2024-06-18T13:53:49-05:00 2023-12-31 521392008 GELMAN ROSENBERG & FREEDMAN 4550 MONTGOMERY AVE SUITE 800N BETHESDA MD 208142930 990 2023-01-01 202897110 BLADDER CANCER ADVOCACY NETWORK INC BLAD 3012159099 4520 EAST-WEST HIGHWAY 610 BETHESDA MD 20814 ANDREA MADDOX-SMITH CEO 3012159099 2024-06-18 1 ANDREA MADDOX-SMITH 999009999 0 RICHARD J LOCASTRO CPA P00288314 3019519090 0 AAL1 IAL1 2023 2023-04-26 12:10:37Z ANDREA MADDOX-SMITH 4520 EAST-WEST HIGHWAY 610 BETHESDA MD 20814 8426731 0 X WWW.BCAN.ORG X 2005 MD SEE PART III, LINE 1. 14 14 16 13 0 0 8752305 5143510 36265 52825 115571 251210 3060 2347 8907201 5449892 850000 2031072 0 0 1378788 1747044 0 0 364886 1846920 2103611 4075708 5881727 4831493 -431835 14357530 14518465 1075547 1026458 13281983 13492007 X TO INCREASE PUBLIC AWARENESS ABOUT BLADDER CANCER, TO ADVANCE BLADDER CANCER RESEARCH, AND TO PROVIDE EDUCATIONAL AND SUPPORT SERVICES FOR THE BLADDER CANCER COMMUNITY. 0 0 2126874 2031072 RESEARCH:BCAN WORKS TO ADVANCE BLADDER CANCER RESEARCH. RECOGNIZING THE OVERWHELMING NEED FOR RESEARCH FUNDING, BCAN HAS INVESTED IN A NEW GENERATION OF RESEARCHERS WITH ITS YOUNG INVESTIGATOR RESEARCH AWARDS. IN ADDITION, BCAN SUPPORTS EXCEPTIONALLY NOVEL AND CREATIVE PROJECTS WITH GREAT POTENTIAL TO PRODUCE BREAKTHROUGHS IN THE MANAGEMENT OF BLADDER CANCER THROUGH ITS BLADDER CANCER. 793311 EDUCATION AND INFORMATION:BCAN HOSTS A VARIETY OF EDUCATIONAL PROGRAMS AND PUBLISHES PRINTED MATERIALS TO EDUCATE THOSE COPING WITH A BLADDER CANCER DIAGNOSIS. BCAN'S COMPREHENSIVE PATIENT HANDBOOK, "BLADDER CANCER BASICS FOR THE NEWLY DIAGNOSED," HAS BEEN PROVIDED TO THOUSANDS OF PATIENTS, CAREGIVERS, UROLOGY PRACTICES, AND CANCER CENTERS ACROSS THE UNITED STATES. THE PATIENT INSIGHT WEBINAR SERIES IS AN INTERACTIVE PROGRAM THAT FEATURES TOP EXPERTS IN THEIR FIELD WHO ANSWER QUESTIONS AND ADDRESS PATIENT CONCERNS IN AN EASY FORMAT. THE SURVIVOR 2 SURVIVOR PROGRAM CONNECTS NEWLY DIAGNOSED BLADDER CANCER PATIENTS WITH SURVIVORS WHO HAVE HAD SIMILAR DIAGNOSES. 796099 51875 THINK TANK:THE BLADDER CANCER THINK TANK IS THE PREMIER SCIENTIFIC MEDICAL SYMPOSIUM DEDICATED SOLELY TO BLADDER CANCER. THROUGH COLLABORATION, UROLOGISTS, ONCOLOGISTS, SCIENTISTS, AND RESEARCHERS ARE PIONEERING NEW TREATMENT PROTOCOLS, INVESTIGATING GENETIC EXPRESSIONS, AND IMPROVING ACCESS TO QUALITY CARE FOR THOSE LIVING WITH THE DISEASE. 617709 950 WALK TO END BLADDER CANCERTHE WALK TO END BLADDER CANCER IS BCAN'S SIGNATURE AWARENESS EVENT AND PRIMARILY TAKES PLACE IN MAY. THE WALKS UNITE BLADDER CANCER SURVIVORS, LOVED ONES, AND THE MEDICAL COMMUNITY TO PROMOTE RECOGNITION AND UNDERSTANDING OF THE DISEASE. IN 2023, BCAN HAD OVER 2,500 PARTICIPANTS REGISTER TO WALK ACROSS THE UNITED STATES EXCLUDING THE PARTICIPANTS BCAN HOSTED VIRTUALLY.ADVOCACYAS THE VOICE FOR THE PATIENT COMMUNITY, BCAN PARTICIPATES IN COALITIONS AND WORKS WITH OTHER MEMBERSHIP GROUPS TO WEIGH IN ON POLICY ISSUES THAT DIRECTLY IMPACT THOSE LIVING WITH BLADDER CANCER. BCAN PROVIDES THE BLADDER CANCER COMMUNITY WITH THE OPPORTUNITY TO BUILD CONNECTIONS, IDENTIFY BLADDER CANCER STATE AND NATIONAL LEGISLATIVE ISSUES OF IMPORTANCE, AND LEARN BEST PRACTICES FOR RAISING AWARENESS OF BLADDER CANCER WITHIN COMMUNITIES.PATIENT AND VOLUNTEER SUPPORTBCAN IS A GRASSROOTS ORGANIZATION AND VOLUNTEERS ARE AN IMPORTANT PART OF PATIENT OUTREACH. BCAN CONTINUES TO EXPAND ITS VOLUNTEER PROGRAMS WHICH WERE FORMALIZED IN 2014.