2024-07-08T13:36:02-05:00 2023-12-31 431985162 SMITH SULLIVAN & BROWN PC 80 FLANDERS ROAD SUITE 302 WESTBOROUGH MA 01581 990 2023-01-01 237305430 SPINA BIFIDA ASSOCIATION OF GREATER NEW ENGLAND SPIN 5084825300 PO BOX 681 NATICK MA 01760 BRENDAN SULLIVAN TREASURER 5084825300 2024-07-08 1 BRENDAN SULLIVAN 999009999 0 SANDRA M BROWN CPA P01614103 5088717178 2024-07-08 2 AAL1 IAL1 2023 2023-04-26 12:10:37Z BRENDAN SULLIVAN PO BOX 681 NATICK MA 01760 273404 0 X WWW.SBAGREATERNE.ORG X 1972 MA EDUCATION AND SUPPORT FOR FAMILIES WITH PERSONS IMPACTED BY SPINA BIFIDA. 14 14 2 34 0 0 236061 272823 0 0 51 141 -9858 -11281 226254 261683 6660 5863 0 0 112788 97718 0 0 31943 133683 128702 253131 232283 -26877 29400 104984 156391 8475 30482 96509 125909 EDUCATION AND SUPPORT FOR FAMILIES WITH PERSONS IMPACTED BY SPINA BIFIDA. 0 0 163727 5863 THE SPINA BIFIDA ASSOCIATION OF GREATER NEW ENGLAND "SBAGNE" IS AN AFFILIATED CHAPTER OF THE NATIONAL SPINA BIFIDA ASSOCIATION, WITH A MISSION TO BUILD A BETTER AND BRIGHTER FUTURE FOR ALL THOSE IMPACTED BY SPINA BIFIDA. FOUNDED IN 1971, SBAGNE IS AN INDEPENDENT MASSACHUSETTS 501(C)(3) NON-PROFIT, GOVERNED BY AN INDEPENDENT BOARD OF DIRECTORS. WE SERVE INDIVIDUALS AND FAMILIES LIVING WITH SPINA BIFIDA IN ALL 6 NEW ENGLAND STATES. THE BOARD CONSISTS OF PARENTS OF CHILDREN WITH SPINA BIFIDA, ADULTS WITH SPINA BIFIDA, AND DEDICATED PROFESSIONALS WORKING TOGETHER TO SUPPORT AND ENCOURAGE FAMILIES AND INDIVIDUALS THROUGHOUT THE GREATER NEW ENGLAND AREA. THE GOAL IS TO ENRICH THE LIVES OF THOSE AFFECTED BY SPINA BIFIDA THROUGH EDUCATION, SUPPORT, COMMUNITY BUILDING, ADVOCACY, AND PUBLIC AWARENESS. 163727 1 1 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 2 1 0 0 0 0 0 0 0 0 0 0 0 0 X 14 14 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 MA X JEAN BERTSCHMANN 5084825300 PO BOX 681 NATICK MA 01760 BRENDAN SULLIVAN TREASURER 5.00 X X 0 0 0 AMIE RICHARDS CHAIR 2.00 X X 0 0 0 JAMIE CURTIS SECRETARY 2.00 X X 0 0 0 LINDA LONG BELLIL CHAIR ELECT 2.00 X 0 0 0 ASHLEY BIRCH DIRECTOR 2.00 X 0 0 0 JENNIFER LEIDNER DIRECTOR 2.00 X 0 0 0 NATHAN BELLEROSE DIRECTOR 2.00 X 0 0 0 TOM BODDEN DIRECTOR 2.00 X 0 0 0 STEVE HORNSBY DIRECTOR 2.00 X 0 0 0 ANDREW WHITE DIRECTOR 2.00 X 0 0 0 LENA WILLIAMSON FORMER DIRECTOR 2.00 X 0 0 0 ALEX DANAHY DIRECTOR 2.00 X 0 0 0 JIM ELLIOTT DIRECTOR 2.00 X 0 0 0 NICOL HERNANDEZ DIRECTOR 2.00 X 0 0 0 JAN TERLAJE DIRECTOR 2.00 X 0 0 0 JEAN BERTSCHMANN EXECUTIVE DIRECTOR 35.00 X 72478 0 0 72478 0 0 0 0 0 0 0 126961 145862 272823 141 141 0 