2024-11-13T16:26:22-08:00 2023-12-31 223882691 Dowd Ferrin & Saunders 2659 TOWNSGATE RD STE 130 WESTLAKE VILLAGE CA 91361 990 2023-01-01 954672679 RENAL SUPPORT NETWORK RENA 8183144866 1311 N MARYLAND AVE GLENDALE CA 91207 LORI HARTWELL President 2024-11-13 true true Peter D Ferrin CPA P00358904 8057777533 X 2023 2024-10-15 13:58:12Z 1311 N MARYLAND AVE GLENDALE CA 91207 1213857 false X RSNHOPE.ORG X 1998 CA Dealing with chronic kidney disease (CKD) can be exhausting, both physically and emotionally. The Center for Disease Control states that an estimated 30 million US adults have CKDor more than 15% of the US adult population. Renal Support Network (RSN) strives to ensure people who have kidney disease have access to quality of care, dialysis treatment choices, kidney transplantation and provide the patients perspective on regulatory and legislative issues. RSN promotes the importance of organ donation and living donor initiatives.In addition, psychological adaptation to CKD is crucial to ensuring optimal long-term outcomes. Patients with CKD tend to have higher levels of anxiety and depression than other people. It is vital that they be offered appropriate resources to help them develop coping strategies, increase their perception control and to become educated about their illness and treatment options. RSN has a large social media and mailing list following who seek education and hope. 19 12 1 300 0 116868 110957 0 42106 41336 576069 436318 735043 588611 0 0 288471 319674 0 39856 450643 344638 739114 664312 -4071 -75701 2288899 2215458 2804 5064 2286095 2210394 X Dealing with chronic kidney disease (CKD) can be exhausting, both physically and emotionally. The Center for Disease Control states that an estimated 30 million US adults have CKDor more than 15% of the US adult population. Renal Support Network (RSN) strives to ensure people who have kidney disease have access to quality of care, dialysis treatment choices, kidney transplantation and provide the patients perspective on regulatory and legislative issues. RSN promotes the importance of organ donation and living donor initiatives.In addition, psychological adaptation to CKD is crucial to ensuring optimal long-term outcomes. Patients with CKD tend to have higher levels of anxiety and depression than other people. It is vital that they be offered appropriate resources to help them develop coping strategies, increase their perception control and to become educated about their illness and treatment options. RSN has a large social media and mailing list following who seek education and hope. false false 239153 HopeWeek: For 30 years, RSN has hosted its annual Patient Education Meeting for people living with kidney disease, along with their families, as well as healthcare professionals and anyone who wants to learn more about kidney disease. In 2020, RSN introduced this national, virtual five-day event. Speakers include healthcare professionals and people who have learned to live and thrive despite having kidney disease. Each day has a series of presentations that focuses on a specific disease or treatment for kidney disease including an entire day dedicated to pediatric kidney disease. We held the meeting in October and had over 500 sign ups at over 400 people attend. Tuesday Focus on Chronic Kidney Disease Prevention, Delay Progression and Treatment, Wednesday Focus on Dialysis Care, Thursday Focus on Transplant, Friday Focus on Lifestyle Issues, Saturday Focus on Youth, Family and Kidney Disease. Healthcare professionals and others in the kidney community share their expertise, advice, and stories. RSN strongly supports equitable access to information regardless of barriers, thereby providing a virtual platform for those who cannot attend in-person due to physical, geographic, or other constraints, to be an integral part, and teaches all attendees how to be their own health advocates. The event is meant to be a source of education and inspiration for everyone. All presentations will be edited and loaded onto our website. 106290 KidneyTalk Bi-annual News Magazine: Since 2005, RSNs news and lifestyle magazine has educated and inspired readers with its patient-driven articles and stories of hope. We provide guidance and direction to authors with chronic kidney disease who are excited to share their experiences, strengths, and wisdom to assist their peers and improve their own lives. They tell us they collect, re-read, and share the magazines timeless articles with friends and family. The printed magazine is distributed to patients, caregivers, and healthcare professionals twice per year, with an average reach of 44,000+ readers. A digital library of archives is also available online. 