2024-11-08T09:29:20-08:00 2023-12-31 752980128 Richard K Gonzales CPA 4838 NE Sandy Blvd Suite 102 Portland OR 97213 990EZ 2023-01-01 912100291 INTRACRANIAL HYPERTENSION RESEARCH FOUNDATION INTR 3606934473 6517 BUENA VISTA DRIVE VANCOUVER WA 98661 EMANUEL TANNE MD Chairman 2024-11-08 true true Richard K Gonzales CPA P00012994 5034123636 X 2023 2024-10-15 13:58:12Z X X WWW.IHRFOUNDATION.ORG X 20483 X 17894 2589 0 0 0 0 20483 5490 5490 14993 92155 107148 92155 107148 92155 107148 92155 107148 FUND AND CONDUCT RESEARCH RELATING TO INTRACRANIAL HYPERTENSION DISORDER; TO DEVELOP THERAPIES, TREATMENTS, AND ULTIMATELY A CURE FOR PEOPLE SUFFERING FROM SUCH DISORDER; TO DISSEMINATE SUCH INFORMATION TO THE MEDICAL COMMUNITY AND PATIENTS AND THE GENERAL PUBLIC AT LARGE; AND TO DEVELOP ALL DATABASES AND PATIENT REGISTRIES INCIDENT THERETO. THE FOUNDATION (IHRF) MAINTAINED AND EXPANDED ITS WEBSITE (ihrfoundation.org) AND FACEBOOK WITH INFORMATION IN THE ONGOING EFFORT TO DISSEMINATE, EDUCATE AND UPDATE PHYSICIANS, RESEARCHERS, PATIENTS AND OTHER ORGANIZATIONS. THERE WERE APPROXIMATELY 34,400 USER VISITS FROM 139 COUNTRIES WITH 111,545 SESSIONS IN 2023. TO KEEP PATIENTS UP TO DATE, IHRF PUBLISHES AN ONLINE NEWSLETTER PROVIDING NEW GENERAL INFORMATION AND REVIEWS NEWLY PUBLISHED MEDICAL LITERATURE.IHRF CONTINUES ITS SERVICE OF RESPONDING TO PATIENTS, PHYSICIANS, RESEARCHERS AND OTHERS WHOSE INQUIRIES MADE UP MORE THAN 2,800 EMAILS AND PHONE CALLS IN 2023. 2041 IN MARCH OF 2020, BECAUSE OF COVID-19, OREGON HEALTH & SCIENCE UNIVERSITY MEDICAL CENTER (OHSU) REQUIRED THAT ALL NON-ESSENTIAL OFFICES HAD TO BE CLOSED. AS A RESULT, THE INTRACRANIAL HYPERTENSION REGISTRY, CO-SPONSORED WITH THE CASEY EYE INSTITUTE, WAS UNABLE TO FUNCTION, AS RESEARCH COORDINATORS AND ALL VOLUNTEERS HAD TO WORK FROM HOME. THIS MADE IT IMPOSSIBLE TO FUNCTION AND IT REMAINS CLOSED AS OF JUNE 30, 2020. DESIGNED EXCLUSIVELY FOR INTRACRANIAL HYPERTENSION RESEARCH, IT CONTAINED THE LARGEST NUMBER OF CHRONIC IH PATIENTS WORLDWIDE WITH AN ENROLLMENT DATA BASE OF OVER 2,675 PATIENTS FROM OVER 40 COUNTRIES AND HAD CONTINUED TO ADD 5-7 NEW PATIENTS PER MONTH AT THE TIME OF CLOSURE. IT ALSO COLLECTED EXTENSIVE MEDICAL DATA AND IMAGING STUDIES ON EACH ENROLLEE, FILED ON A PAC SYSTEM AT THE NEURO-RADIOLOGY DEPT AT OHSU. IT IS MOST LIKELY THE LARGEST COLLECTION IN THE WORLD OF IH PATIENTS, NUMBERING APPROXIMATELY 17,500.OUR LAST COMPLETED STUDY OF DATA ON