2024-11-15T09:43:43-06:00 2023-12-31 871353108 EISNER ADVISORY GROUP LLC 111 WOOD AVENUE SOUTH ISELIN NJ 088302700 990 2023-01-01 270341021 THE FIBROLAMELLAR CANCER FOUNDATION FIBR 2033407800 20 HORSENECK LANE 2ND FLOOR GREENWICH CT 06830 KURT LOSERT CEO 2033407800 2024-11-14 1 1 BARBARA TAIBI P00179526 7322437000 2023 2024-10-15 13:58:12Z KURT LOSERT 14 WHITE OAK ROAD WELLESLEY MA 02481 3221231 0 X WWW.FIBROFOUNDATION.ORG X 2009 DE FIBROLAMELLAR CANCER FOUNDATION,(THE "FOUNDATION") WAS ESTABLISHED TO RAISE AWARENESS AND RESEARCH FUNDS FOR FIBROLAMELLAR CARCINOMA, A RARE FORM OF LIVER CANCER THAT IS PRIMARILY SEEN IN TEENS AND YOUNG ADULTS. CURRENTLY, THERE ARE NO VIABLE TREATMENT OPTIONS OTHER THAN LIVER RESECTION SURGERY. OUR MISSION IS TO FIND A CURE AND RELIABLE TREATMENT OPTIONS FOR THOSE DIAGNOSED WITH THIS RARE DISEASE AS WELL AS ENHANCE COMMUNICATIONS AMONG HEALTHCARE PROFESSIONALS AND PATIENTS. 12 10 5 50 0 0 6073580 2241100 0 0 3055 719035 0 0 6076635 2960135 1423547 4235649 0 0 583039 751053 0 0 14012 557102 498338 2563688 5485040 3512947 -2524905 10981422 10499605 1707920 4097846 9273502 6401759 X FIBROLAMELLAR CANCER FOUNDATION,(THE "FOUNDATION") WAS ESTABLISHED TO RAISE AWARENESS AND RESEARCH FUNDS FOR FIBROLAMELLAR CARCINOMA, A RARE FORM OF LIVER CANCER THAT IS PRIMARILY SEEN IN TEENS AND YOUNG ADULTS. CURRENTLY, THERE ARE NO VIABLE TREATMENT OPTIONS OTHER THAN LIVER RESECTION SURGERY. OUR MISSION IS TO FIND A CURE AND RELIABLE TREATMENT OPTIONS FOR THOSE DIAGNOSED WITH THIS RARE DISEASE AS WELL AS ENHANCE COMMUNICATIONS AMONG HEALTHCARE PROFESSIONALS AND PATIENTS. 0 0 5033613 4235649 GRANTS TO RESEARCH ORGANIZATIONS FOR FIBROLAMELLAR CARCINOMA STUDIES. 5033613 1 1 0 0 0 0 0 0 0 0 1 1 0 0 0 1 1 0 0 0 1 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 6 0 1 5 1 0 0 0 0 0 1 1 0 0 0 0 X 12 10 1 0 0 0 1 1 1 1 1 0 0 1 1 1 1 1 1 1 1 0 CT X X KURT LOSERT 2033407800 14 WHITE OAK ROAD WELLESLEY MA 02481 MARNA O DAVIS CO-CHAIRPERSON 25.00 X X 0 0 0 CHARLES W BEERMANN DIRECTOR 1.00 X 0 0 0 DEREK GILCHRIST DIRECTOR, SECRETARY 2.00 X X 0 0 0 ANNE ADLER DIRECTOR 25.00 X 0 0 0 JOHN CRAIG DIRECTOR 1.00 X 0 0 0 TAL FRIEDMAN DIRECTOR 1.00 X 0 0 0 CHARLES A DAVIS CO-CHAIRPERSON 1.00 X X 0 0 0 LESLIE GRAVES TREASURER 1.00 X X 0 0 0 CRAIG MARTIN DIRECTOR 1.00 X 0 0 0 KURT LOSERT CEO 40.00 X X 273188 0 6793 DAVID WERMUTH DIRECTOR 1.00 X 0 0 0 GUY LEVY DIRECTOR 1.00 X 0 0 0 DR MARK FURTH SCIENTIFIC DIRECTOR 40.00 X 159650 0 6777 JOHN HOPPER DIRECTOR(RETIRED 05/23) 1.00 X 88718 0 3711 521556 0 17281 2 1 1 0 0 999714 1241386 13453 2241100 138665 138665 580370 0 580370 580370 580370 261096 999714 261096 0 2960135 0 0 719035 4078149 4078149 157500 157500 273188 273188 364973 355548 9425 15977 8770 7207 49118 9169 39949 47797 28380 19417 158895 131144 27751 14012 14012 4997 4997 6009 