99647 Advocacy and Patient Outreach: We continue to follow and advocate for the Chronic Kidney Disease Improvement in Research & Treatment Act and the Living Donor Protection Act. RSN is an active member of Kidney Care Partners. We provide the patients perspective in high-level administrative meetings and through op-eds. We have engaged in quality measures development, pending regulatory and legislative issues, and the importance of allowing payment to align with best practices and quality measures. We continue to focus on the importance of medication, dialysis, and dietary adherence, and the best ways to provide emotional support to patients and their families. We also ramped up our online ZOOM outreach to allow people to participate. RSN collaborates with Kidney Care Partners and ESRD networks. RSN members participate in coalitions that work to improve CKD well-being and access to care. Many of our members have penned articles for CJASN to get the patients perspective across in peer-reviewed studies being published. We engage and educate patient advocates to provide the patient perspective. RSNs hosts a series of topical Zoom meetings are informative and so much fun! Topics include the kidney diet, exercise, hobbies and more. This is a great way to connect with others living with kidney disease, make new friends and learn new things. There are no fees to attend.We also created tools for people seeking a kidney transplant. Including a transplant dashboard for easy navigation of finding a transplant center that fits patients needs. We also created an animated video series and a share your spare kit to help patients bring up the discussion of transplant in a fun way. 119577 564667 true false false false false false false false false false true false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false true 0 0 false 1 true false false false false false false false 0 false false false false false false false false false false X 19 12 false false false false false false false true false false false true true false false false false false false false X LORI M HARTWELL 8185430896 1311 N MARYLAND AVE GLENDALE CA 91207 LORI HARTWELL President 40.00 0.00 X X 142240 0 0 DEAN HARTWELL Director 2.00 0.00 X 31803 0 0 LUBNA ABKANY RD Director 2.00 0.00 X 1306 0 0 JOANNA LEE Secretary 2.00 0.00 X X 870 0 0 CHARLENE LA FONTANT Director 2.00 0.00 X 0 0 0 JILL HEYDORF Director 2.00 0.00 X 0 0 0 SUSAN VOGEL RN Director 2.00 0.00 X 0 0 0 DAVID TRUJILLO Director 2.00 0.00 X 0 0 0 LESLEY HOLDEN RN Director 2.00 0.00 X 0 0 0 LANA KACHEROVA RN Treasurer 2.00 0.00 X X 0 0 0 RAFAEL VILLICANA MD Director 2.00 0.00 X 0 0 0 KAY BALDWINPHD Director 2.00 0.00 X 0 0 0 BOB KLEIN Director 2.00 0.00 X 0 0 0 WENDY ROGERSMed MPH Chairman 2.00 0.00 X 0 0 0 MARLENE DE VERA RN Director 2.00 0.00 X 0 0 0 RAFFI MINASIAN MD Director 2.00 0.00 X 0 0 0 MADELINE PAHL Director 2.00 0.00 X 0 0 0 KRISTEN CISNEROS RN Director 2.00 0.00 X 0 0 0 MARK HANUDEL MD Director 2.00 0.00 X 0 0 0 176219 1 false false false 0 110957 110957 0 53683 53683 0 0 0 612899 625246 -12347 -12347 -12347 0 0 0 EMBRACE HOPE 900099 3418 3418 SPONSORSHIPS/ADVERTISING 511120 432900 432900 436318 588611 -12347 490001 0 0 0 0 142240 120904 12802 8534 0 140321 119273 12629 8419 0 14699 12494 1323 882 22414 19052 2017 1345 0 2814 2392 253 169 9003 7653 810 540 0 0 0 0 33134 28164 2982 1988 5227 4443 470 314 0 0 53940 45849 4855 3236 5565 4730 501 334 0 44136 37516 3972 2648 0 0 1557 1323 140 94 6073 5162 547 364 CONSULTANTS 51915 44128 4672 3115 Printing and Publications 43706 37150 3934 2622 Postage and Shipping 34973 29727 3148 2098 COMPUTER 16109 13693 1450 966 36486 31014 3284 2188 664312 564667 59789 39856 16183 39983 2268657 2168119 0 0 0 0 0 0 0 13477 6121 4059 7356 0 0 0 0 0 2288899 2215458 2804 5064 2804 5064 X 2286095 2210394 2286095 2210394 2288899 2215458 -75701 X false false false X 108571 468713 667523 662368 543857 2451032 0 0 108571 468713 667523 662368 543857 2451032 196511 2254521 62345 46856 50766 43481 53683 257131 0 0 2708163 0.83250 0.72330 X 13477 6121 7356 7356 Form 990, Part III, Line 4d OTHER PROGRAM SERVICES 4: KidneyTalk Podcast Radio Show: Launched in 2006, the online podcast talk show is hosted by RSN Founder and President Lori Hartwell. It provides a platform to healthcare professionals and people living successfully with kidney disease in which to share their firsthand experiences and knowledge through inspirational and thought-provoking interviews. With 20 shows added each year, there are currently hundreds of KidneyTalk shows available for streaming or