2024-06-13T14:23:50-05:00 2024-03-31 260476995 TIGHE KRESS & ORR PC 2205 POINT BLVD SUITE 100 ELGIN IL 60123 990 2023-04-01 863907079 DYSPHONIA INTERNATIONAL INC DYSP 6302504504 300 PARK BLVD SUITE 175 175 ITASCA IL 60143 CHARLES REAVIS PRESIDENT 6302504504 2024-06-13 1 CHARLES REAVIS 999009999 0 TIMOTHY A KING CPA MAS P01338371 8476952700 2024-06-13 2 AAL1 IAL1 2023 2023-04-26 12:10:37Z CHARLIE REAVIS 300 PARK BOULEVARD ITASCA IL 60143 1304248 0 X HTTPS://DYSPHONIA.ORG/ X 2020 IL DYSPHONIA INTERNATIONAL IS DEDICATED TO IMPROVING THE LIVES OF PEOPLE AFFECTED BY SPASMODIC DYSPHONIA AND RELATED VOICE CONDITIONS THROUGH RESEARCH, EDUCATION, AWARENESS, AND SUPPORT. 10 10 4 300 0 0 470969 453951 0 0 55284 26203 2748 7623 529001 487777 117000 191348 0 0 198748 205700 0 0 29611 94813 146607 410561 543655 118440 -55878 3109933 3143625 104484 63078 3005449 3080547 X DYSPHONIA INTERNATIONAL, FORMERLY THE NATIONAL SPASMODIC DYSPHONIA ASSOCIATION, IS DEDICATED TO IMPROVING THE LIVES OF PEOPLE AFFECTED BY SPASMODIC DYSPHONIA AND RELATED VOICE CONDITIONS (VOCAL TREMOR, VOCAL FOLD PARALYSIS/PARESIS, MUSCLE TENSION DYSPHONIA) THROUGH RESEARCH, EDUCATION, AWARENESS, AND SUPPORT. OUR COMMUNITY IS COMPRISED OF VOLUNTEERS, HEALTHCARE PROFESSIONALS, FAMILIES, FRIENDS, AND STAFF, ALL DEDICATED TO THE VISION OF ERADICATING SPASMODIC DYSPHONIA AND RELATED VOICE CONDITIONS. WE FUND RESEARCH TO ADVANCE THE UNDERSTANDING OF THE CAUSES OF AND TREATMENTS FOR SPASMODIC DYSPHONIA AND RELATED VOICE CONDITIONS AND, EVENTUALLY, A CURE. WE EDUCATE TO HELP REDUCE THE TIME TO DIAGNOSIS. WE RAISE AWARENESS TO REDUCE THE ISOLATION AROUND HAVING A VOICE DISORDER. WE PROVIDE SUPPORT TO THOSE AFFECTED AND THEIR FAMILIES THROUGH SYMPOSIUMS, SUPPORT GROUPS, AND ONLINE RESOURCES SO THAT NO ONE FEELS ALONE. 0 0 160115 OUR RECENT ACTIVITIES REFLECT A DYNAMIC ENGAGEMENT WITH THE GLOBAL COMMUNITY IN ADVANCING VOICE RESEARCH AND AWARENESS. NOTABLY, WE MARKED A SIGNIFICANT MILESTONE BY HOSTING OUR FIRST IN-PERSON SYMPOSIUM SINCE 2019. THIS ALSO MARKED THE FIRST OFFICIAL MEETING OF DYSPHONIA INTERNATIONAL. OUR PRESENCE REMAINED IMPACTFUL AT THREE MAJOR PROFESSIONAL VOICE CONFERENCES, INCLUDING A PRESENTATION TO LARYNGOLOGY FELLOWS AT THE FALL VOICE CONFERENCE. WE SPONSORED EIGHT INSIGHTFUL WEBINARS THAT ATTRACTED OVER 3,100 PARTICIPANTS FROM AN AVERAGE OF 30 COUNTRIES, UNDERSCORING OUR COMMITMENT TO ACCESSIBLE AND INCLUSIVE EDUCATION. WE PUBLISHED AN ISSUE OF "OUR VOICE," OUR ANNUAL NEWSLETTER, ALONG WITH THE E-VOICE, AN ELECTRONIC NEWSLETTER. IN AMPLIFYING AWARENESS OF THE IMPORTANCE OF VOICE HEALTH, WE LAUNCHED A WORLD VOICE DAY CAMPAIGN THEMED "YOUR VOICE MATTERS," RESONATING WITH AUDIENCES GLOBALLY. OUR DEDICATION TO EDUCATION EXTENDED TO COORDINATING TEN ENGAGING