2024-10-16T12:21:57-00:00 2023-12-31 990 2023-01-01 516528048 Dana's Angels Research Trust DANA 2038612063 15 East Putnam Avenue PMB 117 Greenwich CT 06830 Philip D Marella Trustee 2038612063 2024-10-16 false true 2023 2024-10-15 13:58:12Z Philip D Marella 15 Desiree Dr Greenwich CT 06830 215400 false X www.DanasAngels.Org X 2002 CT Danas Angels Research Trusts mission is furthering medical research, medical education, or medical or hospital care for the treatment of Niemann-Pick type C disease or similar genetic diseases. 5 5 0 10 0 226915 180771 0 2847 27079 -2114 -4150 227648 203700 194511 180078 0 0 0 7632 18747 27452 213258 207530 14390 -3830 848668 844838 0 848668 844838 X Danas Angels Research Trusts mission is furthering medical research, medical education, or medical or hospital care for the treatment of Niemann-Pick type C disease or similar genetic diseases. false false 14677 14677 Grant to Cristin Davidson, PhD for work at the NIH related to gene therapy for NPC as well as overall coordination of SOAR-NPC drug development collaboration efforts. 25000 25000 Grant to assist with NPC Cat lab resettling from UPenn to U-FLA and reinitiation of NPC studies at U-FLA 50375 50375 Grant for NPC research at the lab of Dr. Stephanie Cologna of University of Illinois-Chicago into a potential biomarker of NPC Calbindin D.and for partial salary of post-doc member of the lab. 106897 106897 196949 true true false false false false false false false false false false false false false false false false false false true true false false true false false true true false false false false false false false false false false false false false false false false false false true 0 0 true 0 true false false false false false false false false false false false false X 5 5 true false false false false false false true true false false true true true true false false false false false CT X X Philip Marella 2038612063 15 Desiree Dr Greenwich CT 06830 X Philip D Marella Trustee 030.00 X 0 0 0 Andrea M Marella Trustee 020.00 X 0 0 0 Norman Bryn Trustee 005.00 X 0 0 0 Maria Kessel Trustee 005.00 X 0 0 0 Christina Krauss Trustee 005.00 X 0 0 0 false false false 140583 40188 180771 27079 7550 140583 11700 -4150 203700 147901 147901 14677 14677 17500 17500 0 0 0 0 0 0 0 0 0 0 0 0 0 157 157 0 1439 1439 0 0 0 0 16871 16871 0 0 0 1081 1081 Printing/Copying 3797 37 3760 Bank Fees 95 95 Postage 280 280 CC/Platform Fees 140 140 3592 3592 207530 196949 2949 7632 5770 9110 842898 818228 17500 848668 844838 0 0 X 848668 844838 848668 844838 848668 844838 -3830 X false false false X 157057 192976 468013 226915 188322 1233283 157057 192976 468013 226915 188322 1233283 1233283 2726 1147 2847 27079 33799 1267082 0.97330 0.99090 X Part II Section B Line 10 is not applicable Part II Section C Line 17a is not applicable Part II Section C Line 17b is not applicable RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true Europe Including Iceland and Greenland Program Services Medical Research 17500 17500 17500 Europe Including Iceland and Greenland Medical Research 17500 Wire transfer 1 false false false false false false Part I Line 2 All grants are approved by the trustees of the organization. All recipients are required to keep detailed financial and research information as to the use of funds provided by the organization and performance under the grant which is consistent with the stated goals of the grant. Grant recipients are required to provide periodic reports as well as a final report stating the accomplishments of the project and a final accounting of the use of all funds. Charity Walk 148133 140583 7550 175 48 678 10799 148133 140583 7550 175 48 678 10799 11700 -4150 true University of Illinois - Chicago 28395 Network Place Chicago IL 60673 376000511 50375 Medical Research University of Florida Foundation PO Box 14425 Gainesville FL 32604 590974739 25000 Medical Research Yale University PO Box 2038 New Haven CT 06521 060646973 25000 Research Coordinator Funding Washington and Lee University 204 W Washington St Lexington VA 24450 540505977 19680 Medical Research Internships Fordham University 441 E Pordham Rd Bronx NY 10458 131740451 13240 Medical Research Internships Rush University Medical Center 1700 W Van Buren Chicago IL 60612 362174823 5200 Medical Research Nat'l Institutes of Health 6710B Rockledge Dr Bethesda MD 20892 520858115 5000 Medical Research Hide and Seek Foundation 6475 E Pacific Coast Hwy Long Beach CA 90803 954733266 4406 Medical Research 8 Medical Research 1 14677 Part I Line 2 All grants are approved by the trustees of the organization. All recipients are required to keep detailed financial and research information as to the use of funds provided by the organization and performance under the grant which is consistent with the stated goals of the grant. Grant recipients are required to provide periodic reports as well as a final report stating the accomplishments of the project and a final accounting of the use of all funds. Form 990, Part III, Line 4d Program Service Expenses 25,000, Grants and allocations 25,000, Revenue 0 Grant toward 2023 Adrabetadex EAP and IV Study Coordinator for NPC Patients at Yale New Haven Hospital Form 990, Part III, Line 4d Program Service Expenses 19,680, Grants and allocations 19,680, Revenue 0 Grant to Washington and Lee University for summer internships in 3 labs studying NPC. Form 990, Part III, Line 4d Program Service Expenses 13,240, Grants and allocations 13,240, Revenue 0 Grant to Fordham University for summer internships in 2 labs studying NPC. Form 990, Part III, Line 4d Program Service Expenses 5,000, Grants and allocations 5,000, Revenue 0 Grant for NPC research in the lab of Dr. Forbes Porter at the NIH. Form 990, Part III, Line 4d Program Service Expenses 17,500, Grants and allocations 17,500, Revenue 0 Efavirenz clinical trial in Spain funding Form 990, Part III, Line 4d Program Service Expenses 4,406, Grants and allocations 4,406, Revenue 0 Researcher provided to NIH through Hide and Seek Foundation Form 990, Part III, Line 4d Program Service Expenses 5,200, Grants and allocations 5,200, Revenue 0 Rush University NPC Research Fund for Enolase Biomarker Study Drs. Berry Kravis and Porter NIH Form 990, Part III, Line 4d Program Service Expenses 5,918, Grants and allocations 5,918, Revenue 0 Research related meetings, travel and lodging and other expenses Form 990, Part III, Line 4d Program Service Expenses 10,953, Grants and allocations 10,953, Revenue 0 SOAR-NPC Collaborative conference expenses Form 990, Part IV, Section A, Line 2 Yes, trustees Philip Marella and Andrea Marella are husband and wife. Form 990, Part VI, Section B, Line 11b Danas Angels Research Trust circulates a draft copy of its Form 990 and schedules for review and approval prior to filing. Form 990, Part VI, Section B, Line 12c Danas Angels Research Trust annually distributes a copy of its conflict of interest policy to trustees and key volunteers. Form 990, Part VI, Section C, Line 19 Danas Angels Research Trust makes its governing documents, conflict of interest policy and Form 990s available in downloadable form on its website and they are available upon request.