downloading. We are on website and podcast players Apple Podcasts, Google Play and on iHeart Radio. KidneyTalk podcast reaches 920,000 people annually via our website and podcast players. OTHER PROGRAM SERVICES 5: KidneyTalk Bi-annual News Magazine: Since 2005, RSNs news and lifestyle magazine has educated and inspired readers with its patient-driven articles and stories of hope. We provide guidance and direction to authors with chronic kidney disease who are excited to share their experiences, strengths, and wisdom to assist their peers and improve their own lives. They tell us they collect, re-read, and share the magazines timeless articles with friends and family. The printed magazine is distributed to patients, caregivers, and healthcare professionals twice per year, with an average reach of 44,000+ readers. A digital library of archives is also available online. OTHER PROGRAM SERVICES 6: Annual Patient Essay Contest: RSN's essay contest is one the most prolific sources of patient-produced editorial content within the kidney community. In 2023, RSN celebrated its 21st year of providing a place for people to share their inspirational stories of living with chronic kidney disease. This year, we invite people who have kidney disease to share their personal story about how a cherished from of entertainment media aids in your journey of navigating life with kidney disease. We encourage writers to explore the question: "Which film, television series, book, or song provides you with comfort?" This essay contest provides an outstanding opportunity for these people with chronic kidney disease to make a valuable contribution to society by expressing their ideas, views, and most importantly, hope. Form 990, Part VI, Section B, Line 11b A COPY OF PROPOSED FORM 990 AND ASSOCIATED SCHEDULES WAS E MAILED TO PRESIDENT FOR REVIEW PRIOR TO FILING OF TAX RETURN AND WAS DISCUSSED AT A BOARD MEETING. Form 990, Part VI, Section C, Line 19 AVAILABLE UPON REQUEST Statement Note 1 RENAL SUPPORT NETWORK2022 FORM 99095-4672679QUALIFYING AS PUBLICLY SUPPORTEDRSN is the leader in engaging people who have kidney disease with the most prolific library of patient experience.Renal Support Network's(RSN) hopeful, life-enriching programs help people who have kidney disease and their families, whether they are in the early stages of the disease, are on dialysis or have received a transplant.Lori Hartwell founded RSN in 1993 to empower people who have kidney disease to become knowledgeable about their illness, proactive in their care, hopeful about their future and to make friendships that last a lifetime. Lori was diagnosed in 1968 with kidney failure and knows how important hope, peer connection and knowledge are to survive and thrive with an illness. People we connect with come to see kidney disease in a totally different light - that although it is difficult, it is manageable. We help them recognize the need to take control of the course and management of their illness through storytelling. Learning from another patient's experience and point of wisdom to live successfully and navigate care is vital for success.RSN fills this need and reaches hundreds of thousands of people a year through its many cross-promotions, outreach, education, hopeful and advocacy initiatives.KidneyTalk Bi-annual News Magazine: Since 2005, RSN's News Magazine has educated and inspired readers with its patient-driven articles and stories of hope. We provide guidance and direction to authors with chronic kidney disease who are excited to share their experiences, strengths, and wisdom to assist their peers and improve their own lives. They tell us they collect, re-read, and share the magazine's timeless articles with friends and family. The printed magazine is distributed to patients, caregivers, and healthcare professionals twice per year, with an average reach of 44,000 readers. A digital library of archives is also available online.KidneyTalk Podcast Radio Show: Launched in 2006, the online podcast talk show is hosted by RSN founder and President Lori Hartwell. It provides a platform to healthcare professionals and people living successfully with kidney disease in which to share their firsthand experiences and knowledge through inspirational and thought-provoking interviews. With 20 shows added each year, there are currently hundreds of KidneyTalk shows available for streaming or downloading. We are on website and podcast players Apple Podcasts, Google Play and iHeart Radio.Annual Patient Essay Contest: RSN's essay contest is one of the most prolific sources of patient-produced editorial content within the kidney community. In 2023, RSN