2024-11-15T09:20:55-06:00 2023-12-31 541487262 MATTHEWS CARTER & BOYCE 12500 FAIR LAKES CIRCLE SUITE 260 FAIRFAX VA 22033 990 2023-01-01 850357897 NATIONAL COALITION FOR CANCER SURVIVORSHIP NATI 3016509127 8455 COLESVILLE ROAD 930 SILVER SPRING MD 20910 SHELLEY FULD NASSO CEO 3016509127 2024-11-15 1 0 KATHLEEN M FLAHERTY P00969957 7032183600 2024-11-15 2023 2024-10-15 13:58:12Z CANCER SURVIVORS COALITION SHELLEY FULD NASSO 8455 COLESVILLE ROAD 930 SILVER SPRING MD 20910 1951515 0 X WWW.CANCERADVOCACY.ORG X 1987 NM ADVOCATES FOR CHANGES IN HOW THE NATION RESEARCHES,REGULATES,FINANCES & DELIVERS QUALITY CANCER CARE. 11 11 12 0 0 0 1122771 841683 370000 450000 79967 94087 1038 1580 1573776 1387350 0 0 0 0 1179054 1172097 0 0 364936 1208495 827337 2387549 1999434 -813773 -612084 1598081 1154594 319707 472691 1278374 681903 X TO ADVOCATE FOR QUALITY CANCER CARE FOR ALL PEOPLE TOUCHED BY CANCER. 0 0 509070 450000 PUBLIC POLICY NCCS ADVOCATES FOR PUBLIC POLICY CHANGE TO ENSURE CANCER SURVIVORS HAVE ACCESS TO HIGH-QUALITY, EVIDENCE-BASED CANCER CARE. NCCS REPRESENTS THE PERSPECTIVE OF CANCER SURVIVORS IN PUBLIC POLICY DISCUSSIONS. WE CONVENE THOUGHT LEADERS, POLICYMAKERS, ADVOCATES, AND THE PRIVATE SECTOR AT THE NCCS CANCER POLICY ROUNDTABLES TO EXCHANGE IDEAS ABOUT THE MOST PRESSING POLICY ISSUES. OUR POLICY EFFORTS FOCUS ON QUALITY CANCER CARE, ACCESS TO CARE, AND HEALTH EQUITY. 399351 CANCER POLICY & ADVOCACY TEAM (CPAT):THE CANCER POLICY & ADVOCACY TEAM (CPAT) ENGAGES MORE THAN 1200 CANCER SURVIVORS AND CAREGIVERS FROM NEARLY ALL 50 STATES TO LEARN ABOUT PUBLIC POLICY ISSUES THAT AFFECT QUALITY CANCER CARE. CPAT PROVIDES MEMBERS TOOLS AND TRAINING TO BECOME EFFECTIVE ADVOCATES. THE PROGRAM INCLUDES AN IN-PERSON SYMPOSIUM, WITH TRAINING ON POLICY ISSUES AND ADVOCACY SKILLS, AND HILL DAY, AS WELL AS A MONTHLY NEWSLETTER, WEBINAR SERIES, MEMBERS-ONLY FACEBOOK GROUP, AND OTHER EDUCATIONAL MATERIALS. NCCS MATCHES CPAT MEMBERS WITH ADVOCACY OPPORTUNITIES, INCLUDING SPEAKING ENGAGEMENTS, MEDIA INTERVIEWS, RESEARCH REVIEW, AND PARTICIPATION ON COMMITTEES AND PROJECTS.THE GOAL OF THE PROGRAM IS TO TRAIN, USING A VARIETY OF METHODS, PATIENT ADVOCATES ON THE MOST PRESSING POLICY ISSUES FACING QUALITY CANCER CARE IN AN EFFORT TO FACILITATE THEIR ENGAGEMENT IN PUBLIC POLICY ADVOCACY TO ENSURE THE BEST POSSIBLE CARE. THE WEBINARS, E-NEWSLETTERS, ONLINE FORUM, AND IN-PERSON CONFERENCES FOR CPAT MEMBERS OFFER ADVOCATES DIFFERENT WAYS TO LEARN AND TO DISCUSS CURRENT ISSUES, PROGRAMS, AND POLICIES THAT AFFECT THE CANCER COMMUNITY AND TO TAKE ACTION AS APPROPRIATE. THE INTERACTIVE PROGRAM FOCUSES ON THOSE POLICY AND ADVOCACY ISSUES THAT AFFECT THE NEEDS OF CANCER SURVIVORS FROM DIAGNOSIS TO TREATMENT AND THROUGH LONG-TERM SURVIVORSHIP CARE AND WILL CONSIDER POLICY ACTIVITIES THAT MAY FOSTER REFORMS TO MAKE THE CANCER CARE SYSTEM MORE RESPONSIVE TO SURVIVORS' NEEDS. 