2024-05-14T08:16:45-04:00 2023-12-31 FierceCG LLC 5675 Morning Creek Circle Atlanta GA 30349 990 2023-01-01 474570748 Myositis Support and Understanding Association Inc MYOS 9125 N Old State Road Lincoln DE 19960 Shirley Schnieders Treasurer 5639207124 2024-04-08 false Shirley Schnieders XXX-XX-XXXX Jennifer Muchison P01711149 6786624997 X 2023 2023-04-26 12:10:37Z Lynn Wilson 1314 Spring Cress Ln Seabrook TX 77586 494568 false X understandingmyositis.org X DE The mission of Myositis Support and Understanding Association, Inc is to improve the lives of and empower those fighting myositis through education, support, awareness, advocacy, patient financial assistance and access to research. 5 5 0 0 0 438178 485416 5790 9000 0 0 176 152 444144 494568 176513 65362 0 0 0 0 0 17031 303101 364734 479614 430096 -35470 64472 111437 244267 0 68358 111437 175909 X The mission of Myositis Support and Understanding Association Inc is to improve the lives of and empower those fighting myositis through education, support, awareness, advocacy, patient financial assistance and access to research. false false 147609 138897 SUPPORT PROGRAM - The From the Heart Support program offers peer-to-peer support groups live via Zoom, Clubhouse and six different online support groups. Our support program connect patients, care partners, and family members who are impacted by Myositis to learn more about treating myositis. In 2023 we provided live support to over 5,000 members using Zoom and clubhouse, and supported over 10,000 members through the other online support groups. 104908 104450 72781 10351 2432 1000 Scholarship Award 2432 1000 327730 true true false false false false false false false false false false false false false false false false false false false false false false true false false false true false false false false false false false false false false false false true false false false false false false false false false true 5 0 false 0 false false false false false false false false false false false false false false false false false false false false false false false false false false X 5 5 false false false false false false false true true true false false true true true true true true false false false false DE X Shirley Schneiders 5639207124 23659 179th Ave Manchester IA 52057 X Lynn Wilson President 40 X X 0 0 0 Benita Moyers Vice President and Secretary 7 X X 0 0 0 Shirley Schneiders Treasurer 7 X X 0 0 0 Lauren Landman Board Member 2 X X 0 0 0 Mauel Lubinus Chief Science Officer 30 X X 0 0 0 0 0 0 false false false 60404 425012 286838 485416 9000 9000 9000 0 0 0 0 0 0 0 0 0 152 152 152 494568 9152 0 0 65362 65362 307314 238064 58371 10879 8325 8325 528 317 211 18117 10130 3799 4188 26 26 3951 231 3720 9668 2871 6797 0 1238 1238 Staff Training/Development 6750 6750 Merchant Account Fees 2146 41 405 1699 Memberships and Subscriptions 1693 1693 Printing and Photocopying 1251 205 1047 3727 2500 1199 28 430096 327729 85336 17031 108621 227657 1578 15345 1238 1265 0 0 111437 244267 1778 66580 0 68358 98796 104764 111437 175909 111437 244267 64472 X false false false false false X 0 100076 115106 163384 438178 485416 1302160 5790 9000 14790 100076 115106 163384 443968 494416 1316950 1316950 176 152 328 0 0 0 176 152 328 100076 115106 163384 444144 494568 1317278 1.00000 0.00020 0.00020 X 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false 0 0 0 Facebook Fundraiser 22199 22199 0 Empower Walk 27747 27747 0 26 9199 1 5490 5490 0 55436 55436 0 0 0 26 0 0 9199 9225 0 false false false false false false false false false false Financial Assistance, Scholarships and Other Awards 36 65362 FMV Volunteer Services 286838 FMV false false false Form 990 Part III Line 4d Scholarship Awards Form 990 Part VI Line 11b The Treasurer of the organization is responsible for reviewing the 990 form with the President and/or Board Members. Form 990 Part VI Line 19 The organization makes its governing documents, conflict of interest policy and financial statements available to the public on its website. Form 990 Part VI Line 12c The organization regularly and consistently monitor and enforce compliance with the policy by having all officers acknowledge, disclose if any, and sign the MSU BOD Conflict of Interest Policy annually which is kept on file.