- SURVIVOR 2 SURVIVOR MATCHES NEWLY DIAGNOSED PATIENTS WITH OTHER SURVIVORS WHO HAVE HAD A SIMILAR EXPERIENCE. THROUGH THESE PERSONAL CONNECTIONS, NEWLY DIAGNOSED PATIENTS LEARN MORE ABOUT LIVING WITH BLADDER CANCER AND TREATMENT OPTIONS. 617709 950 4333993 1 1 0 1 0 0 0 0 0 0 1 0 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 16 0 1 16 1 0 0 0 0 0 0 0 0 0 0 0 0 X 14 14 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 AL AR CA FL GA HI IL KS KY MD MA MI MN MS NH NJ NM NY NC OR PA RI SC TN VA WV WI X X ANDREA MADDOX-SMITH 3012159099 4520 EAST-WEST HIGHWAY SUITE 610 BETHESDA MD 20814 JARED SHER CHAIR 2.00 X X 0 0 0 GERALD MCNAMARA TREASURER 2.00 X X 0 0 0 BEVERLY JAMES SECRETARY 2.00 X X 0 0 0 DIANE ZIPURSKY QUALE FOUNDER 2.00 X X 0 0 0 DUNCAN ALEXANDER DIRECTOR 1.00 X 0 0 0 JAMIE GILLESPIE DIRECTOR 1.00 X 0 0 0 MARY GUSHEE DIRECTOR 1.00 X 0 0 0 CHERYL LEE DIRECTOR 1.00 X 0 0 0 SETH LERNER DIRECTOR 1.00 X 0 0 0 ROB LEVIN DIRECTOR 1.00 X 0 0 0 DAVID PULVER DIRECTOR 1.00 X 0 0 0 KAREN SACHSE DIRECTOR 1.00 X 0 0 0 NEAL SHORE DIRECTOR 1.00 X 0 0 0 MALCOLM TUESLEY DIRECTOR 1.00 X 0 0 0 ANDREA MADDOX-SMITH CEO 40.00 X 317950 0 9539 REBECCA JOHNSON VP. RESEARCH, EDUCATION & MARKETING 40.00 X 157846 0 10840 STEPHANIE CHISOLM DIR. OF EDUCATION & ADVOCACY 40.00 X 144348 0 18217 MARK STORY DIR. OF COMMUNICATIONS & MARKETING 40.00 X 144576 0 15874 ROBERT DEMSKE CHIEF ADVOCACY & DEVELOPMENT OFFICER 40.00 X 147000 0 4410 911720 0 58880 5 0 1 0 0 5143510 36087 5143510 CONFERENCE 900099 52825 52825 52825 251314 251314 2976735 2976839 -104 -104 -104 OTHER REVENUE 900099 2347 2347 2347 5449892 52825 0 253557 2031072 2031072 327489 212868 58948 55673 1208516 789798 215716 203002 27690 18102 4940 4648 74548 48664 13330 12554 108801 71024 19455 18322 55968 55968 60000 60000 463570 108679 354891 138021 78492 44941 14588 191810 66642 114122 11046 163207 39432 104105 19670 121971 79621 21810 20540 192362 158434 31235 2693 520879 514902 5497 480 18697 18697 15177 15177 PROF. DEVELOPMENT 34583 34583 PERMITS & FEES 18967 18119 848 MEDIA PRODUCTION/SVCS 16445 525 15920 BOARD EXPENSE 15014 15014 76940 37619 37651 1670 5881727 4333993 1182848 364886 1871513 1964067 2789549 892035 307852 52287 24709 100209 78069 36901 22140 10942259 8959622 562535 450526 14357530 14518465 141699 70762 300000 443960 633848 511736 1075547 1026458 X 10186343 9907283 3095640 3584724 13281983 13492007 14357530 14518465 -431835 641859 0 X 0 1 X 1 0 X 3374295 4644432 4287920 8752305 5143510 26202462 3374295 4644432 4287920 8752305 5143510 26202462 8222633 17979829 2806 22398 17528 115571 251314 409617 3077 22524 3479 3060 2347 34487 26646566 440940 0.67480 0.70460 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 0 0 0 1 60000 0 0 60000 0 PART II-B, LINE 1: THE LOBBYIST COORDINATED THE MEETINGS AND MESSAGING FOR OUR ANNUAL HILL DAY TO SUPPORT BLADDER CANCER AWARENESS MONTH. THIS INCLUDED A TRAINING FOR OUR PATIENT ADVOCATES