PRESENTATIONS FOR THE GUEST SPEAKER PROGRAM, REACHING GRADUATE-LEVEL SPEECH-LANGUAGE PATHOLOGY STUDENTS AND EMPOWERING THE NEXT GENERATION OF VOICE PROFESSIONALS. IN A SPIRITED DISPLAY OF COMMUNITY UNITY AND SUPPORT, WE ORGANIZED THE 4TH ANNUAL WALK FOR TALK, ENCOMPASSING WORLDWIDE VIRTUAL PARTICIPATION ALONGSIDE 22 IN-PERSON EVENTS. NOTABLY, TEN OF THESE EVENTS WERE INAUGURAL WALKS, MANY SPEARHEADED BY HEALTHCARE PROFESSIONALS PASSIONATE ABOUT OUR CAUSE. THROUGH OUR COLLECTIVE EFFORTS, OUR COMMUNITY ACHIEVED AN UNPRECEDENTED FUNDRAISING MILESTONE, RAISING $124,566, FURTHER MAGNIFIED BY A DOLLAR-FOR-DOLLAR MATCH, CULMINATING IN A GRAND TOTAL OF $249,132 DEDICATED TO FUELING IMPACTFUL RESEARCH AND PROGRAMS FOR THE ADVANCEMENT OF VOICE AWARENESS WORLDWIDE. 75379 OUR COMMITMENT TO FOSTERING COMMUNITY SUPPORT AND LEADERSHIP WITHIN OUR ORGANIZATION HAS BEEN EVIDENT THROUGH A DIVERSE RANGE OF INITIATIVES AND PROGRAMS. WE ORGANIZED AND PROMOTED OVER 90 SUPPORT MEETINGS IN VARIOUS MEDIUMS, INCLUDING VIRTUAL, IN-PERSON AND HYBRID. WE SUCCESSFULLY HOSTED A LEADERSHIP WORKSHOP, MARKING A SIGNIFICANT MILESTONE IN OUR EFFORTS TO PROVIDE HANDS-ON GUIDANCE AND TRAINING TO OUR LEADERS, A FIRST SINCE 2019. RECOGNIZING THE IMPORTANCE OF ONGOING EDUCATION AND COLLABORATION, WE LAUNCHED A MONTHLY SERIES OF VIRTUAL MEETINGS DEDICATED TO OUR SUPPORT NETWORK LEADERSHIP, WITH SESSIONS ROTATING BETWEEN AREA CONTACT LEADERS, SUPPORT GROUP LEADERS, AND JOINT LEADERSHIP DISCUSSIONS. ADDITIONALLY, WE INTRODUCED THE SPOTLIGHT ON A LEADER PROGRAM, SHINING A WELL-DESERVED LIGHT ON THE EXCEPTIONAL CONTRIBUTIONS OF OUR VOLUNTEER LEADERS, INSPIRING OTHERS AND FOSTERING A CULTURE OF RECOGNITION AND APPRECIATION. IN ORDER TO PROVIDE VALUABLE RESOURCES TO OUR VOLUNTEERS, WE ESTABLISHED A COMPREHENSIVE LEADERSHIP LIBRARY, SERVING AS AN ONLINE REPOSITORY OF TOOLS AND INFORMATION TAILORED TO SUPPORT OUR LEADERS IN THEIR ROLES EFFECTIVELY. FURTHERMORE, WE FACILITATED TWO IMPACTFUL MEDIA WORKSHOPS FEATURING REPORTER PETER HASKELL, EMPOWERING OUR SUPPORT LEADERSHIP NETWORK WITH VALUABLE INSIGHTS AND SKILLS FOR EFFECTIVE COMMUNICATION AND ADVOCACY. CELEBRATING EXCELLENCE AND DEDICATION WITHIN OUR COMMUNITY, WE PROUDLY PRESENTED PRESTIGIOUS AWARDS SUCH AS THE MIDGE KOVACS AWARD, THE DOT SOWERBY AWARENESS AWARD, AND THE LARRY KOLASA FOUNDING PRESIDENT'S AWARD, HONORING INDIVIDUALS WHOSE CONTRIBUTIONS HAVE MADE A PROFOUND IMPACT ON OUR MISSION AND VISION. TO KEEP OUR COMMUNITY INFORMED AND CONNECTED, WE CONTINUED TO PUBLISH OUR QUARTERLY ONLINE NEWSLETTER, VOICES OF SUPPORT, SPOTLIGHTING THE INSPIRING WORK AND ACHIEVEMENTS OF OUR DEDICATED VOLUNTEER SUPPORT NETWORK, FOSTERING CAMARADERIE AND SHARED LEARNING EXPERIENCES. 