2024-08-01T08:26:10-07:00 2023-12-31 451869055 Coworth Financial Services LLC 11155 Kenwood Road Suite 6D Cincinnati OH 45242 990 2023-01-01 270094262 The PAP Foundation Inc CO Cincinnati Childrens Hospital PAPF 5136368916 3333 Burnet Avenue Cincinnati OH 45229 Brenna Carey Secy Treasurer 2024-08-01 true true Kevin L Holmes P00227061 5136735469 2023 2024-08-08 14:25:15Z 3333 Burnet Avenue Cincinnati OH 45229 123867 false X www.papfoundation.org X 2004 OH The PAP Foundation is a non-profit patient advocacy organization dedicated to finding a cure and to improving the lives of those affected by pulmonary alveolar proteinosis ("PAP").Through advocacy and collaboration, we promote research on PAP and provide information and support for PAP patients, healthcare professionals, and the public. 5 5 0 10 0 135854 118135 0 0 6009 1471 141863 119606 0 0 1978 1330 0 0 28175 32148 30153 33478 111710 86128 475888 566276 0 475888 566276 The PAP Foundation is a non-profit patient advocacy organization dedicated to finding a cure and to improving the lives of those affected by pulmonary alveolar proteinosis ("PAP").Through advocacy and collaboration, we promote research on PAP and provide information and support for PAP patients, healthcare professionals, and the public. false false 31928 We hosted in-person educational events for physicians, scientists, patients, and families in 2023. PAP Education Day on May 20, 2023 in conjunction with the Patient and Experts Forum hosted by the Public Advisory Roundtable at the American Thoracic Society Meeting in Washington DC. which included presentations on navigating the healthcare system and providing pulmonary healthcare access for all. After the morning sessions, the PAP Foundation hosted a Question and Answer session for patients and family members with PAP physicians and scientists. This program involved 10 individuals, including patients, family members, physicians, and scientists.PAP Education Day on October 14, 2023 at the University of California Los Angeles in Los Angeles, CA included presentations on PAP 101: definitions, diagnosis, therapies and clinical trials, description of the PAP Foundation community, resources, and how to get involved, and a Patient Perspective on Quality of Life, Oxygen, and Nebulizers. Thirty-seven (37) patients, family members, physicians, and scientists registered for this event. 31928 true true false false false false false false false false false false false false false false false false false false false false false false true false false false false false false false false false false false false false false false false false false false false false false true 1 0 true 0 false false false false false true true false 0 false false false false false false false X 5 5 false false false false false false false true true false false false true true true false false false false false X Brenna Carey 5136368916 3333 Burnet Avenue Cincinnati OH 45229 X Christopher Hameetman President 3.00 0.00 X X 0 0 0 Tisha Wang MD Vice President 3.00 0.00 X X 0 0 0 Steve Park Second VP 3.00 0.00 X X 0 0 0 Brenna Carey Secy Treasurer 3.00 0.00 X X 0 0 0 Bruce Trapnell MD Chairman 3.00 0.00 X X 0 0 0 0 false false false 0 10000 108135 118135 0 0 0 0 0 0 5142 10000 4261 881 881 0 0 Miscellaneous 590 590 590 119606 1471 0 0 0 0 0 0 1330 1330 0 0 0 0 0 550 550 0 0 0 0 0 0 0 0 267 267 17723 17723 0 0 0 0 0 0 Patient Education Day Exp 10828 10828 Supplies 1295 979 316 Postage and Shipping 1068 1068 Dues and Memberships 417 417 0 33478 31928 1550 0 475888 566276 0 0 0 0 0 0 0 0 0 0 0 0 0 0 475888 566276 0 0 X 475888 566276 475888 566276 475888 566276 X 86128 4260 X false false false X 54198 83789 122879 135854 118135 514855 0 0 54198 83789 122879 135854 118135 514855 379972 134883 0 8428 420 7927 5352 880 23007 657 590 1247 539109 0.25020 0.21600 X Prior Year Facts and Circumstances: The PAP Foundation seeks both a cure and effective treatment for Pulmonary Alveolar Proteinosis (PAP). PAP is a life-threatening lung disorder that affects men, women and children. PAP is very rare. As a consequence, the pool of donors is small as compared to most publicly-supported organizations. The PAP Foundation does not benefit any one individual or any related group; rather, the Foundation is dedicated to finding a cure for all those afflicted with PAP, and as such represents the broad interests of the general public. The Foundation promotes research on PAP and provides information and support for PAP patients, wherever they may be. The Foundation seeks to expand its contribution base through the provision of information to patients, healthcare professionals and the public.In 2019, two large contributions were received from donors who previouly had not made gifts in prior years. Those contributions are included in full in Schedule A. Additionally, substantial contributions were received in 2020, 2021, 2022 and 2023 from relatively few donors, all of which are reported on Schedule A. The Foundation is slowly building its support from the general public. Only relatively small contributions were received in 2016 and 2017. The Foundation anticipates that it will not meet the 33 1/3% test for several years. The public support percentage does continue to rise - from 21.6% in 2022 to 22.6% in 2023. Gifts are currently being made by multiple non-related persons. The board consists of unrelated individuals who represent a broad spectrum of society. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false Golf Outing 15142 10000 5142 4261 15142 10000 5142 4261 4261 881 Form 990, Part VI, Section B, Line 11b Form 990 is provided to the board president prior to filing, and then posted on the Foundation's website. The board is currently revising its policy so that a full board review will occur prior to filing. Form 990, Part VI, Section C, Line 19 Documents are made available to the public upon request. Form 990, Part XI, Line 9 Prior Period Adjustment = $4260