126961 11721 -11721 -11721 MISCELLANEOUS INCOME 900099 440 440 440 261683 440 0 -11580 5863 5863 72256 51302 11561 9393 17801 12327 2873 2601 7661 5413 1228 1020 12635 12635 1400 1400 24612 6113 3993 14506 16167 11423 2591 2153 4964 3620 894 450 4440 3137 712 591 PROGRAM EVENT EXPENSE 61240 61240 OUTREACH 1156 966 190 MISCELLANEOUS 1049 923 126 FUNDRAISING EXPENSE 1039 1039 232283 163727 36613 31943 20060 109553 70701 10128 8394 6162 5155 4155 674 26393 104984 156391 8475 5769 0 24713 8475 30482 X 63509 105909 33000 20000 96509 125909 104984 156391 29400 0 X 0 0 0 X 223105 185226 228604 236061 272823 1145819 223105 185226 228604 236061 272823 1145819 86350 1059469 36 49 64 51 141 341 835 4908 1396 440 7579 1153739 0.91830 0.94030 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 SECURITY DEPOSIT 1920 RIGHT OF USE ASSET - OPERATING LEASE 24473 26393 OPERATING LEASE LIABILITY 24713 24713 FALMOUTH ROAD RACE 73584 73584 8460 WALK N ROLL 53377 53377 3261 126961 126961 11721 11721 -11721 1 EMPOWERMENT GRANTS AND SCHOLARSHIPS 23 5863 PART I, LINE 2: SBAGNE OFFERS ANNUAL EMPOWERMENT GRANTS OF UP TO $250/PERSON TO PROVIDE DIRECT FINANCIAL SUPPORT FOR ADAPTIVE EQUIPMENT; CAMP, ADAPTIVE SPORTS, AND RECREATION EQUIPMENT; UROLOGICAL SUPPLIES FOR INDIVIDUALS OVER THE AGE OF 3; DURABLE MEDICAL EQUIPMENT AND ASSISTIVE TECHNOLOGY. IN FY 23, WE PROVIDED EMPOWERMENT GRANTS TO 21 INDIVIDUALS. SBAGNE OFFERS AN ANNUAL JEAN DRISCOLL SCHOLARSHIP OF UP TO $1,000/PERSON. THE AWARD MAY BE USED FOR EDUCATIONAL, DEVELOPMENTAL OR ASSISTIVE PROGRAMS AND NEEDS. APPLICATIONS ARE ACCEPTED FROM ANY CONSTITUENT, AGE 14 OR OLDER, WITH SPINA BIFIDA WHO BEST DEMONSTRATES THE CHARACTER AND DETERMINATION OF THE SCHOLARSHIP'S NAMESAKE. IN FY23, WE PROVIDED TWO $500 SCHOLARSHIPS. FORM 990, PART VI, SECTION B, LINE 11B THE TREASURER AND CHAIR COMPLETE THE 990 AND DISTRIBUTE IT TO ALL BOARD MEMBERS WITH THE INDEPENDENTLY REVIEWED FINANCIAL STATEMENTS PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS REVIEWED AT THE ANNUAL MEETING AND ALL BOARD MEMBERS SIGN A CONFLICT OF INTEREST DISCLOSURE FORM. FORM 990, PART VI, SECTION B, LINE 15 THE EXECUTIVE DIRECTOR'S SALARY IS REVIEWED ANNUALLY BY THE EXECUTIVE COMMITTEE WHICH EVALUATES PERFORMANCE AND COMPARES SALARIES IN SIMILAR ORGANIZATIONS. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST FROM THE PUBLIC. THE ORGANIZATION'S FINANCIAL STATEMENTS ARE ALSO AVAILABLE TO THE GENERAL PUBLIC ON THE MASSACHUSETTS ATTORNEY GENERAL'S DIVISION OF PUBLIC CHARITIES WEBSITE.