103641 ELEVATING SURVIVORSHIP:ELEVATING SURVIVORSHIP IS A PATIENT- AND ADVOCATE-LED INITIATIVE TO IMPROVE SURVIVORSHIP CARE IN THE UNITED STATES. LAUNCHED IN 2018, ELEVATING SURVIVORSHIP (ELEVATE) WAS CREATED TO IDENTIFY GAPS IN SURVIVORSHIP CARE/SERVICES AND EMPLOY CANCER SURVIVOR ADVOCATES (AMBASSADORS) TO FILL THOSE GAPS IN THEIR LOCAL COMMUNITY. ELEVATE IS UNIQUE IN ITS DEPLOYMENT OF PATIENT LEADERS, PARTNERING WITH PROVIDERS AND OTHER COMMUNITY MEMBERS, TO IMPROVE THE DELIVERY OF, AND EDUCATION ABOUT SURVIVORSHIP CARE IN LOCAL COMMUNITIES. 594314 1580 CANCER SURVIVORSHIP CHECKLIST:A CANCER SURVIVOR'S GUIDE," IS A TOOL TO HELP SURVIVORS NAVIGATE THE CANCER EXPERIENCE. THE CHECKLIST HELPS CANCER PATIENTS TO BE ACTIVELY ENGAGED IN THEIR CARE AS THEY PURSUE FOLLOW-UP CARE, MONITOR THEIRHEALTH STATUS, AND FIND SUPPORT FOR PSYCHO-SOCIAL NEEDS. NCCS PARTNERS WITH A VARIETY OF ORGANIZATIONS TO ENSURE WIDE DISSEMINATION OF THE CHECKLIST, IN BOTH HARD COPY AND ONLINE FORMATS, TO ENSURE THESURVIVORSHIP CHECKLIST REACHES SURVIVORS OF ALL TYPES AND STAGES OF CANCER, AGES, GEOGRAPHIC LOCATIONS, AND LEVELS OF HEALTH LITERACY.SURVIVORSHIP SURVEY:THE ANNUAL STATE OF SURVIVORSHIP SURVEY PROVIDES US AN INVALUABLE OPPORTUNITY TO DELVE INTO THE CANCER PATIENT AND SURVIVOR JOURNEY FROM A RANGE OF PERSPECTIVES AND TO BETTER UNDERSTAND HOW NCCS CAN SUPPORT OUR MISSION TO ADVOCATE FOR QUALITY CARE FOR ALL. THE RESEARCH, CONDUCTED IN PARTNERSHIP WITH EDGE RESEARCH, HELPS NCCS BUILD ON AND TRACK FINDINGS FROM THE PREVIOUS YEAR TO BETTER UNDERSTAND THE DIFFERENCES IN PATIENT AND SURVIVOR ATTITUDES, EXPERIENCES, AND NEEDS. 594314 1580 1606376 1 1 0 1 0 0 0 0 0 0 1 0 0 1 1 1 1 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 25 0 1 12 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 11 11 0 0 0 0 0 1 0 1 1 0 0 1 1 1 1 1 1 1 0 0 NM MD NJ X THE ORGANIZATION 3016509127 8455 COLESVILLE ROAD SILVER SPRING MD 20910 MICHAEL L KAPPEL TREASURER 1.00 X X 0 0 0 ELEANOR WINTER DIRECTOR 1.00 X 0 0 0 SAMIRA K BECKWITH DIRECTOR 1.00 X 0 0 0 BENJAMIN FISHMAN DIRECTOR 1.00 X 0 0 0 PHILIP DUFOUR DIRECTOR 1.00 X 0 0 0 OTIS BRAWLEY MD DIRECTOR 1.00 X 0 0 0 JULIA ROWLAND PHD DIRECTOR 1.00 X 0 0 0 TAYLOR FERRELL DIRECTOR 1.00 X 0 0 0 LISA D T RICE VICE CHAIR 1.00 X X 0 0 0 ANNA MARIA LOPEZ MD DIRECTOR 1.00 X 0 0 0 LAURIE ISENBERG BOARD CHAIR 1.00 X X 0 0 0 ELENA JEANNOTTE VICE PRESIDENT 