2024-02-16T11:02:09-05:00 2023-06-30 990EZ 2022-07-01 680252009 ASSOCIATION FOR THE BLADDER EXSTROPHY COMMUNITY % Pamela Artigas ASSO 4259411475 505 BEACHLAND BLVD SUITE 1 180 Vero Beach FL 32963 Pamela Artigas President and Executive Director 2024-02-16 2022 2023-04-26 12:10:37Z X X 505 Beachland Blvd Suite #1-180 X X 114198 X 114198 0 0 0 114198 2733 2236 142866 147835 -33637 83652 50015 83652 50015 0 0 83652 50015 83652 50015 THE A SSOCIATION FOR THE BLADDER EXSTROPHY COMMUNITY EXISTS TO PROVIDE INFORMATION ABOUT THIS RARE DEFECT AND SUPPORT TO INDIVIDUALS AND THEIR FAMILIES THROUGH EDUCATION ADVOCACY AND SUPPORT. . Global Care- A-BE-C facilitates safe affordable and timely treatment for families in developing countries born with bladder exstrophy. Yearly medical workshops in India and Uganda brings over 250 patients to "medical centers of excellence" to be treated by world-renowned pediatric surgeons nurses and social workers. Educational sessions and resources are provided to patients families and local healthcare teams on how to provide life-long treatment for this rare condition. 0 103592 A-BE-C's annual conference brings together families caregivers and physicians from all over the USA and the world to educate share experiences and build community to ensure all those affected by bladder exstrophy can realize their greatest life purpose and potential. 0 20585 A-BE-C programs provide parents caregivers and persons living with bladder exstrophy tools and resources to help manage their condition throughout their lifetime. 0 15012 139189 Pamela Artigas President and Executive Director 40 0 0 0 Janet Gibson Vice President 40 0 0 0 Thomas Exler Board Member 5 0 0 0 Joseph Redmond Board Member 5 0 0 0 Dr Paul Merguerian Advisory Board Chair 10 0 0 0 false false false false false 0 false false false false My Paper Pusher 6930 W Linebaugh Avenue Tampa FL 33625 8132792752 false false false false false false false false false false NONE NONE true X 92814 135861 690985 72420 114198 1106278 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 92814 135861 690985 72420 114198 1106278 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1106278 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 92814 135861 690985 72420 114198 1106278 1 1 0 0.00 X Part I, line 16 | Other Expenses:, Amount:| Management & Administration, $3678| Program Expenses - THE ASSOCIATION FOR THE BLADDER EXSTROPHY COMMUNITY A-BE-C EXISTS TO PROVIDE INFORMATION ABOUT THIS RARE BIRTH DEFECT BY PROVIDING SUPPORT TO INDIVIDUALS AND THEIR FAMILIES THROUGH EDUCATION ADVOCACY AND SUPPORT., $139188|