233911 191348 OUR COMMITMENT TO ADVANCING SCIENTIFIC RESEARCH AND FOSTERING COLLABORATIONS HAS BEEN EVIDENT THROUGH A SERIES OF IMPACTFUL INITIATIVES AND ENGAGEMENTS. WE FUNDED THREE NEW RESEARCH GRANTS, PROVIDING CRUCIAL SUPPORT FOR INNOVATIVE PROJECTS AIMED AT ADVANCING KNOWLEDGE AND IMPROVING OUTCOMES. ADDITIONALLY, WE EXTENDED AUGMENTIVE FUNDING TO BOLSTER FIVE ONGOING RESEARCH ENDEAVORS, NOTABLY INCLUDING A TREATMENT CLINICAL TRIAL FOCUSED ON A GROUNDBREAKING NEW NEUROTOXIN-BASED APPROACH. RECOGNIZING EXCELLENCE AND INNOVATION IN OUR FIELD, WE AWARDED TWELVE TRAVEL AWARDS AND TWO CONFERENCE AWARDS TO OUTSTANDING INDIVIDUALS PRESENTING THEIR WORK AT THE ANNUAL MEETINGS HOSTED BY PROFESSIONAL VOICE ASSOCIATIONS. OUR EFFORTS TO EXPAND GLOBAL PARTNERSHIPS AND NETWORKS LED TO THE ESTABLISHMENT OF MEANINGFUL COLLABORATIONS WITH TWO NEW PROFESSIONAL LARYNGOLOGY SOCIETIES IN EUROPE, FOSTERING CROSS-BORDER EXCHANGE AND MUTUAL LEARNING. IN OUR DEDICATION TO NURTURING TALENT AND PROMOTING KNOWLEDGE SHARING, WE ORGANIZED A VIRTUAL RESEARCH WORKSHOP TAILORED SPECIFICALLY FOR INVESTIGATORS FUNDED BY DYSPHONIA INTERNATIONAL, PROVIDING A PLATFORM FOR MEANINGFUL DISCUSSIONS AND INSIGHTS. TO FURTHER ENRICH OUR STRATEGIC GUIDANCE AND EXPERTISE, WE WELCOMED THREE DISTINGUISHED PROFESSIONALS AS NEW MEMBERS TO OUR ESTEEMED SCIENTIFIC ADVISORY BOARD, TAPPING INTO DIVERSE PERSPECTIVES AND EXPERIENCES. ACTIVE PARTICIPATION IN TWO SCIENTIFIC SYMPOSIA, INCLUDING AN INTERNATIONAL GATHERING, UNDERSCORED OUR COMMITMENT TO STAYING AT THE FOREFRONT OF SCIENTIFIC DISCOURSE AND INNOVATION. THESE ENGAGEMENTS NOT ONLY PROVIDED OPPORTUNITIES TO SHARE OUR INSIGHTS AND CONTRIBUTIONS BUT ALSO FACILITATED INVALUABLE NETWORKING AND COLLABORATIVE OPPORTUNITIES WITHIN THE GLOBAL SCIENTIFIC COMMUNITY. 469405 1 1 0 1 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 4 0 1 4 1 0 0 0 0 0 0 0 0 0 0 X 10 10 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 IL X KIMBERLY KUMAN 8477224684 300 PARK BOULEVARD SUITE 175A ITASCA IL 60143 DOT SOWERBY DIRECTOR 2.00 X 0 0 0 CHARLES REAVIS PRESIDENT 15.00 X X 0 0 0 MARY BIFARO SUPPPORT NETWORK DIRECTOR 10.00 X X 0 0 0 MARCIA STERLING DIRECTOR 2.00 X 0 0 0 BEVERLY MATTHEWS TREASURER 2.00 X X 0 0 0 SUSAN BECK DEVELOPMENT DIRECTOR 2.00 X X 0 0 0 DENNIS KASZETA DIRECTOR 2.00 X 0 0 0 BRUCE MENK DIRECTOR 2.00 X 0 0 0 DOROTHY TANNAHILL-MORAN DIRECTOR 2.00 X 0 0 0 CHARLIE WOMBLE DIRECTOR 2.00 X 0 0 0 KIMBERLY KUMAN EXECUTIVE DIRECTOR 52.00 X 91913 0 0 91913 0 0 0 0 0 0 0 360 453591 6956 453951 94536 94536 748138 816471 -68333 -68333 -68333 OTHER INCOME 900099 7623 7623 7623 487777 -60710 0 94536 191348 191348 91913 73531 9191 9191 100490 80392 10049 10049 13297 10637 1330 1330 29949 23959 2995 2995 16264 16264 3600 3600 3900 3120 390 390 8100 6480 810 810 22952 21912 