6009 653 653 14440 14440 EVENTS 191286 191286 RESEARCH 62151 62151 MISC EXPENSES 37500 11516 25984 WEBSITE 8395 8395 5485040 5033613 437415 14012 4930500 7851796 80900 25000 0 15456 3917 3917 653 0 5969369 2607353 10981422 10499605 148677 298384 1559243 3799462 1707920 4097846 X 9273502 6401759 0 9273502 6401759 10981422 10499605 -2524905 -346838 0 X X 0 1 X 1 0 X 1802375 1838453 4039921 6073580 2241100 15995429 1802375 1838453 4039921 6073580 2241100 15995429 6929918 9065511 3185 2942 3726 3055 138665 151573 16147002 0.56140 0.54940 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 3917 3917 0 0 INVESTMENTS 2607353 F 2607353 X 2676407 -346838 63110 -283728 2960135 0 2960135 5548150 63110 63110 5485040 0 5485040 PART X, LINE 2: ASC 740-10-05-6 THE INTERNAL REVENUE SERVICE ("IRS") HAS DETERMINED THAT THE FOUNDATION QUALIFIES AS A TAX-EXEMPT ORGANIZATION UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE ("IRC") AND IS EXEMPT FROM TAX ON RELATED INCOME PURSUANT TO SECTION 501(A) OF THE IRC. THE FOUNDATION IS CLASSIFIED AS A PUBLIC CHARITY. ACCORDINGLY, NO PROVISION FOR INCOME TAXES HAS BEEN RECORDED IN THE ACCOMPANYING FINANCIAL STATEMENTS. MANAGEMENT HAS ANALYZED THE TAX POSITIONS TAKEN BY THE FOUNDATION, AND HAS CONCLUDED AS OF DECEMBER 31, 2023, THERE ARE NO UNCERTAIN POSITIONS TAKEN OR EXPECTED TO BE TAKEN THAT WOULD REQUIRE THE RECOGNITION OF A LIABILITY OR DISCLOSURE IN THE FINANCIAL STATEMENTS. THE FOUNDATION RECOGNIZES ACCRUED INTEREST AND PENALTIES ASSOCIATED WITH UNCERTAIN TAX PROVISIONS, IF ANY. THERE WERE NO INCOME TAX-RELATED INTEREST AND PENALTIES RECORDED FOR THE YEAR ENDED DECEMBER 31, 2023. 1 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM 0 0 PROGRAM SERVICES SCIENTIFIC RESEARCH 157500 0 0 0 0 0 0 157500 0 157500 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM SCIENTIFIC RESEARCH 157500 TRANSFER 0 FMV 1 0 0 0 0 0 0 PART I, LINE 2: THE ORGANIZATION HAS CONTACT WITH INDIVIDUALS FROM THE FOREIGN ORGANIZATIONS AND RECEIVES WRITTEN UPDATES. GOLF TOURNAMENT 1260810 999714 261096 261096 1260810 999714 261096 261096 261096 0 1 UNIVERSITY OF WISCONSIN CSC K41748 600 HIGHLAND AVENUE MADISON MI 53792 396006492 501(C)(3) 25000 0 SCIENTIFIC RESEARCH CORNELL UNIVERSITY COLLEGE OF VETERINARY MEDICINE S3 005 SCHURMAN HALL ITHACA NY 148536401 150532082 501(C)(3) 128554 0 SCIENTIFIC RESEARCH JOHNS HOPKINS 1650 ORLEAN ST CRBI 4M08 BALTIMORE MD 21287 520595110 501(C)(3) 200000 0 SCIENTIFIC RESEARCH UNIVERSITY OF WASHINGTON 1959 NE PACIFIC STREET BOX 357750 SEATTLE WA 98195 916001537 501(C)(3) 540000 0 SCIENTIFIC RESEARCH ST JUDE CHILDREN'S RESEARCH HOSPITAL 262 DANNY THOMAS PLACE MEPHIS TN 38105 620646012 501(C)(3) 200000 0 SCIENTIFIC RESEARCH THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO 1855 FOLSOM STREET BOX 0812 SAN FRANCISCO CA 94143 946036493 