2024-05-14T11:51:27-07:00 2023-06-30 462979080 Allman & Associates Inc 9600 Great Hills Trail Suite 150W Austin TX 78759 990 2022-07-01 263223661 BEYOND BATTEN DISEASE FOUNDATION BEYO 5122752600 3305 STECK AVE AUSTIN TX 78757 MARY BETH KISER PRESIDENT/CEO 5122752600 2024-05-14 true MARY BETH KISER true Peter L Allman CPA P00648533 5125023077 2024-05-14 3 AAL1 IAL1 FAL1 2022 2023-04-26 12:10:37Z MARY BETH KISER 3305 STECK AVE STE 200 AUSTIN TX 78757 1071395 false X WWW.BEYONDBATTEN.ORG X 2008 TX TO ERADICATE JUVENILE BATTEN DISEASE BY RAISING AWARENESS AND FUNDS FOR RESEARCH TO FIND A TREATMENT OR CURE. 7 7 0 400 667104 666104 825881 283680 0 5 361397 393929 383559 1219815 1028636 25000 0 0 0 0 37534 1195690 1036148 1220690 1036148 -875 -7512 3581583 3231365 220016 219351 3361567 3012014 TO ERADICATE JUVENILE BATTEN DISEASE BY RAISING AWARENESS AND FUNDS FOR RESEARCH TO FIND A TREATMENT OR CURE. false false 688448 0 0 TO ACCELERATE THE DISCOVERY AND DEVELOPMENT OF MEDICINES TO PREVENT, TREAT AND CURE JUVENILE BATTEN DISEASE. THIS IS DONE THROUGH GRANTING FUNDS AND CONTRACTING SERVICES WITH ACADEMIC INSTITUTIONS, BIOTECHNOLOGY COMPANIES, AND OTHER ORGANIZATIONS WITH THE CAPACITY TO ASSIST IN ACHIEVING OUR GOALS. THE FOUNDATION ALSO SPEARHEADS THE DEVELOPMENT OF THINK-TANK CONFERENCES AND UNIQUE PARTNERSHIPS TO DRIVE JUVENILE BATTEN DISEASE RESEARCH. 688448 true true false false false false false false false false false true false false false false true false false false false false false false true false false false false false false false false false false false false false false false false false false false false false false true 3 0 true 0 true true true false false false false true true false false false false false false X 7 7 false false false false false false false true true false false true true true true true true true true false X STRATEGIC ASSOCIATION MANAGEMENT 5122752600 3305 STECK AVE STE 200 AUSTIN TX 78757 X T CRAIG BENSON BOARD CHAIR 20.00 X X 0 0 0 MARY BETH KISER PRESIDENT/CEO AND SECRETARY 40.00 X 0 0 0 JEFF HUNT DIRECTOR 4.00 X 0 0 0 SABRINA BROWN DIRECTOR 4.00 X 0 0 0 WAYNE HERNDON DIRECTOR 4.00 X 0 0 0 WILL MURPHY DIRECTOR 4.00 X 0 0 0 CAROLINE GOODNER DIRECTOR 4.00 X 0 0 0 STEVEN SILBER MD DIRECTOR 4.00 X 0 0 0 DANIELLE KERKOVICH SCIENTIFIC OFFICER 40.00 X 7800 0 0 7800 0 0 false false false STRATEGIC ASSOCIATION MANAGEMENT 3305 STECK AVE STE 200 AUSTIN TX 78757 MANAGEMENT 210000 1 283680 283680 36334 0 36334 325063 325063 325063 0 325063 0 84277 42759 41518 0 41518 NET INCOME (LOSS) FROM LLC INTERESTS 812210 342041 0 342041 0 342041 1028636 0 667104 77852 218750 103318 108450 6982 15427 0 15427 0 454225 451195 0 3030 60000 60000 0 0 31988 878 11571 19539 3952 0 450 3502 40337 40337 0 0 37424 32720 223 4481 848 0 848 0 INCOME TAX 173197 0 173197 0 1036148 688448 310166 37534 687287 263614 185641 1683283 153245 0 1200 0 36210 5914 9408 2518000 1269146 3581583 3231365 158881 219351 61135 0 220016 219351 X 3208322 3012014 153245 0 3361567 3012014 3581583 3231365 X -7512 -342041 X false true X true false X 0 2128850 1640342 715251 825881 283680 5594004 0 0 2128850 1640342 715251 825881 283680 5594004 1017003 4577001 4083 3471 58 21005 36334 64951 449223 317487 27413 10969 84277 889369 0 6548324 0.69900 0.80510 X 0 0 0 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1269146 F 1269146 840673 154078 154078 686595 342041 342041 1028636 1190226 154078 154078 1036148 1036148 Pt XI, Line 4b INCOME ON LLC INTEREST NOT INCLUDED IN AUDIT. EVENTS 84277 42759 41518 84277 42759 41518 41518 Pt VI, Line 11b THE FORM 990 IS PROVIDED TO ALL BOARD MEMBERS AND OFFICERS FOR REVIEW BEFORE FILING. Pt VI, Line 12c EACH DIRECTOR AND OFFICER IS REQUIRED TO ANNUALLY SIGN A STATEMENT AFFIRMING THAT THEY HAVE RECEIVED A COPY OF THE BYLAWS CONTAINING THE CONFLICT OF INTEREST POLICY, HAVE READ AND UNDERSTAND THE POLICY, AND HAVE AGREED TO COMPLY WITH THE POLICY. Pt VI, Line 15a THE PRESIDENT/CEO'S COMPENSATION IS REVIEWED AND APPROVED BY THE BOARD OF DIRECTORS. Pt VI, Line 15b OTHER EMPLOYEE COMPENSATION IS REVIEWED WITH COMPARABLE SOURCES AND APPROVED BY THE BOARD OF DIRECTORS. Pt VI, Line 19 INFORMATION AVAILABLE UPON REQUEST. Pt XI Line 9 - OTHER CHANGES IN NET ASSETS - INCOME ON LLC INTEREST $342,041. Form 990, Part IX, Line 11g CONSULTING 454225. 451195. 0. 3030.