40.00 X 150800 0 6769 WOULITA SEYOUM SENIOR DIRECTOR OF FINANCE 40.00 X 123900 0 7611 SHELLEY F NASSO CHIEF EXECUTIVE OFFICER 40.00 X 209530 0 37470 484230 0 51850 3 0 1 0 EDGE RESEARCH INC 1560 WILSON BLVD SUITE 475 ARLINGTON VA 22209 RESEARCH SERVICES 134500 1 51278 790405 841683 CANCER POLICY ROUNDTAB 900099 450000 450000 450000 22331 22331 580799 509043 71756 71756 71756 55122 51278 55122 0 1580 0 1580 1580 1387350 451580 0 94087 X 536080 368654 7203 160223 507870 418354 1295 88221 14047 11567 32 2448 42648 27066 192 15390 71452 53599 566 17287 771 771 3567 2791 158 618 21432 14988 792 5652 17952 17952 247943 246082 482 1379 5387 4272 1000 115 33747 18880 282 14585 45158 38881 1019 5258 103183 68810 7035 27338 100040 90270 319 9451 160466 156334 3972 160 13055 9526 739 2790 12930 9181 660 3089 SERVICE CHARGES 39018 27756 2103 9159 PROFESSIONAL TRAINING 10652 9892 760 DUES AND SUBSCRIPTIONS 4623 4257 34 332 RECRUITING 4383 3463 239 681 3030 3030 1999434 1606376 28122 364936 55271 40336 123512 132214 223899 59151 17050 17050 42302 25652 322401 316854 15465 5547 902462 727024 218120 147620 1598081 1154594 82851 60943 25000 177500 91011 211856 143237 319707 472691 X 138574 -180331 1139800 862234 1278374 681903 1598081 1154594 -612084 15613 0 X X 0 1 X 1 0 X 1391744 1292306 1579055 1122711 841683 6227499 1391744 1292306 1579055 1122711 841683 6227499 2608038 3619461 19694 17398 25261 25003 22331 109687 6337186 2270760 0.57110 0.59520 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1447 16505 17952 1981482 1999434 249972 62493 0 0 221256 248873 269377 249972 989478 1484217 4799 17716 18286 17952 58753 55314 62218 67344 62493 247369 371054 1018 1447 2465 322401 316854 5547 5547 DEPOSIT 6477 RIGHT OF USE ASSET 141143 147620 LEASE LIABILITY 143237 143237 X 1912127 15613 483788 499401 1412726 -25376 -25376 1387350 2508598 483788 25376 509164 1999434 0 1999434 PART X, LINE 2: THE FINANCIAL ACCOUNTING STANDARDS BOARD (FASB) ISSUED FASB ASC 740, INCOME TAXES. FASB ASC 740 REQUIRES CHANGES IN RECOGNITION AND MEASUREMENT FOR UNCERTAIN TAX POSITIONS. NCCS HAS DETERMINED THAT IT CURRENTLY DOES NOT HAVE ANY UNCERTAIN TAX POSITIONS. IF THIS POSITION CHANGES, NCCS WILL ASSESS THE IMPACT OF ANY SUCH MATTERS ON ITS STATEMENT OF FINANCIAL POSITION AND ITS RESULTS OF OPERATIONS. PART XI, LINE 4B - OTHER ADJUSTMENTS: EVENT EXPENSES OFFSET AGAINST REVENUE -25,376. PART XII, LINE 2D - OTHER ADJUSTMENTS: EVENT EXPENSES OFFSET AGAINST REVENUE 25,376. CARE RECEPTION 106400 51278 55122 55122 106400 51278 55122 55122 55122 0 X 0 0 0 0 0 0 0 0 0 SHELLEY F NASSO CHIEF EXECUTIVE OFFICER 209530 0 0 0 0 0 6490 0 30980 0 247000 