501(C)(3) 49433 0 SCIENTIFIC RESEARCH FRED HUTCHINSON CANCER CENTER 1100 FAIRVIEW AVE N SEATTLE WA 98109 911935159 501(C)(3) 125000 0 SCIENTIFIC RESEARCH STANFORD UNIVERSITY 485 BROADWAY MAIL CODE 8838 REDWOOD CITY CA 94063 941156365 501(C)(3) 49500 0 SCIENTIFIC RESEARCH DRACEN PHARMACEUTICALS INC 9276 SCANTON ROAD 500 SAN DIEGO CA 92121 812597193 2404179 0 SCIENTIFIC RESEARCH DANA-FARBER CANCER INSTITUTE 450 BROOKLINE AVE 10BP BOSTON MA 02215 042263040 501(C)(3) 34374 0 SCIENTIFIC RESEARCH CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNETT AVENUE CINCINNATI OH 45229 310833936 501(C)(3) 317914 0 SCIENTIFIC RESEARCH 10 1 PART I, LINE 2: THE FOUNDATION MAKES GRANTS TO 501(C)(3) RESEARCH INSTITUTIONS. THE ACCEPTANCE OF THE GRANTS BY THE RESEARCH ORGANIZATIONS IS CONTINGENT UPON THE FOUNDATION'S RECEIPT OF PERIOD UPDATE REPORTS AS TO PROGRESS AND EXPENDITURES. X X X X X 0 0 0 0 0 0 0 0 0 KURT LOSERT CEO 273188 0 0 0 0 0 5303 0 1490 0 279981 0 0 0 DR MARK FURTH SCIENTIFIC DIRECTOR 159650 0 0 0 0 0 4871 0 1906 0 166427 0 0 0 JOHN HOPPER DIRECTOR(RETIRED 05/23) 88718 0 0 0 0 0 2693 0 1018 0 92429 0 0 0 SCHEDULE J PART II LINE 1(D) THE NONTAXABLE BENEFITS INCLUDE MEDICAL AND DENTAL BENEFITS X 2 13453 FMV 0 1 0 FORM 990, PART VI, SECTION A, LINE 2 THE DIRECTORS MARNA DAVIS AND CHARLES DAVIS ARE SPOUSES. FORM 990, PART VI, SECTION A, LINE 6 THE ORGANIZATION HAS MEMBERS. FORM 990, PART VI, SECTION A, LINE 7A MEMBERS HAVE THE SOLE AUTHORITY TO ELECT OR REMOVE DIRECTORS, AND ELECT NEW MEMBERS. FORM 990, PART VI, SECTION A, LINE 7B MEMBER APPROVAL IS ALSO REQUIRED FOR ANY ADDITIONS, ALTERATIONS, OR REPEAL OF ANY OF THE CORPORATION'S BYLAWS. FORM 990, PART VI, SECTION B, LINE 11B THE BOARD WILL REVIEW THE FORM 990 PRIOR TO FILING AND A FULL COPY OF THE FINAL 990 WILL BE SENT TO THE BOARD PRIOR TO THE 990 BEING FILED WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C 1. NEW OFFICERS OR DIRECTORS ARE GIVEN A COPY OF THE POLICY. THE POLICY IS REVIEWED ANNUALLY WITH DIRECTORS AND/OR OFFICERS EMPOWERED TO ENTER INTO FINANCIAL TRANSACTIONS AT A DIRECTORS MEETING. 2. ALL MATERIAL FINANCIAL TRANSACTIONS, GRANTS, AND EXPENDITURES ARE REVIEWED AND APPROVED BY THE EXECUTIVE COMMITTEE AND/OR THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION B, LINE 15 ANNUALLY, THE COMPENSATION COMMITTEE DESIGNATED BY THE BOARD OF DIRECTORS ASSESSES THE PERFORMANCE OF THE CEO AND OTHER OFFICERS AND KEY EMPLOYEES. THE COMPENSATION COMMITTEE MAKES A RECOMMENDATION TO THE FULL BOARD FOR THE COMPENSATION OF EACH ASSESSED INDIVIDUAL, BASED ON A REVIEW OF COMPENSATION LEVELS AND BENEFITS FOR SIMILARLY QUALIFIED INDIVIDUALS IN COMPARABLE POSITIONS AT SIMILAR ORGANIZATIONS. FORM 990, PART VI, SECTION C, LINE 19 THE FOUNDATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST AND AT MANAGEMENT'S DISCRETION.