2024-03-07T13:53:47-06:00 2022-12-31 043236498 WALTER SHUFFAIN PC ONE INTERNATIONAL PLACE SUITE 1010 BOSTON MA 02110 990 2022-01-01 814302337 INTERNATIONAL WORKSHOP ON SCLERODERMA RESEARCH CORPORATION INTE 6176861754 6 SUMMER HILL CIRCLE ARLINGTON MA 02474 ROBERT LAFYATIS MD PRESIDENT/TREASURER 6176861754 2024-02-22 1 ROBERT LAFYATIS MD 999009999 0 ANGELA PARZIALE P00852403 6174472700 2024-02-16 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z ROBERT LAFYATIS MD 6 SUMMER CIRCLE ARLINGTON MA 02474 344059 0 X HTTPS://SSCWORKSHOP.WORDPRESS.COM/ X 2016 MA TO CREATE OPPORTUNITIES FOR HEALTH CARE PROVIDERS, RESEARCHERS, AND INDUSTRY LEADERS FROM AROUND THE WORLD TO MEET AND SHARE RESEARCH AND KNOWLEDGE RELATING TO SYSTEMIC SCLEROSIS IN ALL ITS ASPECTS. 6 6 0 0 116757 0 0 227302 0 116757 0 0 0 0 0 344059 0 0 0 0 0 25000 0 0 0 1011 364505 1011 389505 -1011 -45446 106551 61105 0 0 106551 61105 ORGANIZE AND IMPLEMENT RESEARCH MEETINGS THAT FOCUS ON SCLERODERMA RESEARCH 0 0 373340 116757 INTERNATIONAL WORKSHOP ON SCLERODERMA RESEARCH. CORPORATION HOLDS BIENNIAL CONFERENCES, THEREFORE, THE 16TH ANNUAL EVENT WAS HELD ON JULY 27TH OF 2019. NO ACTIVITY OCCURED IN 2020 AND 2021 DUE TO COVID. 373340 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 X 6 6 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 0 0 MA X ROBERT LAFYATIS MD 6176861754 6 SUMMER HILL CIRCLE ARLINGTON MA 02474 ROBERT LAFYATIS MD PRESIDENT 1.00 X X 0 0 0 CATHERINE BRENNAN CLERK 1.00 X X 0 0 0 CAROL FEGHALI-BOSTICK PHD DIRECTOR 1.00 X 0 0 0 MARIA TROJANOWSKA PHD DIRECTOR 1.00 X 0 0 0 MICHAEL WHITFIELD PHD DIRECTOR 1.00 X 0 0 0 JOHN VARGA MD DIRECTOR 1.00 X 0 0 0 0 0 0 0 0 0 0 0 227302 227302 REGISTRATION FEES FOR 611430 116757 116757 116757 344059 0 116757 0 25000 25000 605 605 8000 8000 6487 6487 281 281 326063 326063 SPEAKER REIMBURSEMENT 22277 22277 DUES AND SUBSCRIPTIONS 661 661 WIRE FEE 96 96 TAXES 35 35 389505 373340 16165 0 106551 61105 106551 61105 0 0 X 0 0 0 0 106551 61105 106551 61105 106551 61105 -45446 0 X 0 0 0 X 35000 227302 262302 35000 227302 262302 165658 96644 262302 246381 0.36840 0.21790 X THE ORGANIZATION WAS UNABLE TO HOLD A PLANNED REVENUE GENERATING CONFERENCE IN 2021 DUE TO THE EXTENUATING CIRCUMSTANCES OF THE COVID PANDEMIC. THUS, THERE WERE NO REVENUES IN 2021. HOWEVER,THE FIVE YEAR PUBLIC SUPPORT AVERAGE IS 21.79% AS SHOWN ON SCHEDULE A, PAGE 2, LINE 14. WHILE THIS IS BELOW THE STANDARD PUBLIC SUPPORT TEST FOR IRC 509 A 1 0F 33.33%, IT IS ABOVE THE 10% REQUIRED UNDER THE ALTERNATIVE FACTS AND CIRCUMSTANCES TEST. THE CANCELLED CONFERENCE OF 2021 WAS REPLACED BY A REVENUE GENERATING CONFERENCE IN 2022. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED FORM 990, PART VI, SECTION A, LINE 8B BOARD OF DIRECTORS OF THE ORGANIZATION MAKE DECISIONS FORM 990, PART VI, SECTION B, LINE 11B BOARD OF DIRECTORS OF THE ORGANIZATION REVIEW AND APPROVE THE FORM BEFORE FILING FORM 990, PART VI, SECTION C, LINE 19 DOCUMENT AVAILABLE UPON REQUEST