAD ASHTABULA OH 44004 990 2023-01-01 431642150 CHARGE SYNDROME FOUNDATION CHAR 5166844720 318 HALF DAY RD STE 305 BUFFALO GROVE IL 60089 DAVID WOLFE PRESIDENT 5166844720 2024-08-22 1 0 JEN BOGARDUS CPA P00627376 4409932142 2023 2024-08-08 14:25:15Z DAVID WOLFE 318 HALF DAY RD STE 305 BUFFALO GROVE IL 60089 1500873 0 X WWW.CHARGESYNDROME.ORG X 1993 IL SUPPORT INDIVIDUALS WITH CHARGE SYNDROME THROUGH RESEARCH, OUTREACH, EDUCATION, AND CONFERENCES. 9 9 5 386 0 0 246298 415746 0 484545 10127 37533 245681 189939 502106 1127763 103872 66445 0 0 163436 244375 0 0 18060 88234 611840 355542 922660 146564 205103 1432888 1592023 87086 10880 1345802 1581143 WE LEAD AND PARTNER TO IMPROVE THE LIVES OF PEOPLE WITH CHARGE SYNDROME LOCALLY, NATIONALLY, AND INTERNATIONALLY THROUGH OUTREACH, EDUCATION, AND RESEARCH. 0 0 853207 66445 484838 PROVIDE INFORMATION ABOUT CHARGE SYNDROME THROUGH PUBLICATION; PROVIDE SUPPORT TO FAMILIES WITH AN INDIVIDUAL WITH CHARGE; PROVIDE BIENNIAL CONFERENCES; SUPPORT RESEARCH RELATED TO CHARGE SYNDROME. 853207 1 1 0 0 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 0 0 0 0 1 0 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 5 0 0 0 0 0 0 0 0 0 0 0 X 9 9 0 0 0 0 0 0 0 1 1 0 0 1 1 0 0 1 1 0 0 0 AL AR CA FL GA HI IL KS KY MD MA MI MN MS NH NJ NM NY NC OR PA RI SC TN UT VA WV WI X AMRIT MEHTA 3134071572 1475 CLUB DR BLOOMFIELD HILLS MI 48302 DAVID WOLFE PRESIDENT 20.00 X X 0 0 0 NEAL STANGER VICE PRESIDENT 15.00 X X 0 0 0 JOANNE LENT SECRETARY 10.00 X X 0 0 0 AMRIT MEHTA TREASURER 10.00 X X 0 0 0 BEN DAIGLE DIRECTOR 5.00 X 0 0 0 MINNIE LEE LAMBERT DIRECTOR 8.00 X 0 0 0 PENNI ECHOLS DIRECTOR 5.00 X 0 0 0 LISA CUNNINGHAM EXECUTIVE DIRECTOR 40.00 X 124762 0 0 LILY SLAVIN DIRECTOR 5.00 X 0 0 0 124762 0 0 1 0 0 0 0 36420 379326 2118 415746 CONFERENCE INCOME 900099 484545 484545 484545 36442 36442 374201 373110 1091 1091 1091 189646 0 189646 189646 RETURN OF PRIOR YEAR G 900099 293 293 293 1127763 484838 0 227179 9053 9053 57392 57392 123462 104943 18519 95327 81028 14299 8413 7151 1262 17173 14597 2576 358 358 22532 5960 5960 10612 2349 1879 470 550491 550491 9458 5675 3783 MISCELLANEOUS 6345 3347 2998 OUTREACH 5053 5053 BOARD MEETING 4487 4038 449 SOFTWARE 4450 4450 6317 5947 370 922660 853207 51393 18060 588603 336554 141278 51860 703007 1203609 1432888 1592023 4049 9274 50000 0 25240 1606 7797 0 87086 10880 X 1083760 1270408 262042 310735 1345802 1581143 1432888 1592023 205103 30238 0 X 0 1 X 1 0 X 340077 335115 334084 235930 379326 1624532 376967 19209 484545 880721 717044 335115 353293 235930 863871 2505253 0 0 0 2505253 5748 8272 4163 13057 67413 98653 5748 8272 4163 13057 67413 98653 722792 343387 357456 248987 931284 2603906 0.96210 0.98220 0.03790 0.01780 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 EXCHANGE TRADED FUNDS 