WHO JOINED US FROM AROUND THE COUNTRY FOR THIS DAY ON THE HILL. 100209 78069 22140 22140 OPERATING LEASE LIABILITY 511736 511736 6091751 641859 641859 5449892 0 5449892 5881727 0 5881727 0 5881727 1 RESEARCH 10 2031072 PART I, LINE 2: FOR A 24 MONTH GRANT PERIOD: THE RECIPIENTS ARE REQUIRED TO SUBMIT ANNUAL WRITTEN SUMMARIES TO BCAN DOCUMENTING THE PROGRESS MADE IN CONNECTION WITH THE GRANT. X X X 0 0 0 0 0 0 0 1 0 ANDREA MADDOX-SMITH CEO 272950 0 45000 0 0 0 9539 0 0 0 327489 0 0 0 REBECCA JOHNSON VP. RESEARCH, EDUCATION & MARKETING 157846 0 0 0 0 0 4735 0 6105 0 168686 0 0 0 STEPHANIE CHISOLM DIR. OF EDUCATION & ADVOCACY 144348 0 0 0 0 0 4330 0 13887 0 162565 0 0 0 MARK STORY DIR. OF COMMUNICATIONS & MARKETING 144576 0 0 0 0 0 4337 0 11537 0 160450 0 0 0 ROBERT DEMSKE CHIEF ADVOCACY & DEVELOPMENT OFFICER 147000 0 0 0 0 0 4410 0 0 0 151410 0 0 0 PART I, LINE 7 DURING THE YEAR, ANDREA MADDOX-SMITH RECEIVED A MERIT BONUS OF $45,000. X 3 36087 FMV 0 0 0 0 PART I, COLUMN (B): THE AMOUNT IN COLUMN (B) REPRESENTS THE NUMBER OF CONTRIBUTIONS. FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 WAS PREPARED BY OUTSIDE ACCOUNTANTS. PRIOR TO FILING, THE FORM 990 WAS REVIEWED BY MANAGEMENT, THE TREASURER, AND THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION B, LINE 12C ANNUALLY, EACH BOARD MEMBER, OFFICER, AND MEMBER OF A COMMITTEE WITH BOARD DELEGATED POWERS SIGNS A STATEMENT WHICH AFFIRMS THEY HAVE READ AND ARE COMPLYING WITH BCAN'S CONFLICT OF INTEREST POLICIES. IN CONNECTION WITH ANY ACTUAL OR POSSIBLE CONFLICTS OF INTEREST, AN INTERESTED PERSON DISCLOSES THE EXISTENCE AND NATURE OF HIS OR HER FINANCIAL INTEREST TO THE DIRECTORS AND MEMBERS OF COMMITTEES WITH BOARD DELEGATED POWERS CONSIDERING THE PROPOSED TRANSACTION OR ARRANGEMENT. AFTER DISCLOSURE OF THE FINANCIAL INTEREST, THE INTERESTED PERSON LEAVES THE BOARD OR COMMITTEE MEETING WHILE THE FINANCIAL INTEREST IS DISCUSSED AND VOTED UPON. THE REMAINING BOARD OR COMMITTEE MEMBERS DECIDES IF A CONFLICT OF INTEREST EXISTS. THE RECORDS OF ALL PROCEEDINGS ARE MAINTAINED IN THE MINUTES OF THE BOARD. FORM 990, PART VI, SECTION B, LINE 15 TO DETERMINE APPROPRIATE COMPENSATION FOR BCAN'S EXECUTIVE DIRECTOR, THE OFFICERS ANNUALLY REVIEW THE MOST RECENTLY AVAILABLE NONPROFIT SALARY SURVEYS FOR THE DC METROPOLITAN AREA BEFORE DESIGNATING A SALARY RANGE BASED ON THE EXECUTIVE DIRECTORS SKILLS AND EXPERIENCE. THE PROPOSED COMPENSATION IS SUBJECT TO APPROVAL BY THE BOARD OF DIRECTORS. THE LAST COMPENSATION REVIEW TOOK PLACE IN 2022. BCAN'S OFFICERS DO NOT DRAW ANY SALARY, NOR DO THEY GET REIMBURSED FOR TRAVEL TO BOARD MEETINGS. THE APPROPRIATE COMPENSATION FOR BCAN'S OTHER STAFF IS REVIEWED AT LEAST ANNUALLY BY BCAN'S EXECUTIVE DIRECTOR. SHE REVIEWS THE MOST RECENTLY AVAILABLE NONPROFIT SALARY SURVEYS FOR THE DC METROPOLITAN AREA TO DESIGNATE A SALARY RANGE BASED ON STAFF'S SKILLS AND EXPERIENCE. THE PROPOSED COMPENSATION IS SUBJECT TO APPROVAL BY THE BOARD OF DIRECTORS EACH YEAR WHEN THEY APPROVE THE ANNUAL BUDGET. FORM 990, PART VI, SECTION C, LINE 19 BLADDER CANCER'S 990 AND DOCUMENTS ARE AVAILABLE TO THE PUBLIC BY REQUEST. THEY ALSO HAVE THE 990 AVAILABLE ON GUIDESTAR.ORG