2024-05-08T18:49:37-07:00 2023-12-31 990EZ 2023-01-01 881224505 CURE CDKL5 FOUNDATION CURE 3105455400 848 MANHATTAN BEACH BLVD MANHATTAN BEACH CA 90266 JESSICA LINDERMAN President & CEO 2024-05-08 JESSICA LINDERMAN 999009999 true 2 AAL1 IAL1 FAL1 2023 2023-04-26 12:10:37Z X X N/A X X 5078 5078 0 0 0 0 5078 1835 1835 3243 1654 4897 1654 4897 1654 4897 1654 4897 Cure CDKL5 Foundation, established in Spring 2022, is a nonprofit organization devoted to funding the research and development of treatments and cures for CDKL5 deficiency disorder, a rare form of epilepsy caused by a mutation in the CDKL5 gene. Living with this rare disorder causes a very broad range of clinical symptoms and severity between individuals with the hallmarks being early-onset intractable seizures and neurodevelopmental delays that impact cognitive, motor, speech, and visual functional development. Our mission is to fundraise for CDKL5 specific scientific and clinical research while offering affected CDKL5 families resources to make their individual voyages for a cure more streamlined. 2023 was the first full year the foundation was in operations, 1835 1835 JESSICA LINDERMAN President & CEO 0 0 false false false false false false false 0 0 0 false 0 0 false JESSICA LINDERMAN 848 MANHATTAN BEACH BLVD MANHATTAN BEACH CA 90266 3105455400 false false false false false false false false false false false NONE NONE true X 6138 5078 11216 0 0 0 0 6138 5078 11216 0 0 11216 0 0 0 0 6138 5078 11216 X 0.00000 0.00000