261859 F MONEY MARKET FUNDS 175467 F FIXED INCOME SECURITIES 766283 F 1203609 1157350 30238 30238 1127112 651 651 1127763 922009 0 922009 651 651 922660 PART XI, LINE 4B - OTHER ADJUSTMENTS: INVESTMENT EXPENSES 358. RETURN GRANTS FROM PRIOR YEAR 293. PART XII, LINE 4B - OTHER ADJUSTMENTS: INVESTMENT EXPENSES 358. RETURN GRANTS FROM PRIOR YEAR 293. CIFC 112050 112050 CHARGE WALK 45035 45035 8 32561 32561 189646 189646 189646 1 RESEARCH FOUNDATION FOR SUNY BROCKPORT 350 NEW CAMPUS DRIVE BROCKPORT NY 14420 161514621 6553 0 RESEARCH GRANT EDUCATION SCHOLARSHIPS 9 23240 0 FMV SCHOLARSHIPS ARE PROVIDED TO SIBLINGS OF INDIVIDUALS WITH CHARGE WHO WANT TO ATTEND POST HIGH SCHOOL EDUCATION SUCH AS TRADE SCHOOL, COMMUNITY COLLEGE, OR UNIVERSITY. EWRAP PROGRAM 14 18926 0 FMV THE ETHAN WOLFE RECREATIONAL ASSISTANCE PROGRAM (EWRAP) PROVIDES INDIVIDUALS WITH CHARGE SYNDROME THE OPPORTUNITY TO PARTICIPATE IN RECREATIONAL ACTIVITIES OR PURCHASE RECREATIONAL EQUIPMENT. EWRAP COVERS ADAPTIVE RECREATIONAL EQUIPMENT, ADAPTIVE SPORTING ACTIVITIES/ TEAMS, SPECIALIZED CAMPS, AND SPECIAL RECREATIONAL PROGRAMS. THIS PROGRAM IS NEED-BASED AND FUNDED THROUGH A GENEROUS GIFT FROM THE WOLFE FAMILY AND FRIENDS. FAMILY ASSISTANCE 44 15226 0 FMV THE CHARGE SYNDROME FOUNDATION FAMILY ASSISTANCE PROGRAM (FAP) WAS CREATED IN THE SPRING OF 2020 IN RESPONSE TO INCREASED NEEDS OF FAMILIES RELATED TO THE COVID-19 PANDEMIC. SINCE ITS INCEPTION, THE FOUNDATION HAS SUPPORTED OVER 100 FAMILIES ACROSS THE UNITED STATES. THE FOUNDATION EXPANDED THE PROGRAM IN 2021 TO INCLUDE SUPPORTING FAMILIES OF INDIVIDUALS WITH CHARGE WHO NEED TO RECEIVE MEDICAL CARE WHICH REQUIRES TRAVEL OUT OF STATE/LONG DISTANCE. THE PROGRAM ALSO PROVIDES A WELCOME PACKAGE TO FAMILIES WHO HAVE RECENTLY HAD A FAMILY MEMBER DIAGNOSED WITH CHARGE. CONFERENCE REGISTRATION 72 0 27169 FMV THE NORBURY SCHOLARSHIP AWARDS FREE CONFERENCE REGISTRATION TO FIRST TIME ATTENDEES. THE BLUESTONE SCHOLARSHIP AWARDS FREE CONFERENCE REGISTRATION TO REPEAT ATTENDEES. FORM 990, PART VI, SECTION B, LINE 11B THE BOARD IS PROVIDED A COPY OF FORM 990 FOR REVIEW BEFORE IT IS FILED. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS, POLICIES, AND FINANCIAL STATEMENTS ARE PROVIDED BY WRITTEN REQUEST. FORM 990, PART VII CONTACT ADDRESSES FOR OFFICERS, DIRECTORS, ETC DAVID WOLFE - 3021 CYPRUS CT, BUFFALO GROVE, IL 60089. NEAL STANGER - 45 LINCOLN AVENUE, HASTINGS ON HUDSON, NY 10706. JOANNE LENT - 33 EDITH AVENUE, METUCHEN, NJ 08840. AMRIT MEHTA - 1475 CLUB DR, BLOOMFIELD HILLS, MI 48302. BEN DAIGLE - 3 ARROWWOOD DRIVE, CROMWELL, CT 06461. MINNIE LEE LAMBERT - 1910 EARLE ROAD, ANDREWS, SC 29510. PENNI ECHOLS - 4215 SHARON LANE CIRCLE, LAS VEGAS, NV 89129. LISA CUNNINGHAM - PO BOX 504, GIRARD, KS 66743. LILY SLAVIN - 3508 STONE GATE BLVD, ELKTON, MO 21921.