2024-02-29T14:31:37-05:00 2023-04-30 474306215 Mullins PC 7625 Wisconsin Avenue Bethesda MD 20814 990 2022-05-01 834658977 CureGrin Foundation CURE 17096 E Dewberry Drive Parker CO 80134 Keith McArthur CEO 3038813425 2024-02-26 true Keith McArthur XXX-XX-XXXX John Mullins P01429307 2027706371 2024-02-29 0 00 AAL1 IAL1 2022 2023-04-26 12:10:37Z Keith McArthur 422728 false X www.curegrin.org X 2019 CO Seeking treatments and cures for GRI Disorders. 8 6 0 50 0 0 440648 374601 48063 66 64 0 440714 422728 9800 446323 0 60000 121875 7500 0 96230 173133 268218 250433 836416 190281 -413688 824184 903042 3067 495613 821117 407429 Seeking treatments and cures for GRI Disorders. false false 446324 446324 48063 CureGRIN awarded 3 grants worth $446,323 in the fiscal year. These include: 1) $200,000 to researchers at University of Auckland and University of Toronto to validate blood biomarkers. 2) $146,332 to researchers at University College London for GRIA Disorder drug discovery and 3) $99,992 to Columbia University for gene therapy trials on GRIN2A mice. 161648 46813 After years of COVID related delays, CureGRIN hosted a three-day conference in Boston. More than 300 families, researchers, clinicians and representatives from the biopharm industry participated, including over 230 in-person attendees. The conference received rave reviews from both families and researchers. The largest expenses were food and audio-visual equipment. Revenue was associated with registration fees and sponsorships. 115862 CureGRINs programs fall into two categories. 1) Improving the lives of people around the world living with GRI Disorders (GRIN, GRIA, GRIK and GRID), and their families, through research, education and connectivity. These programs include GRIConnect, development of educational content and the family ambassador program. 2) Working with scientists, clinicians and the biopharm industry to drive research and cures. These programs include in-house research, GRI Genes Roundtable and biopharm engagement. 723834 true true false false false false false false false false false false false false false false false false true true true false false false false false true false false false false false false false false false false false false false false false false false false false true X 10 0 true 0 true false false false false false false false false false false false false X 8 6 false false false false false false false true true false false true true true false true false true false false CA CO FL NY X The Organization 3038813425 17096 E Dewberry Drive Parker CO 80134 Keith McArthur CEO 40.00 0.00 X X 75000 0 0 Denise Rehner President 20.00 0.00 X X 35000 0 0 Paulo Domingues Board Member 2.00 0.00 X 0 0 0 Kaitlyne Leblanc Board Member 2.00 0.00 X 0 0 0 Jillian Hastings Board Member 2.00 0.00 X 0 0 0 Natasha Lesmana Board Member 2.00 0.00 X 0 0 0 Robert Yockey Treasurer 2.00 0.00 X X 0 0 0 Heather Cartwright Board Chair 2.00 0.00 X X 0 0 0 Tina Roberts Secretary 2.00 0.00 X X 0 0 0 110000 0 0 0 false false false 374601 374601 Conference 900099 48063 48063 48063 64 64 422728 48063 0 64 X 99992 99992 346331 346331 112500 47740 9375 55385 9375 3979 781 4615 833 833 1730 1730 59441 43984 15457 7805 4065 76 3664 703 47 656 18293 10676 2349 5268 5372 5372 161648 161648 Merchant Fees 11081 11081 State Registrations 820 60 760 Bank Fees 236 236 Memberships 256 256 836416 723834 16352 96230 778738 855204 22446 47838 23000 824184 903042 3067 49320 446293 3067 495613 X 532992 367165 288125 40264 821117 407429 824184 903042 -413688 0 X false false false X 680838 237373 440648 374601 1733460 680838 237373 440648 374601 1733460 115328 1618132 66 64 130 1733590 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true Europe including Iceland and Greenland Grant making Program 146331 East Asia and the Pacific Grant making Program 200000 346331 346331 East Asia and the Pacific 200000 Check Book Europe including Iceland and Greenland Program 146331 Check Book false false false false false false General Explanation Attachment The Organization has no employees, but the CEO is an independent contractor living in Canada. true Columbia University PO Box 29789 New York NY 100879789 135598093 501c3 99992 Gene therapy trials on GRIN2A mice Monitoring procedures (Part I, line 2) The Organization receives grant reports from its awardees to ensure that the funds were appropriately used. Governing body meeting documentation Part VI line 8a Board meetings minutes are approved and available to public upon request. Form 990 governing body review Part VI line 11 The Organizations Board of Directors reviews the 990 for accuracy before the return is signed and filed. CEO executive director top management comp Part VI line 15a When hiring a new CEO, it is company policy that the Board of Directors does a review using comparative data with other non profit organizations. The Board sets compensation for the CEO.Officer compensation is set by the Board of Directors. Governing documents etc available to public Part VI line 19 The Organizations governing documents are available to the public upon request and are also available on the Attorney Generals Public Charities Division website. List of other fees for services expenses Part IX line 11g Research Management Services - $24,988Fees for Services (Other) - $34,453 Part V response or note to any other line in Part V The Organization has no employees, but the CEO is an independent contractor living in Canada. CureGRIN added employees in FY24.