2024-05-15T23:02:32-07:00 2023-12-31 990EZ 2023-01-01 461871620 NOONAN SYNDROME FOUNDATION NOON 8668758928 605 US Highway 40 Ste 277 Blue Springs MO 64014 Amanda Brown President 8668758928 2024-05-14 Amanda Brown 999009999 1 1 11 0 AAL2 2023 2023-04-26 12:10:37Z X www.teamnoonan.org X X 39691 X 39691 0 0 0 0 0 0 0 0 1113 -1113 0 0 0 0 38578 2500 0 0 0 5807 571 9892 18770 19808 267066 0 286874 267066 286874 0 0 0 0 267066 286874 0 0 267066 286874 The mission of the Noonan Syndrome Foundation is to support, educate and advocate for those diagnosed with Noonan's Syndrome by supporting research for the development of effective treatments, and ultimately, a cure for the syndrome. Noonan's Syndrome is identified by a genetic mutation in the RAS/MAPK pathway and is expressed in many ways, over numerous systems in patients. The Noonan Syndrome Foundation supports patients and families by providing information online and in regular publications, holding regional events, conferences and support groups. Connecting patients and families to caregivers familiar with Noonan Syndrome is of the utmost importance ot the Foundation as well. Another goal is to increase public awareness of Noonan Syndrome to allow for accurate diagnosis by medical providers and to allow for those not affected by the syndrome to understand the challenges of those affected and to increase financial support We have an online support group with over 9000 participants. We host a biennial family conference on even numbered years with over 220 registrants. 0 0 2022 Noonan Syndrome foundation family conference. We hosted a meeting where we brought medical professionals familiar with NS to families to educate them and to offer support to each other. There were 252 attendees. 2023 Is an off year for this program. 0 0 0 Amanda Brown President 15 0 0 0 Cari Conant Vice President 15 0 0 0 Eddie Sierra Treasurer 15 0 0 0 Cory Renshaw Secretary 15 0 0 0 Krystal Steen Board Member 10 0 0 0 Lindsay Homan Board member 10 0 0 0 Tammy Bowers Board Member 15 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 HI IL Amanda Brown 1108 NW Sycamore Dr Grain Valley MO 64029 8668758928 0 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 55020 47051 66627 44975 39691 253364 16308 4406 22150 64192 1004 108060 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 71328 51457 88777 109167 40695 361424 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 361424 3 2 2 2 0 9 0 0 0 0 0 0 3 2 2 2 0 9 0 0 0 109169 40695 149864 0 0 0 0 0 0 71331 51459 88779 218338 81390 511297 0.70688 0.80589 0.00002 0.00003 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Form 990-EZ, Part I, Line 16 Description;Amount^Bank Service Charge;116|Business Registration Fees;6197|Business Expenses;2247|Staff Development;1651|Conference Planning;-319^Total;9892^