0 0 0 ELENA JEANNOTTE VICE PRESIDENT 150800 0 0 0 0 0 4407 0 2362 0 157569 0 0 0 FORM 990, PART VI, SECTION A, LINE 7A ANY INDIVIDUAL MAY NOMINATE HIMSELF, HERSELF, OR ANOTHER MEMBER IN WRITING BY SUBMITTING THE NOMINATION TO THE CENTRAL OFFICE OR TO ANY MEMBER OF THE GOVERNANCE COMMITTEE NO LESS THAN NINETY (90) DAYS PRIOR TO THE OPENING OF THE ANNUAL BOD MEETING. THE GOVERNANCE COMMITTEE SHALL SUBMIT IN WRITING AT LEAST THIRTY (30) DAYS PRIOR TO THE ANNUAL BOD MEETING THE NAMES OF PERSONS TO BE NOMINATED AS MEMBERS OF THE BOD AND AS OFFICERS OF THE CORPORATION. THE BOD SHALL ELECT OFFICERS AND THE DIRECTORS BY MAJORITY VOTE. EACH DIRECTOR SHALL BE ELECTED TO A TERM OF THREE (3) YEARS. FORM 990, PART VI, SECTION B, LINE 11B THE FEDERAL FORM 990 IS REVIEWED IN DETAIL BY MANAGEMENT. AFTER MANAGEMENT'S REVIEW AND APPROVAL OF THE FORM 990, THE 990 IS REVIEWED BY THE TREASURER AND/OR THE FINANCE COMMITTEE. ONCE THE TREASURER AND/OR THE FINANCE COMMITTEE APPROVES THE FORM 990 IT IS FILED WITH THE IRS. THE FORM 990 IS ALSO PRESENTED TO THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION B, LINE 12C THE ORGANIZATION REGULARLY AND CONSISTENTLY MONITORS AND ENFORCES COMPLIANCE WITH THE CONFLICT OF INTEREST POLICY BY ANNUALLY PROVIDING A COPY OF THE POLICY TO EACH INDIVIDUAL AND BY MAKING IT MANDATORY FOR ALL OFFICERS, DIRECTORS, EMPLOYEES OR COMMITTEE MEMBERS TO COMPLETE AND SIGN BOTH AN ANNUAL DISCLOSURE AND AN ACKNOWLEDGEMENT OF RECEIPT OF THE CONFLICT OF INTEREST POLICY. ALL COMPLETED ACKNOWLEDGEMENTS AND DISCLOSURE FORMS, ALONG WITH ALL OTHER CONFLICT INFORMATION, ARE REVIEWED BY THE ORGANIZATION'S PRESIDENT AND CHAIR. FORM 990, PART VI, SECTION B, LINE 15A COMPENSATION FOR THE ORGANIZATION'S CEO IS DETERMINED BY THE ORGANIZATION'S EXECUTIVE COMMITTEE. THE EXECUTIVE COMMITTEE ASSISTS THE BOARD IN SETTING THE CEO'S COMPENSATION AND TO REVIEW AND MAKE RECOMMENDATIONS REGARDING COMPENSATION PLANS, POLICIES, AND PROGRAMS OF THE ORGANIZATION. THE ORGANIZATION'S COMPENSATION PACKAGES ARE SET AND GOVERNED BY ITS EXECUTIVE COMMITTEE, WHICH INITIALLY APPROVES THEM AND HAS DISCRETION TO CHANGE THEM. THE COMMITTEE DOES UTILIZE INDEPENDENT SOURCES AND OTHER TIMELY AND COMPARABLE DATA TO REACH ITS RECOMMENDATIONS. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. THE CONFLICT OF INTERST POLICY AND FINANCIAL STATEMENTS ARE ALSO AVAILABLE ON THE ORGANIZATION'S WEBSITE. FORM 990, PART IX, LINE 11G CONSULTANTS: PROGRAM SERVICE EXPENSES 246,082. MANAGEMENT AND GENERAL EXPENSES 482. FUNDRAISING EXPENSES 1,379. TOTAL EXPENSES 247,943. FORM 990, PART XII, LINE 2C THE PROCESS HAS NOT CHANGED FROM THE PRIOR YEAR.