LONG-TERM OUTCOMES OF BARIATRIC SURGERY IN PATIENTS WITH IDIOPATHIC IH, LONG TERM OUTCOMES OF BARIATRIC SURGERY IN IDIOPATHIC HYPERTENSION PATIENTS WAS PUBLISHED IN THE PUBLIC ACCESS SYSTEM OF THE NEUROLOGIST, JUNE 2022. THE PRINT VERSION WAS PUBLISHED IN THE NEUROLOGIST, VOLUME 28, NUMBER 2 - MARCH 2023. THIS IS THE FIRST STUDY OF LONG-TERM OUTCOMES RANGING FROM 4 TO 16 YEARS POST OPERATIVE EVER PUBLISHED ON IH. WE NOTED ON COMPLETION OF THE STUDY THAT THOSE PATIENTS WHO ATTAINED AND MAINTAINED A BMI OF 30 OR BELOW HAD THE BEST LONG-TERM RESULTS. THE IMPORTANCE OF OUR PUBLICATION IS SEEN BY UTILIZATION, FROM JANUARY 2022 TO PRESENT, 83 DIFFERENT RESEARCH AUTHORS CITED IHRF AS KEY REFERENCES. DESPITE CLOSURE OF THE REGISTRY, IHRF CONTINUES TO BE NOTIFIED ABOUT 2 TIMES A WEEK OF UTILIZATION OF OUR ORIGINAL RESEARCH. IN ADDITION TO OUR RECOGNITION OF PUBLISHED RESEARCH, WE CONTINUE TO RECEIVE REQUESTS TO REVIEW MEDICAL RESEARCH OF OTHERS FOR POSSIBLE ACCEPTANCE FOR PUBLICATION IN MEDICAL JOURNALS. IHRF CONTINUES TO RECEIVE INVITATIONS TO JOIN MEDICAL JOURNAL BOARDS, TO PRESENT POSTERS AND LECTURES AT MEETINGS, ADD CHAPTERS FOR MEDICAL BOOKS AND JOURNALS AND TO HAVE INFORMATION BOOTHS AT SCIENTIFIC MEETINGS.IHRF CONTINUES TO PROVIDE EXTENSIVE ASSISTANCE TO PATIENTS, REQUESTING INFORMATION ON SECOND MEDICAL OPINIONS AND INFORMATION ON PHYSICIANS WHO TREAT IH, BOTH NATIONALLY AND INTERNATIONALLY. WE PROVIDE THE SAME FOR PHYSICIANS AND RESEARCHERS. WE ALSO CONTINUE TO PROVIDE INFORMATION ABOUT IH IN GENERAL, BEYOND WHAT APPEARS ON OUR WEBSITE. ALL OUR SERVICES ARE ALWAYS FREE OF ANY CHARGES. 2041 EMANUEL TANNE MD Chairman 30.00 0 AMY LOIS TANNE Secretary 30.00 0 WILLIAM T SHULTS MD Director 1.00 0 DAVID ROBERTS Director 1.00 0 false false false false false false false 0 0 0 false 0 0 false EMANUEL TANNE MD 6517 BUENA VISTA DRIVE VANCOUVER WA 98661 3606934473 false false false false false false false false false false false NONE NONE true X 56690 33333 23597 22352 17894 153866 0 0 56690 33333 23597 22352 17894 153866 81033 72833 1462 77 6 240 2589 4374 0 0 158240 0.46030 0.52270 X Other Expenses.1001 Advertising and Promotion $1116 Other Expenses.1002 Office Expenses $94 Other Expenses.1003 Information Technology $2041 Other Expenses.1012 Insurance $803 Other Expenses.1 TELEPHONE $1011 Other Expenses.2 BANK CHARGES $155 Other Expenses.3 DUES & SUBSCRIPTIONS $140 Other Expenses.4 LICENSES AND PERMITS $130