520 520 ADMINISTRATION 20879 18349 1265 1265 AWARENESS/SUPPORT 18798 18798 WEBSITE AND WEB-BASED T 11558 9246 1156 1156 POSTAGE 6212 4970 621 621 4395 3063 48 1284 543655 469405 44639 29611 137401 20816 403115 177710 11064 8418 2558353 2936681 3109933 3143625 101949 56858 2535 6220 104484 63078 X 2957449 3032547 48000 48000 3005449 3080547 3109933 3143625 -55878 130976 0 X 0 1 X 1 0 X 470969 453591 924560 470969 453591 924560 296122 628438 55284 94536 149820 2748 7623 10371 1084751 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 1 0 0 1 0 0 0 0 PART II-B, LINE 1: THE ADVOCACY ACTIVITIES INCLUDE PARTICIPATION IN AN ANNUAL ADVOCACY DAY AND PUBLISHING ARTICLES ABOUT LEGISLATION IMPORTANT TO MEMBERS OF OUR ORGANIZATION. ADVOCACY DAY WAS VIRTUAL. INSTEAD OF IN-PERSON VISITS, VOLUNTEERS AND STAFF WERE ENCOURAGED TO EMAIL AND CALL CONGRESSIONAL OFFICES, BOTH IN DC AND LOCALLY, TO SHARE THEIR PERSONAL EXPERIENCES WITH SPASMODIC DYSPHONIA AND RELATED VOICE CONDITIONS AND DISCUSS KEY ISSUES THAT AFFECT THEM. 0 X 602489 130976 130976 471513 16264 16264 487777 527391 0 527391 16264 16264 543655 PART X, LINE 2: MANAGEMENT HAS ANALYZED THE TAX POSITIONS TAKEN BY THE ASSOCIATION AND HAS CONCLUDED THERE ARE NO UNCERTAIN POSITIONS TAKEN OR EXPECTED TO BE TAKEN THAT WOULD REQUIRE RECOGNITION OF A LIABILITY OR DISCLOSURE IN THE FINANCIAL STATEMENTS. 0 UNIVERSITY OF SOUTH FLORIDA 4202 E FOWLER AVE TAMPA FL 33620 593102112 72706 0 DYSPHONIA IN THE DIGITAL AGE UNIVERSITY OF CALIFORNIA LOS ANGELES 405 HILGARD AVE LOS ANGELES CA 90095 956006143 50000 0 OBJECTIVE MEASURES OF LARYNGEAL DYSTONIA SEVERITY AND TREATMENT EFFICACY FORM 990, PART VI, SECTION B, LINE 11B THE DETAIL REVIEW OF THE FORM 990 DRAFT WAS CONDUCTED BY THE ORGANIZATION'S MANAGEMENT, TREASURER, PRESIDENT, ANOTHER BOARD MEMBER AND REPRESENTATIVE OF THE ORGANIZATION'S TAX FIRM. A COPY OF THE 990 WAS DISTRIBUTED TO ALL BOARD MEMBERS PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE PRESIDENT AND EXECUTIVE DIRECTOR REVIEW THE ANNUAL CONFLICT OF INTEREST FORMS TO ENSURE THAT NO BOARD MEMBER IS IN CONFLICT. FORM 990, PART VI, SECTION B, LINE 15A THE COMPENSATION (SALARY AND BENEFITS) OF THE EXECUTIVE DIRECTOR IS REVIEWED ANNUALLY AS PART OF THE ANNUAL BUDGET PROCESS. THE COMPENSATION IS APPROVED BY THE BOARD OF DIRECTORS, ALL OF WHO ARE INDEPENDENT PERSONS. THE APPROVAL IS DOCUMENTED IN THE MINUTES OF THE BOARD OF DIRECTORS AS PART OF THE BUDGET APPROVAL. FORM 990, PART VI, SECTION C, LINE 19 THE ARTICLES OF INCORPORATION ARE PUBLICLY AVAILABLE FROM THE ILLINOIS SECRETARY OF STATE'S OFFICE. THE CONFLICT OF INTEREST POLICY IS PUBLICLY AVAILABLE ON THE ORGANIZATION'S WEBSITE. REQUESTS FOR FINANCIAL STATEMENTS (OTHER THAN THOSE INCLUDED IN IRS FORM 990) ARE REVIEWED FOR MERIT.