celebrated its 21ST year of providing a place for people to share their inspirational stories of living with chronic kidney disease. This year, we invite people who have kidney disease to share their personal story about how a cherised form of entertainment media aids in your journey of navigating life with kidney disease. We encourage writers to explore the question: "Whichfilm, television series, book, or song provides you with comfort?" This essay contest provides an outstanding opportunity for these people with chronic kidney disease to make a valuable contribution to society by expressing their ideas, views and most importantly, hope.HopeWeek: For almost three decades, RSN has hosted its annual Patient Education Meeting for people living with kidney disease, along with their families, as well as healthcare professionals and anyone who wants to learn more about kidney disease. We have now switched to an online event and can reach more people and help them learn how to navigate this illness. Each day focuses on a specific aspect, or stage, of chronic kidney disease, including dialysis, insurance, kidney transplantation, and daily life issues. Heathcare professionals and others in the kidney community share their expertise, advice and stories. RSN strongly supports equitable access to information regardless of barriers, thereby providing a virtual platform for those who cannot attend in-person due to physical, geographic, or other constraints, to be an integral part, and teaches all attendees how to be their own health advocates. The event is meant to be a source of education and inspiration for everyone. In 2020, RSN introduced this national, virtual five-day event. Speakers include healthcare professionals and people who have learned to live and thrive despite having kidney disease. Each day has a series of presentations that focuses on a specific disease or treatment for kidney disease including an entire day dedicated to pediatric kidney disease. Tuesday - Focus on Chronic Kidney Disease Prevention, Delay Progression and Treatment, Wednesday - Focus on Dialysis Care, Thursday - Focus on Transplant, Friday - Focus on Lifestyle Issues, Saturday - Focus on Youth, Family and Kidney Disease. All presentations will be edited and loaded onto our website.24th Annual Renal Teen Prom: Prom season comes early for teens and young adults who have been diagnosed with kidney disease, and to those who are on dialysis or have a kidney transplant. The first prom was hosted in 2000 by Lori Hartwell, RSN's President and Founder, who missed missing many school activities, including her own prom due to being on dialysis from age 12 to 24. She didn't want other teens to miss their own coming-of-age event. The prom brings these young people together to meet each other to share their experiences, strengths, and hopes. It lets them know they are not alone and how 'one friend can make a diffence'. This event is at no charge to attendees and their guests. Advocacy and Patient Outreach: We continue to follow and advocate for the Chronic Kidney Disease Improvement in Research & Treatment Act and the Living Donor Protection Act. RSN is an active member of Kidney Care Partners. We provide the patients perspective in high-level administrative meetings and through op-eds. The Advancing American Kidney Health initiativesambitious goal to see 80 percent of new patients either starton home dialysis or receive preemptive transplants by 2025 is a bit unrealistic. Nevertheless, RSN is committed to helping patients choose the option that is best for them through our many educational programs. We have engaged in quality measures development, pending regulatory and legislative issues, and the importance of allowing payment to align with best practices and quality measures. We continue to focus on the importance of medication, dialysis, and dietary adherence, and the best ways to provide emotional support to patients and their families, especially during COVID-19. We also ramped up our online ZOOM outreach to allow people to participate. RSN collaborates with Kidney Care Partners, The National Quality Forum, Kidney Care Quality Alliance, California Dialysis Council, and several ESRD networks. RSN members participate in coalitions that work to improve CKD well-being and access to care. Many of our members have penned articles for CJASN to get the patients perspective across in peer-reviewed studies being published. We engage and educate patient advocates to provide the patient perspective. Visit www.RSNhope.org for more informationDONATIONS ARE ENCOURAGED ON THE RSN WEBSITE AND ARE ACCEPTED BY PHONE, CHECK OR ON-LINE.