2024-04-05T17:29:07-05:00 2023-12-31 760269860 Blazek & Vetterling 2900 Weslayan Suite 200 Houston TX 77027 990 2023-01-01 383850833 IBC Network Foundation IBCN 2817975578 PO Box 908 Sealy TX 77474 Terry Arnold Chair 2817975578 2024-04-05 1 Terry Arnold 999009999 0 Barbara Murphy P01386215 7134395739 2024-04-05 2 AAL1 IAL1 2023 2023-04-26 12:10:37Z Terry Arnold PO Box 908 Sealy TX 77474 224472 0 X www.theibcnetwork.org X 2011 TX The IBC Network Foundation funds Inflamatory Breast Cancer research and gives proactive education. 4 4 0 40 0 0 212543 224472 0 0 0 0 0 0 212543 224472 140000 86227 0 0 0 0 0 0 2448 85874 105380 225874 191607 -13331 32865 58392 91257 0 0 58392 91257 X The IBC Network Foundation funds research for Inflammatory Breast Cancer and provides proactive education to the general public and the medical community regarding Inflammatory Breast Cancer. 0 0 171243 86227 The IBC Network Foundation is intensely focused on funding high-quality research on inflammatory and triple-negative breast cancer. Inflammatory breast cancer is an orphaned form of breast cancer due to its rareness and high fatality rate. Typically striking younger women, at a late-stage presentation, 30% of the women are also diagnosed with triple negative. This combination is highly difficult to treat successfully. In 2023, IBC funded one ongoing research project for $70,452 at MD Anderson in Austin, Texas. See Schedule O for continuation.This year, we offered a matching grant of $5,000 to MD Anderson Cancer Center for their Boot Walk for the IBC program for their institution's fundraising challenge. Additionally, we offered a matching grant of $3,000 to Dana Farber for their Jimmy Walk to support their program fundraising efforts for research. In 2023, IBC funded $78,452 for research.We resumed physical meetings and hosted meetups all over the US. We have continued to host Zoom calls twice a month to help patients living with IBC better connect to the best possible research and care options. Additionally, we have continued our planned "Ultimate Meets program. In the fall of 2023, we hosted an Ultimate Meetup in Houston, Texas, a weekend-long event. The event was well received. Over 45 guests attended, and we started the event with a lab tour of the Morgan Welch Inflammatory Breast Cancer research program and lab on Friday afternoon. Over the weekend, we had a full program of physicians, researchers, caregivers, and patient testimonials until the wrap-up on Sunday morning. We have continued a Podcast called "Talk IBC," interviewing patients, researchers, medical personnel, counselors, and others who will be able to give information and education to those interested in our mission.We are especially proud to have graduated 20 more advocates via the course for the IBC Learning Academy. This course was written in cooperation with MD Anderson's Morgan Welch Clinic for Inflammatory Breast Cancer. Our goal is to reach a diverse target audience of patients and professionals passionate about improving the lives of those affected by IBC. Trained advocates will be empowered to promote the unique needs of IBC patients by improving access to specialty care, increasing education around clinical trials, and participating in lobbying. Advocates may also serve on decision-making boards of local, state, and national organizations, committees, and Institutional Review Boards. We have had over 70 people complete the course. One outstanding event of 2023 was the opportunity for The IBC Network Foundation Founder, Terry L Arnold, to serve on the panel discussion when IBC was presented for the first time on the main stage of the San Antonio Breast Cancer Symposium. The panel was added per the request of the medical community, the first time in the conference's 45-year history. 171243 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 5 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 X 4 4 0 0 0 0 0 0 0 1 1 0 0 1 0 0 0 0 0 0 X X Terry Arnold 2817975578 1014 FM 2187 Sealy TX 77474 X Terry Arnold Chair 40.00 0.00 X X 0 0 0 Laurie Main Treasurer 2.00 0.00 X X 0 0 0 Virginia Finn-Lenhardt Secretary 2.00 0.00 X X 0 0 0 Paticia Vickery Director 2.00 0.00 X 0 0 0 0 0 0 0 0 0 0 0 224472 224472 224472 0 0 0 86227 86227 2687 2687 2358 1179 1179 4896 2448 2448 3230 1184 2046 40591 31132 9459 107 107 19658 19658 1528 1528 Event expenses 29415 29415 Dues and subscriptions 910 910 191607 171243 17916 2448 58392 91257 58392 91257 0 0 X 0 0 0 0 58392 91257 58392 91257 58392 91257 32865 0 X 0 0 0 X 346643 130302 225370 212543 224472 1139330 346643 130302 225370 212543 224472 1139330 38453 1100877 1139330 0.96620 1.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 University of Texas MD Anderson Cancer Center 204 E Dean Keeton St Stop C2200 Austin TX 78712 746001118 501(c)(3) 70452 0 Research support MD Anderson Cancer Center 1515 Holcombe Drive Houston TX 77030 746001118 501(c)(3) 10000 0 Research support 2 Part I, Line 2: The IBC board members maintain close contact with grant recipients to monitor research progress and clinical outcomes. Form 990, Part VI, Section B, line 11b The board reviews Form 990, prepared by the CPA, before filing. Form 990, Part VI, Section C, line 19 No other documents are available to the public.