2024-03-29T14:44:53-07:00 2023-12-31 990EZ 2023-01-01 920449829 PRINCESS HAILEY'S HOPE FOUNDATION PRIN 9193571911 17 Cypress Grove Lane SW Huntsville AL 35824 Delia Acevedo President 9193571911 2024-03-28 Delia Acevedo 999009999 1 0 11 0 AAL2 2023 2023-04-26 12:10:37Z X X https://princesshaileyshope.org X X 38631 X 36554 0 0 0 0 0 0 0 2077 658 1419 0 0 0 0 37973 0 0 0 0 0 57 12682 12739 25234 3754 0 28988 3754 28988 0 0 0 0 3754 28988 0 0 3754 28988 The primary purpose of Princess Hailey's Hope Foundation is (1) to raise funds to support pediatric brain cancer research, with an emphasis on Diffuse Intrinsic Pontine Glioma (DIPG), (2) to raise funds to support children fighting cancer, with an emphasis on those who have been diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG), and (3) to raise awareness of childhood cancer, which is the leading cause of death by disease among children. 1. HUGS FROM HAILEY PROGRAM: We sent 64 care packages to children battling DIPG/DMG brain cancer, delivered Starbucks gift cards to 30 childhood cancer patients in February 2023 at St. Jude Affiliate Clinic-Huntsville, packaged and delivered 18 Christmas stockings with holiday-themed crafts and toys to childhood cancer patients at St. Jude Affiliate Clinic-Huntsville in December 2023, and delivered 60 toys for pediatric hospice patients and their siblings undergoing grief counseling at The Caring House-Huntsville Hospital for their holiday toy drive. Total Number of Children Benefitted: 172 0 6665 2. HOPE FROM HAILEY PROGRAM: Our organization contributed $5,000 to the DIPG/DMG Research Funding Alliance to help fund the National DMG Brain Tumor Board, which provides second opinions to patient families and their treating oncologists. This is a free and confidential service to patient families. The National DIPG/DMG Brain Tumor Board has consulted on approximately 180 cases, but the total number of people benefitted cannot be known since the benefit extends beyond the individual patients being discussed in tumor board meetings. 0 5000 AWARENESS: A total of $674.50 was spent on DIPG awareness expenses during FY2023. These costs included Foundation wristbands to distribute to members of our community ($120.49), a tablecloth with the Foundation's logo for community awareness and fundraising events ($41.63), Foundation brochures ($205), our annual website and domain fees ($191.52), and a DIPG Awareness tree that we purchased and decorated with the names of the DIPG/DMG warriors that we have served for the City of Madison ($115.86). The total number of persons who benefitted is unknown. 0 675 12340 Delia N Acevedo Director & President 40 0 0 0 Christine Carpino Director & Secretary 5 0 0 0 Carlos Acevedo Director & Treasurer 10 0 0 0 Joseph Limberg Director 5 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 AL Delia Acevedo 17 Cypress Grove Lane SW Huntsville AL 35824 9193571911 0 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 8675 36554 45229 0 2077 2077 0 0 0 0 0 0 0 0 0 0 0 0 8675 38631 47306 0 0 0 0 0 0 0 0 0 0 0 0 47306 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 8675 38631 47306 X Form 990-EZ, Part I, Line 16 (1) HUGS FROM HAILEY PROGRAM EXPENSES ($6665.23): Our Hugs from Hailey program was our largest, as measured by expenses, in FY2023. This program seeks to brighten the days of children who have been diagnosed with cancer. We send personalized care packages, called Hugs, to children who are battling DIPG/DMG to encourage them to keep fighting. This year, we sent 64 Hugs packages to children fighting this form of brain cancer. In addition to our Hugs boxes, we also provide treats and toys to childhood cancer patients at our local St. Jude Affiliate Clinic in Huntsville, AL, and to The Caring House at Huntsville Hospital, which provides play therapy and counseling services to pediatric hospice patients and their siblings. In February, we delivered 30 Starbucks gift cards to St. Jude Affiliate Clinic patients, as well as art kits and games to help occupy their time during clinic appointments. In December, we delivered 18 Christmas stockings to the St. Jude Affiliate Clinic that were filled with holiday-themed crafts and toys and another 60 toys to The Caring House for use in their hospice and grief therapy programs. The total number of children who benefitted from the Hugs from Hailey program in FY2023 is 172. (2) HOPE FROM HAILEY PROGRAM EXPENSES ($5000): Our second largest expense in FY2023 was our Hope from Hailey program. As part of this program, we contributed $5,000 to the DIPG/DMG Research Funding Alliance (DDRFA) and partnered with other foundations to fund the National DIPG/DMG Tumor Board. This tumor board offers referring oncologists advice from a panel of DIPG experts on the best treatment paths for their patients at critical junctures in their cancer battles. This advice is a free and confidential resource for patient families in the United States. The members of the tumor board meet twice per month to discuss referred patient cases and provide treatment and clinical trial recommendations to referring oncologists. Not only do individual patients benefit, but the discussions also serve as a natural learning loop for tumor board members and the oncologists who refer patients. Participating oncologists have the opportunity to learn from their peers, share what they have learned with other neuro-oncologists and practitioners at their home institutions, and improve patient care in real-time. The National Tumor Board has consulted on approximately 180 cases. However, the total number of persons benefitting cannot be known since the benefit extends beyond the individual patients being discussed in tumor board meetings. **Princess Hailey's Hope Foundation also funds DIPG research as part of our Hope from Hailey program through our partnership with DDRFA; however, our research contribution for the Spring 2023 grant cycle was prepaid in FY2022 and funding commitments for the Winter 2023 cycle were not finalized by December 31, 2023. (3) DIPG AWARENESS EXPENSES ($674.50): This includes the costs of Foundation wristbands ($120.49); a tablecloth with the Foundation logo for community events ($41.63); Foundation brochures ($205); annual website and domain fees ($191.52); and a City of Madison DIPG Awareness tree that was purchased and decorated with the names of the DIPG/DMG warriors that Princess Hailey's Hope Foundation has served thus far ($115.86). (4) OPERATING EXPENSES ($342.03): This category includes the costs of Venmo donation fees ($26.42); bank fees ($31.50); office supplies ($10.11); the Alabama Registered Agent fee ($249); and the annual Alabama Charitable Organization Registration fee ($25).